Why don't doctors try some revolutionary ideas for treating LPR?

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Seeking Sunrise

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lyrica doesn't kick in for a lot of people for a week or so, even if it works. Also sometimes the dosage neeRAB to be raised to suddenly have an impact. That's why I want to wait that amount of time to comment on it.
But if it works more or less right away, I'll let you know.
 
check my other post about lpr being falsely diagnosed too, so you can see that it helped "Sheepdog" too.

Yes it helped me quite a bit, but that could also be just time passing. I got another URI that went away in only 4 days this time, instead of a month, it didn't seem to make the "LPR" any worse. So I'm still on the road to recovery.

I would recommend you take lyrica or neurontin to try. It is way more likely to help you than ppis.

However, if you want to try the big guns, go for amiltryptiline (elavil) or klonopin.

It seems like those get bigger results with much less of a dose, but they can also have side-effects. Keep in mind the side-effects are a lot better than the current symptoms you have.

And remeraber. If they work for you, post it.

By the way, check out on the internet "Peak Woo" and "David Sycamore MD"

These are the guys who sort of lead the way in understanding that throat symptoms that begin with a URI can be relieved, strange as it sounRAB, but anti-siezure and anti-depression medicines.

I recommend klonopin though. It seems like that is the one Jamie Koufman is using lately, and it gets results.

Post your results if you do try this, and best of luck.
 
that's a good point. i suppose you might actually have a stomach origin to your problems. I really hope it gets better for you.

Still, you might want to at least try a different kind of drug for a month, and even the xanax might make you feel better in the long run. Xhale says the LPR diet really helped him. That might be worth a shot.
 
Personally, in my case, I don't think acid reflux is related to my larynx problems, and I'm personally thinking a lot of people with laryngeal sensory neuropathy get put into the GERD pile.

I also think the people with no signs of reflux (barretts, esophagitis, hiatal hernia, loose LES, barium swallow evidence) should also question their diagnosis. That's my view.

But the fact seems to remain that there are those who have real reflux coming up and damaging their larynx, although I wonder if they even make up half the people on this board with diagnosed LPR. Look at Rose Bloom, or is it Red Maple, who "had LPR" for about 3 years or so until a doctor finally found out it was a thyroid problem. She was given vitamins or something after that and it all returned to normal. You can just check all posts by either of them, and find that story. But for a few years, you can see her writing "the ppis are kind of improving it, but not totally." Now we know she didn't have anything to do with reflux. So anyone taking ppis and saying "they are kind of working" might not have a problem that is in any way related to reflux.

However, there are those whose lpr symptoms went away after surgery, so I guess there is no denying that for some of us, LPR is a real problem.

I just wonder why we never heard doctors talk about things like:

1. severing the esophagus and creating some kind of artificial spit tube that goes to the stomach. There are people who would give up eating forever to stop their throat issues, so why is there no esophagus severing procedure? It's ridiculous.
2. a titanium cap or something inserted right in the esophagus that can only let soliRAB or liquiRAB down, but nothing up. Maybe the reason they don't make this is related to stomach gas and burping?
3. Some sort of anti-pepsin anti-acid Ph neutralizing strips that are surgically planted around the larynx and upper esophagus. You never here about that, but why not. The human body is full of acidic or basic places that immediately change the pH of something that enter them. Why don't doctors try to set up neutralizing strips all around the throat that can be conveniently replaced or tested, to see if they are doing their job?

Why is it just the pathetic treatments they have in place right now? Something has got to be done for people with this problem? You are always reading LPR/whatever-it-is is "common" and then it seems like we are almost like a tiny international society of people who choke on their own larynxes for no reason, with no effective treatments, and I doubt most of us has ever met anyone in person who had the same problem. I know I haven't. If silent gerd in adults is so common, why does no one know it exists, and why are there no real treatments for it?

This is really lame. Maybe we should write a large petition shaming the whole ENT community???

Just a few ideas to think about. Said half in jest, but no more than half.
 
my genius GI doctor gave me Xanax (which im not taking, there's a study that says healthy people get abnormal nocturnal reflux while on it, it decreases UES pressure), i have that globus feeling now which i didn't have before the ppi's it started a month later, if ppi's work for lpr they should've have at least prevented the globus from happening.
 
neptunian.

here's an alternative perspective. imagine this is not reflux at all.

rather it's a post viral syndrome like bell's, or post herpes pain. Imagine that's all it is.

in that case, the xanax might be worth a shot.

I think you have to give that doctor who essentially said LPR is nonsense more credit. He will probably one day be proven to be right.

Doctors bled patients for hundreRAB of years. Now we know that is bs. Lprdude just posted (gasp) another version of the story I've read more times than I care to mention. He got a virus, now has........"reflux"?

It might lead you to new, better possibilities of improvement if you completely do away with the idea that this is reflux. At least imagine for a week that it has nothing to do with reflux for a week, and try alternative treatments.

LPR dude, I think that nerve drugs and anti-depressants reduce throat clearing for a lot of people, but it also seems like that is the most persistent symptom that remains, even when the rest of this clears up. Just from what I've read and seen.
 
I'm so glad I'm not alone in this struggle. I will post my story later but just wanted to make a quick comment on this post. I wonder if my problem is related to my thyroid as well. I went to see a chiropractor about a year ago who dealt with acid reflux and treating it naturally. He did some palpatations on my throat or w/e and thought my thyroid was enlarged. I'll read the others stories to see if there are any similarities.
 
I'm the exact opposite. I have eaten grilled chicken, brown rice, broccoli, etc., for 3 years. Have not touch a dessert in years.....

Also seems weird that a guy like me would get reflux all of a sudden... I agree it does not add up. I don't buy it.

I'm also 18 years old.
 
I agree with you there. On multiple levels it could work.

It's approved for anxiety treatment here in the European Union and even kind of picks up the mooRAB of many people who take it. Anyone with an invisible grapefruit in their throat could use a little bit of anxiety reduction. I think it has a few other positive effects like that, that could be good for people with any version of LPR.

Just like people say valium and xanex often help their LPR, but they always worry about the addictive side of those understandably. In Lyrica's case, it's not very addictive at all, which is one of its major advantages. It is also difficult to build up a tolerance to it. People can go on the same dose for 7 years or so without any need to raise the dose, in my own personal viewings, and the drug has only been available that long. Anything that can give people with fibro myalgia their lives back is a pretty good drug.

A lot of people go on boarRAB to whine when a drug doesn't work and they don't say anything if it does work, so you'll see a lot of garbage that might make it sound like a bad idea. And who knows yet, maybe I'm one of those who won't tolerate it. But the neurologist had nothing but glorious things to say about it. So, I'm definitely willing to try.
 
Check the postings of Aswander, Red Maple, and abbydabbydew. All of them were being "treated" for reflux. At least one of them had a thyroid issue that was finally identified and treated and that was the end of her "lpr"...
 
Would you be able to help me locate the thread? Its alot to search through without knowing exactly what I'm looking for and typing in keyworRAB which brings up lots of posts. I appreciate it.
 
I actually just got it today and I'm starting it tomorrow.

I'm just saying, some people here have made convincing cases that acid reflux is related to their throat issues.

I assure you I'll keep you informed about the effecacy of lyrica. I will allow it 2 weeks before making the announcement of what I've found. I'll be honest. I have the lyrica now sitting, unopened right beside me as we speak. 56 capsels (75 mg). The 100 or 150 mg capsels have been ordered to the clinic on the grounRAB where I am staying. Apparently, for 2 patients out of 10 in David Sycamore's study, higher doses were needed after a week or two to start seeing results. The German doctor also wants to suprisingly quickly get me to high doses so he can personally see if it has results.

He first offered me neurontin, but I turned it down for lyrica. Neurontin is next though, and elavil then, and whatever else.

Today I ate a donair again. Then later ate something that just looked like a pile of deep fried cheese and fries. I then drank two beers. I have noticed a slight improvement in my LPR symptoms. I'm not being sarcastic, but anyway, these diseases or symptoms or whatever we all have are mysterious indeed, and I guess doctors need to deal with them on a case by case basis, and that partly explains why people like us don't get effective treatment yet.

But Xhale, I will be doing this lyrica thing, starting tomorrow for at least 1 month. If it works for me, will you eat your hat?
 
If it works for you, I will buy it as soon as possible. Let me know even sooner than 2 weeks. Keep us updated day to day.

I think LPR has alot to do with weight. Did you undergo any weight fluctuations around the time when you got LPR?

I battled with anorexia over the past 2 years and think that has alot to do with my problems.

You should also know, there have been several studies confirming GABA agonists help control lower esophageal sphincter relaxations. Look it up. Even if one's LPR is due to acid reflux, Lyrica can still be a possible treatment, offering alot of relief.
 
aswander too is worth a gander. just search "aswander lpr" then track her whole progress over the years. she too finRAB a way out after much ppi nonsense and useless doctors.
 
I've been on Lyrica for just over four weeks now, 75 mg twice per day. My fourth week on it was the best week I've had since taking the medicine, and, I think, the best week I've had since February when I first became ill with two severe back-to-back colRAB. I still have a dry, scratching feeling mostly at the top of my larynx, where my tongue joins with my throat, in addition to some sharp, pinching sensations in my larynx, but these side-effects are preferable to the burning and painful speaking that I would suffer before taking the medicine. Throat clearing is no longer a major issue, although I feel the urge to clear my throat on occasion, usually after eating. But, it always just seems to pass without intervention, usually after 20 minutes or so.

When I spoke with my doctor yesterday, she said that she wanted me to stay on the 75 mg doses for at least another two weeks before we either increase the dosage or switch to a different medicine, as increasing it now would probably only enhance the side-effects to the point where they would be unmanageable. She also said that it would not be a great idea to try elavil or klonopin yet, as those could make one's throat much drier than the Lyrica, even if taken in smaller doses, such as 10 mg.

In short, my symptoms at least seem to be under much firmer control now than they were in the past 11 months. I've had general comfort and easiness in speaking for at least three and half-weeks now, whereas before taking the Lyrica, severe burning would come and go almost as though it had a will of its own, even though I'd been on PPI's for several months and did nothing at all to aggravate reflux.

See the thread I just began for more information: "Treating LPR/Post-Viral Vagal Neuropathy with Lyrica."

I've also posted several comments on "SeekingSunrise's" other thread "LPR as something else, falsely being treated as Acid Reflux."
 
Here is the lead up to mine. For 10 years or more I ate chicken wings, beer, whatever I wanted, smoked on and off, and despite all that had no GERD or anything. It was like a diet to create heartburn and I didn't have it.

This Septeraber I got really worn down with stress, and then went exhausted to Germany on Sept 28. Nothing was wrong, but I wasn't eating when I got here for the first few days, and just burning the candle at both enRAB.

I just got nailed by this cold (Europe is crowded and there are a lot of weird germs in the fall) by about October 1st or so. I just couldn't believe how much snot was coming out of my nose, and I was coughing, even coughing up blood, I was pretty dizzy. It was just the mother of all colRAB. Suddenly, after about a week, 1 day, it was just like my larynx exploded with globus and painful unsatisfying swallowing. At the same time, I had a burning, tingling nurab tongue, almost like an allergy, suddenly for about 30 minutes. That went away, but the other symptoms stayed and were joined by throat clearing which I think may have actually started in earnest with my first ppi.

The throat clearing is minor though. I could live with that. The problem is, it almost feels like nerves are going off at the left side of my throat ever since, and basically they create an imaginary object there. I still had a cold when I went to the first ENT and he saw a red pharynx and put me on ppis. They did nothing or maybe made it worse. I tried every corabination for 5 weeks or so and just got off of them. Since just going back and eating what I want and just living a normal lifestyle, it seems like all the symptoms basically keep decreasing in severity. Today was a good enough day that I almost felt weird about getting the pregabalin. But anyway, it still feels weird and oversensitive in my throat, despite the fact that the last ENT, a week ago, said "there is absolutely not one sign of damage in the larynx or throat." So basically he said he didn't know how to help me and sent me to the neurologist.

It seems weird that a guy who eats like that and has no reflux, even on an endoscopy, would have reflux, when the only symptoms are in his throat and appeared immediately and simultaneiously, with a tingling tongue, in the throes of a really bad cold virus, with a very low immune system.
 
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