Why is a day so hard to get thru

  • Thread starter Thread starter Round1
  • Start date Start date
R

Round1

Guest
I had a double level fusion last May. Why 9 months on do I find day to day things so hard, and sometimes not able to do. At the moment I am totally frustrated and fed-up. I noticed a good improvement after christmas, but now I feel I am at a stand still. I still need to lye down for an hour in the morning and an about 90 minutes in the afternoon before I can start the dinner, homework, etc....... It isnt as if my day is constructiive that I am able to go out walking or shopping mostly it is just going to a few shops, coffee, and so sore have to come home and then it is basically trying to function around the house. To have to go out in the afternoon isnt possible I am too sore.

I really feel at 9 months this is not a success story. Why I noticed the improvement since christmas was I stoped doing my walks on the threadmill or outside, as 20 min walk I would be so sore and not able to do anything else. So now I'd rather be able to do more the norm stuff and not just say yep walked 20 min but had to lye down. I also feel that my physio has really given up on me. My last appointment she wasnt even there and had someone else and she said work away yourself and then said I think you are going to be down to every 3 weeks. I feel I need it once a week at least I know I am doing it at home but still even to get more motivated and new exercises. Sorry for moaning on here, but I just put down a bad day and feel guilty that I am not there for my family to do the normal simple things. I think what set me off was just being so sore after doing the school collection and seeing all the other "normal" people and wishing I hadnt to be the one out last from the car so I wouldnt have to stand around, and the first one there parked so i wouldnt have to walk far............... is this a life? Can anyone relate to this at 9 months. Thanks
Round 1
 
Aw, Round, I'm sorry you're feeling like this. It can get very discouraging when you have to go through something with such a long recovery. I continued to see improvement even after the 11 month mark. I was surprised, as I figured that was about where I would stay. After a year, though, I really haven't seen much change.

At 9 months, you'll probably still see improvement and you'll still have some ups and downs and possibly some flare-ups. Don't despair, dear. You still have some healing to do. No one can promise you pain-free, but you can still get better than you are now.

It's okay to have a bit of a pity party every now and then. This is HARD! It hurts, not just physically, but emotionally, when we have to accept that we can't do all the things we'd like to be doing. Don't be too hard on yourself and expect to always be strong. Let yourself cry sometimes. We all need to sometimes. ((((((((HUGS)))))))) I do know how you feel! Been there, done that, and still doing that!

Do what you can for exercise and don't compare to others. Everyone's different. You can only do what YOU can do. Do the best you can, and then commend yourself for that!

Hang in there!
Let us know how you're doing.
~Emily
 
Thanks Emily, its just you have days and you feel so useless and to be honest I really did feel i would be further down the line. As you said you didnt see much of an improvement after the year and that is what my neuro said to me aswell, it will be the 12 months you will see the improvement and then maybe more flexability............... and I am here saying I have only 3 months left !!!

Thank you for your kind reply at least my day is done nearly here 10.15 pm so hopefully I will mark it down as being a bad bad day, dust myself down and start tomorrow on a positive note. Thanks Pet.

Round 1
 
Hi there. Not to despair. It's okay to feel that.. but know this is a really hard hard surgery on some of us, (me included) and it takes forever to bounce back from this. But you will. You will see more improvement but dont put a timeline on it with expectation. We are all wired differently and it takes some of us alot longer than others to get to a certain point.

Dont give up on yourself or the process of healing. You are only 9 months and I can say that cuz Im almost 22 months myself.

I am having a bad flareup myself right now, and it has me a little concerned but I am also more thinking this is just a flare up that I was told to expect and it will pass and I get on with things to my new norm.

Tomorrow always offers a promise of a new day. Keep your expectations low and when you least expect it.. something wonderful happens.

Keep hangin in there. :)
 
Round1, my advice is to let go of the guilty feelings. You say, I am not there for my family to do the normal simple things. I have been feeling these things alot lately too and you know what this is hard on you too. You have lost so much and dang it you have a right to be mad. Just make sure you take the time to do the things you can do. We just recently purchased one of those new fangled electronic games and as a family we are playing bowling, tennis, etc. It is so much fun and live like and you don't have to pick up a bowling ball. Hope this helps and I pray that things do improve for you.
 
Round 1,
I know exactly how you feel. As you know I had my first fusion on 3/06 and was waiting to get better, had so much hope for better future.
I had my second fusion 7 weeks ago and I am still in so much pain. The worse is nerve pain in a legs and feet, bottocks and hips.
I still have time to recover and I also get days when i feel emotionally hopeful and good, but I get blue days as well.
I think this is totally normal. I read a lot of books about leaving with back pain, about leaving with CP and learn how to deal with it. They say that this is normal to get feelings you get (and many of us too) - our lives changed, our body has a lot of limitations and it's not a secret: our lives not as they used to be.
But i try in my good days to think positive, enjoy little things, call my good frienRAB, go and see my granddaughter - believe or not, this helps a lot, gives you that positive energy.
Round, honey, I hope you have more and more better days...
Best of luck to you!:angel:
 
Thanks Diet, Moldova, justen, emily, thank you all for your replies, its just the pure frustration and having your hopes shattered and the lack of frienRAB not able to understand your limits.

Moldova, I know you are in so much pain and to think that you force yourself to go and see people is wonderful even to be out. What I cant understand is I dont have nerve pain, or leg pain, odd day sciatica but normally thank God none. But its like my back is going to crack and I cant take another step and I cant stand for long at all. The only place i get relief is in the bed with a hot water bottle. But thankfully I get sore from the bed after about 90 min so have to get out.. Before the op. I had to spend most of my time on the floor or in the bed. Grandchild No.2 for you is due soon, so please God you will be in better shape.

Thank you for your kind worRAB and thoughts

Round 1
 
Round one I just want you to know that you are in my prayers and I understand what you are going through although you have had more done and I still have more to go through. I find myself crying at times when I get the shooting pains and I know everyone understanRAB your feelings.

Linda
 
Back
Top