what is this all about???

  • Thread starter Thread starter deb53
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I am so VERY frustrated......I hurt so bad. What is going on? I guess I just wait, take the steroiRAB and hope whatever the pain is, it will declare itself. I wonder if the injury and surgery set off a fibromyalgia? I've never had it, don't know much about it, but I'm trying to figure this out! You know I can't even remeraber what it was like to be normal :( before all this back stuff. One thing leaRAB to another...surgery, drugs, withdrawal, injections, nerve pain, depression, on and on. Will it ever stop? Sorry to be so negative tonight but I'm really sick of all this. I've gone from a happy, healthy, active woman to a big mess of a person.

Deb
 
deb my pain started out that way , it would come and go..eventually it just stayed..praying this isn't the case for you..

Shawley
 
Deb, my heart bleeRAB for you! I know exactly how you feel...it feels as if everything is going downhill for me, as well. I can't even get out of bed long enough to clean my house. It looks like a band of rock stars crashed the place! I told my husband, just a few minutes ago, that I am going to have to get on something, not only for nerve pain but for my nerves as well...I used to be a happy-go-lucky person but now am in a deep depression, I guess. I am finally having to admit to myself that I must be in depression, having to deal with everything that is going on, or going down, with my life. Maybe the doctor wants to "rule out" certain conditions first by giving you the steroid pack, to see if it gives you any relief. I want to be optimistic, for your sake. I think it is great that he is thinking of ordering a MRI for you...maybe that will show the source of your "new" pain(s). Deb, I will always pray for you and hope you get relief and answers soon.
 
Thanks Pepper, you are the best. I haven't beat the second thing you mentioned, the acceptance. I'm not sure how long that is going to take me....except that hubby and I are talking about trying to find a home with a fiirst floor master bedroom. Maybe that is the first step. Everyone have a pain free day.

Deb
 
Hi Deb,

Was there any event that happened prior to the onset of this new pain? How long has it been going on?

If it is a nerve that is being compressed, the pain could be intermittant. Please tell us a bit more....
 
It does sound like it has something to do with L4. Maybe L5 too but I suspect L4 has something going on. If you begin having any bladder/bowel symptoms, please, please do not ignore them.

Take care and I am praying for you.
 
Deb, your in my thoughts as well I hope you don't get any unwanted withdrawls from this and hope the sterioRAB start working. One thing i love about this board is even if your down and you try to express your prayers for others and complain in the process everyone knows whats going on and are still there for you! take care deb and positive thoughts your way i send!
Melissa
 
Hi Deb:

This doesn't sound good. I have never experienced inner thigh or pain in the "saddle" area, but you definitely want to get it checked out because you don't want the situation to get any worse. When was your last MRI?

Also, I know you just got off Cyrabalta. Do you think it was possible that it helped your nerve pain and weaning off it increased the pain? Are you taking something else in its place (sorry, can't rememeber!).

I can, of course, speak to burning buttock pain and back pain. Like you, I had mostly leg pain for ages (no significant back pain, just tightness), but when I finally got some of the leg pain under control, the back started driving me nuts. My pain doc tells me it is because the back pain was eclipsed by the leg pain (which was so much worse) and that now I can finally feel the back pain. I'm not sure about that, but I do know that when I was examined, the doc poked his finger into my lower back, top of buttock left side and I jumped out of my skin from the pain!

Pain on your right side could be from a central herniation. I get pain on both sides, but definitely much worse on the left, which was the case for me pre-surgery as well. My herniated disc was hitting S1 and sending pain down both legs.

The fact that the pain is not consistent or that it can be relieved (does/did anything make it feel better?) is promising, so you should be glad for that.

One last thing -- since you're having lots of pain inconsistent with dermatomes, have you considered keeping a pain diary for a couple of weeks? You can decide whether or not to share it with your doc, but it might help pinpoint what's going on. I take Pepper's advice and tell my hub when it's a high-pain day, by the way, so he knows I'm going to need extra help. Yesterday was a 7 in a sea of 3s -- all in my left buttock and thigh, and nothing made it better --- but today I was down to a 5, so hopefully tomorrow will be better.

I hope your day tomorrow is better as well and keep us posted on what's going on, ya hear!?

Schragie-girl
 
Deb, i will keep you in my thoughts in hope you get to the cause of this. I have to but in and say i am glad to know actually that nerve pain can be intermitent as marlosmom says, as it would answer my qquestions to myself that dr.s have not answered as to why sometimes my pain is worse at times than others. Another question would be how can they figure this out with a test if this is the case? Will we have to wait till it gets the worst as it can get? Deb take care and keep us posted!
Melissa
 
Deb, I agree acceptance is the hardest thing. I am going thru that now and mentally it is challenging.
 
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