Weird issues regarding twitches/headaches and cognitive function for 6 months

L

lexiedarnell

New member
Hello, I have had 2 seizures and am on a medication that has my seizures controlled. In July of 09 I have had a problem that has still gone un-diagnosed. A lot of my doctors believe it is medication related but before July 09 I was completely fine and had no problems

My symptoms are twitching, feeling disconnected at times, stiff jaw and a loss for words, hard time spelling simple words and typing correctly.

In July I was up for a very long time on the computer and the day after I felt very very weird I was getting spells/auras I have never felt before in my life. Getting hot flashes in my face and I thought I was going to get a seizure. I never did get one.

For weeks I felt like I had a hangover. That feeling went away however, I felt like I got dumb and spelling and typing issues have stayed with me.

I have had 4 EEG's all of which came back normal, I got an MRI normal, EMG Normal.... I went to see an opthamologist all normal.

Finally this month I am going for another 2 more EEG's, MRI W/ Contrast, Bloodtest,MRA and a VEP to see whats going on.

Anyone with these similar symptoms have any idea? I feel so lost :(

I am a 21 year old male just want to feel normal again.
 
My suggestions for you are to get your neurotransmitters tested. It's a urine test that can tell what's going on in your body/head. You can also have a hair analysis done for toxic and non-toxic elements. You might have to see a doctor that "thinks outside of the box" to have these done. Most doctors just want to give you a pill these days.

The twitching could be caused from a magnesium deficiency. Are you a coffee drinker? Coffee depletes the mag. out of your body. I used to have twitching under my eye and when I had the toxic element test done it said I was low in mag. and Selenium. The neurotransmitter test said I was low in Taurine. I also found a site somewhere where a guy listed his therapy for controlling seizures in more nutritioinal way.

He recommended:
Magnesium 500-1000 mg/day
Selenium 100-200 mcg/day
Taurine 1-3 gm/day
L-Carnitine 1-3 gm/day
GABA (gama-amino-butyric acid) 500-1000 mg/day
Vit B complex with special emphasis on
B1 50-100 mg/day
B6 200-500 mg/day
Folic Acid 400-1000 mcg/day
Vitamin E 400-800 IU/day
DMG (dimethylglycine) 50-200 mg/day
Pregnenolone 100-500 mg/day
Kava Kava 200-800 mg/day

There are also other triggers of seizures such as MSG, Aspartame, EMF's from cell phones, cordless phones, TV's, computers, electric blankets, Fluorescent lights, noises, smells, stress, lack of sleep, the FULL MOON and hormonal issues in women. That's my problem- the hormones!! It's menopause for me!!!

Be careful if you play video games, nintendo, etc. They all have warning signs on there about the games causing seizures.

I've been taking the Magnesium, Selenium and B vitamins and Taurine. I couldn't take the other things listed there because they conflicted with the AED's I'm on. I also couldn't take anything herbal. They all made me have more seizures. I used to having twitching under my left eye and haven't had it since taking the magnesium.

Every time you have a seizure you lose brain cells. The stiff jaw - could that be TMJ? I have that and I've also noticed that my ears are ringing more these days with tinnitus. From what I've read on some of the boards here they all go hand in hand. The TMJ is a neurological disorder as well. I hope it's not a sign that you're having mini strokes.

Be careful of the meds you're on. Alot of them I couldn't take because I had bad reactions on them. Right now I take Keppra and Phenobarbital. They don't control my seizures but I think they keep more from happening.

I lost my license because I crashed my car back in 2008. I can't get it back until I'm 6 mo. seizure free. Be careful if you're driving. I think I only lived because I was having a seizure and my body was in a relaxed state of mind and I didn't know what was going on. I was able to get approved for disability because these seizures aren't controlled.

It's a life altering experience for sure. It's humbling. I have to rely on people to take me where I need to go. I live in the boonies on top of it. There's no public transportation.

I can be having a seizure and no one knows it. I can be having a conversation with people and then I can't remember it. This is why people plead temporary insanity when they say something they shouldn't have. It's like I'm on autopilot!!! Like I'm sleep walking!!! It's very strange. I've bitten my lower lip and crushed water bottles and that tells me I've had a seizure. I wish I had an answer for your hot flashes in your face. That sounds like a woman's issue!!! LOL I'm the opposite. I'm cold as ice and sometimes if I get a chill over me I end up with a seizure.

So, put something up on the Epilepsy board and see what happens. Stay safe and take care.
 
Thanks for the reply, I have had a total of 6 eegs. They all came back normal. I even had one having a hot flash and it still came back normal.

Last night I had horrible eye pain and sinus pressure with all these symptoms that include brain fog and confusion. Once I took the advil I felt a little better and I went to sleep.

Today I feel better no pressure not much of anything so far.

One of my doctors want me to get tested for Lyme and Epstein Barr. He said he thinks he saw Nystagmus in my eyes.

I have had an EMG and MRI w/o contrast on brain which both came back normal.

This Friday I am going in for a VEP and MRI W/ Contrast to get some more detail.

I really hope I dont have MS.
 
It sounds simplistic, but I found I need to keep my blood sugar under close control or I get "grey out's"...fuzzy vision, loss of color, ans dizziness.
ez1head
 
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