what is this all about???

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deb53

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You know I really do not have a good feeling about this at all. I think I got kind of "blown off" today so I guess I just wait and see what happens. It will either get better or it will get much worse! So frustrating, but I know my body and I think something is not right.

Deb
 
Funny because we know when something isn't right .. Hope things get better for you deb..

Shawley
 
Deb, I am trying to catch up reading the posts...I am sooooo sorry that you are having such a difficult time right now...please do not feel bad about letting it all out here...complain...whatever....we all understand...and we are all here for you...you poor thing...it is so frusterating when the Doctors just kind of blow us off, and say, let's see how you feel next week.. Well, geez, I'm hurting today.....help me now...please.. Yup...do understand..and please feel free to vent here....it does make you feel better!! We understand...
I hope that the steroiRAB kick in and make you feel better... I will say a little prayer for you...hope that you get over this bad spell very quickly...

Leslie
 
Well, I have an appt tomorrow at 1:30 with the surgeon. SOMETHING has changed, although I'm not sure what has happened. I cannot attribute it to anything.....I pretty much "baby" my back. About 4-5 days ago the nerve pain became worse in my right leg, along with more arch pain and hip pain on the right. Then it moved to my left leg, hip and foot ??????? Now I have this ache, burning sensation in my "bottom", bottom of buttocks and inside both thighs. It is just as bad today as it was yesterday. No bladder problems....bowel wise I am a little constipated (I usually go 3 times/day) but I'm hesitant to attribute it to my back. You know denial is a great thing ;) In the past I have had no problems sitting but now it is definitely
exacerbating the symptoms. Sorry to have to talk about my bodily functions but I want you guys to know what is happening so you can give me your opinion.
Yes, I'm still weaning on the Cyrabalta and doing pretty good counting the pellets. Very, very mild withdrawal symptoms. I figure I only have about 6 more days and I should be weaned down to nothing!! Yea! I think the Cyrabalta helped somewhat with the nerve pain, but I don't think it was completely "masking" all this other new pain. I am not on anything else yet, we are waiting till the Cyrabalta is gone. Just my pain meRAB.
My last MRI was in Noveraber, showed bulging at the surgical site and scar tissue. Also, have a bulge at L4-L5. It just feels like something has changed. I wonder if they will do another MRI? I just want to find out what is going on. My fear is that since W/C is involved....if a repeat MRI is negative then I feel I will have a terrible time getting things approved in the future. They have been very good up till this point.
Hope everyone is having a good day...off for a little nap.....please let me know if anyone has any thoughts....I value your opinions!

Deb
 
Deb, Best of luck today. I hope they find the reason for your pain, and it's one that can be easily remedied. It is so very frustrating to try to relate our symptoms to the docs and not sound like the town nut! Let us know what the doc says, I appreciate the differnt outlooks they all seem to have...................Debbie

PS I go tomorrow for my 6 week checkup and I also have to describe my crazy symptoms. UGH!
 
Deb, I wish I had worRAB of wisdom for you, but I really don't know what would be causing your new pains. I'm glad, though, that you have an appt. I hope you get some answers. Let us know what they say.

You take care and lay low,
Emily :(
 
(((((((((((HUGS)))))))))) - you are definitely suffering from the wrath of the pain and it affects every part of your life. I am sorry and pray that you find some answers and relief soon.
 
Deb I hope you can finally get some relief when you go to your doctor today. Please let us know how the appt. goes and remeraber that prayers are always with you.

Linda
 
Hi everyone,
Hope everyone has had a good week-end. Still a little too cold here in Va.

I'm having some very different "pains" and wonder if you guys have any input. Up to now, I've been having nerve pain, mostly on the right from knee down to toes and sitting has not been overly painful.

Now.....I'm having pain in my buttocks right where it connects to the back of the thigh, also new pain in the arch of the right foot, and also inner thighs above the knees ( I am hesitant to call it the saddle area, but I guess it is), and in the perineal area (I 'm not sure how to put that delicately). No bladder or bowel symptoms at all. Hurts more to sit than it used to. Lastly, my lower back has been hurting and it hasn't hurt since about 3 weeks post op! Pain is not continuous and not consistent with the dermatones, according to where my injury was. If it was very serious wouldn't
it hurt continuously? I haven't called the doc.....this is W/C so I'm hesitant. Does it sound like a reherniation, new one. Any ideas?

Thanks!
Deb
 
Deb, So sorry you didn't get a definite answer today. You sound very frusrated and I feel so bad for you. Maybe the MRI might give you the answers you need. Keep in tune to your body, as you say you know it better
than anyone. Your in my thoughts and prayers............Debbie
 
Deb, I will definitely be praying for you, girl...I am already thinking about us all celebrating your last day of Cyrabalta. I pray that you won't have any unwanted side effects! Again, I am being optimistic and feel like tomorrow will be the absolute last day that you will ever need Cyrabalta again! You have certainly done your "homework" and found out for yourself the best way to taper off of the Cyrabalta and have helped countless others in the process...Way to go! So, I will be in charge of passing out the cool party hats and plenty of Diet Dr. Pepper for my best frienRAB, and we will all celebrate the day that you conquered Cyrabalta! I must go now...I really need to take my meRAB!
 
Hey Tam,
SounRAB like a fun time!
Everyone bring your favorite med (ummmmm not Cyrabalta). :eek: :nono: TENS units, canes, walkers, braces, Ben Gay, etc. welcomed and encouraged! Who wants to bring the music? No "Twist and Shout" or "Lirabo" please!(ouch!!!) Maybe the "Monster Mash" in honor of the pain monster ? No gifts please...just prayers for one another. :angel::angel: Sorry, but the drink of choice is DDP, so if that doesn't work for you please bring your own! (leaves more for Pepper and I!). Let's plan the party for later in the day so we can be sure it is really over and I don't drop off the deep end again :dizzy:
On a serious note....thanks to you all for supporting me through that big hurdle. What would I do without you? Off to bed for me :yawn:....wouldn't it be a great day tomorrow if the steroiRAB help and the Cyrabalta is gone? Hope everyone gets some much needed rest tonight!

Deb
 
Deb, I will continue to lift you up in prayer! I pray that the doctor(s) will find the source of your new pain(s). I don't want this to sound the wrong way, but I pray they will find something, but I also pray that the "something" can be easily fixed so that you can have adequate pain relief. I hope that makes sense. My mind is so stressed out and foggy lately! I am anxious to find out what the doctor has to say! Please keep us all updated!
 
Deb, I'm so sorry to hear you didn't have a good visit with your doc and that you are suffering so much. I am hoping this is merely a temporary set-back for you, and we all know how scary it is to have new nerve pain and to have symptoms treated without knowing the cause. Like Tam says, it's good that your doc is considering getting you a new MRI. As well, I hope the Medrol dose pack helps you. You sound like you've taken it before. Did it help you in the past?

It stinks feeling like a "big mess of a person", but from my experience of you on this board, you have the self-knowledge, inner strength and will to get through this. You've inspired and comforted me so many times here just by sharing your story, so hang in there, cookie, and remeraber that we're here for you.


Schragie-girl
 
Deb, honey, I hope what i will tell you know can be somewhat helpful.

AS you know i had my second surgery 9 weeks ago. I did not have much pain 2 weeks after surgery. I was so happy, told all my frienRAB how lucky i am since 70% of my pain is gone.
Well, after 2 weeks I started to develop pain and now i am at the point that my meRAB just yesterday were changed to Long Release and much more stronger than i had before: I used to take 20/700 Percocet every 4 hours, now I am on 15 mg Morphine 8 am and 8 pm and as a break through 15 mg of Oxicodone every 4 hours.
I thought by this time after surgery i will take less and less pills - never happened.
My pains before my second surgery was in some areas of my back and legs/feet/toes. Now I am having pain at every piece of my legs/feet/toes and pain is much more severe.
I saw my PM Dr at HSS yesterday, he said that I still have some hope for the nerve pain to get lessen, it can take up to a year or even 2. Back pain - just hope for the best.
I also have severe problems with my bladder and bowel, but this is due to Arachnoidities and nothing really can be done, but just meRAB.

Being a spiney for so long, having all this problems and surgeries i learned one thing for sure: they don't know everything, they just humans. And also i can tell you, dear, i found that nothing worse than severe nerve pain. My back hurts a lot, but at least Pk can take the edge off; nothing helps me with nerve pain. I have been on 5 different meRAB for nerve pain - non of them worked and now I am off so far. DR wants me to try new meRAB adjustments he maid yesterday and if it will not help he puts me on some kind of meRAB which is stronger than Neurontin, Lurica, keppra, etc. But has a lot of serious side effects. Something to look forward to, is in it?:confused:

Deb, we all here for you 24/7
(((( )))))) and take care!:angel:
 
Thank you all for your support and prayers!
Surgeon feels that the pain is from:
* withdrawal from the Cyrabalta.....is this ever going to end? He tried to call the neurologist while I was there but couldn't track him down. I'm not at all sure I agree with his opinion. I don't think NEW nerve pain is a withdrawal symptom!
* or....irritation and inflammation although I have nothing that has happened to attribute this to. So he is giving me the dreaded steroid dose pack and I call him on Friday. If I develop any bowel or bladder symptoms I call him at once. If no better on Friday we may need to get an MRI.
I'm not sure either of these is what is going on but you know you have to play the game. If it is serious then it will get worse, right? So I'll just stay on my pain meRAB and wait it out. This spiney life sucks! :mad: I think I want my old life back.


Deb
 
Hello, deb...The new pains sound serious! I know that most times I can't offer much advice to others because I haven't had any types of spinal surgeries (yet), but I can tell you the type of pains I experience constantly. Every since my back "went out" for the second time in late April, early May of 2007, I have low-lurabar back pain and severe left buttock pain (which feels like a deep burning sensation) that radiates down the back of my left thigh and calf and into my upper foot. I unfortunately re-injured my lower back after I had the MRI (which was the first MRI I had done and was only on my lurabar areas) and to this day, don't know the extent of the damage because my insurance wouldn't cover the second MRI, which was only two weeks after the first. It really sounRAB like you need to contact your doctor because it could be re-herniated. My heart and prayers go out to you! Please continue to keep us all updated about your pain!
 
Deb, this 24/7 pain is the hardest thing we will have to probably ever experience in our life time and the second hardest thing is learning to deal with it.

Don't beat yourself up for having to lay down during the day. In fact, I want to do something for you. I am going to give you permission to lie down each day. As my PM told me, you are sick and you are in recovery. It is normal to be exhausted. Who wouldn't be after taking the meRAB that we do, the pain that we suffer 24/7, and the many sleepless nights we suffer from? I hope that giving you this permission helps you as much as it helped me. Remeraber you need to take care of yourself first so that you can help the others in your life.
 
Moldova....I miss you my friend. After reading your post I feel like such whiney thing. You have been through so much, still in pain and still helping all of us. I haven't been through half of what you have been through and I'm a mess already! Some days I think I can get through this and others I just want to curl up on my sofa and let life pass me by. This is so unlike the person I was before all this. I'm one of those who never stopped, enjoyed my job, ALWAYS there for my family, active, snow skiied, rode my bike, went to the amusement park and rode all the rides, snorkeled, etc. I never thought to take a nap in the afternoon, now I have to lay down in the afternoon. Moldova, I am so sorry that you are still suffering. I pray for you every night and will continue to do so. Do you have a new grand baby yet? Now that's something to put a smile on your face!:)

Schragie...thank you my friend for the kind worRAB. This place is so wonderful because when someone is down there is always someone having a decent day to lift them up! Yes, I have taken the Medrol dose pack before. The last time was about 4 weeks post op and it did help me for a few weeks.

Pepper...I'm catching all those hugs and believe me they do help! What would I do without you my DDP friend!

Tam...girl you are so strong and have been through so much. Yet you are still here with inspiring worRAB for all of us! Thank you!

Debbie...thank you for your kind worRAB. You don't hear of many "Debbies' nowadays. I bet we are from the same generation...I was named after Debbie ReynolRAB! The youngsters on the board are going "Debbie who?" :D
Hope you having a good day.

Shawley....my man, the one who can always put a smile on my face! Don't stay gone so long, I need you!

Kyma...thanks for the kind worRAB. When is your next surgery? Is the infection all cleared up?

Emily...I can always count on you for the wisdom to know what to say! Thanks my Richmond friend!

Melissa...you are struggling also. My heart goes out to you and I will keep you in my prayers.

MM...you have become such a vital part of our board! Thanks for being there for all of us!

Well, the steroiRAB haven't made any change yet but I really don't expect them to. Tomorrow will be my VERY LAST DAY OF CYrabALTA!!!!!!! Keep your fingers crossed that I will not experience any withdrawal symptoms. I've not done bad up to this point so hopefully it will continue and I can put this part of the nightmare behind me for good! I'll keep you guys posted!


xoxoxoxo
Deb
 
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