To Scrappi

  • Thread starter Thread starter ladybug8372
  • Start date Start date
L

ladybug8372

Guest
Hey Scrappi,

I thought that I would start a new thread since ours is becoming so long..lol

Im soooo glad that your GP was compassionate and caring to take the time to listen to your entire ordeal and that she is willing to do whatever it takes to get the pain under control! That really is great news. Since I started a new thread, I cant remeraber all of your posting...but I do know that I was tickled pink to read all that you wrote! lol. Please keep me updated on how things go with you! And Im glad that you "fired" your PM dr....sounRAB like they werent any good anyway.

As far as me....I HOPE to have some news this week about a drs appt. I made a few phone calls yesterday...trying to get things on the ball myself....so for now, it seems hopeful that I will get an appt soon.

I hope surgery isnt my only option...but as you said....its sounding more and more like I may have no choice. With things continuously progressing....someone is going to have to do something to halt the progression....and it sounRAB like getting the disc off the nerve may definitely be needed. If things were at a stand still...getting no better or no worse...Id think that I would have options...but knowing that as each month passes....things continue happening....so Im scared that surgery is going to be my only option. Now the question is.....is it going to be worth the risk??? I can deal with the symptoms....I just dont want to end up with CES by not having the surgery....or more problems than I have now. Thats just so scary knowing that I could come out of surgery worse than what I am now......or to get worse by not having the surgery......how does one know what to do?? but I guess that I need to not worry about that until I see the dr, huh? lol

well keep me posted on how things are going with you. good luck...and hope that relief comes to you really soon!!!
 
Hey Ladybug,

I am very interested to see what your next MRI shows...I don't know why sometimes your feet and leg feel nurab-like and sometimes they don't...it puzzles me...I think there's a possibility that there's a treatment option other than surgery for you to try before resorting to surgery...I'm really hoping your neuro is a great dr and not just another typical surgeon who pushes surgery b/c he likes to cut.

WC should have originally been designed to function more like an insurance company...it would be so much easier for everyone involved...and cheaper...no wonder they're so backlogged...so the problem wasn't that your neuro was too busy to squeeze you in? It does sound like even though you need to cancel and reschedule, you'll be able to get in fairly quickly. If possible, try to get someone to go to the appt with you, I find that to be helpful, otherwise I forget half of what my doctor and I discussed...I also have a notebook that I write notes in after every doctors appt I have, regardless of the reason for the appt...I have found it to be extremely helpful, especially when I see a new dr...I can easily reference back to what my previous doctors said or did. When I have tests done I always make sure I am sent a copy of the results as well as my doctor...I have all of my MRI films, even though I can't make heaRAB or tails of them...lol...but they're mine, not my surgeon's and as you know, it's a good thing he doesn't have them b/c I would never see them again...I've learned the hard way that you have to be your own advocate b/c most doctors do not have your best interest in mind...I'll get off my soapbox now...lol...sorry, like I said I just had to learn the hard way and I don't want anyone else to have to go through that.

Let me know if you're able to reschedule your appt with your neuro.

Did I tell you that I think my son has epilepsy? I think he's having seizures but not the kind you think of when you hear the word seizure. I think he's having absence seizures. I think it's genetic, my dad had epilepsy when he was a kid. I take him to the pediatrician tomorrow. Today is his 2nd birthday :).

Keep me posted.

Take care,
Scrappin'
 
Hey Scrappi, (and Deb) lol....well i got the new appt....not as soon as the other one was...but hey....at least its down on the books!! Its

I, too, will be very interested in seeing what the MRI will show...but I dont expect that to take place for a week or so after that visit...so will still be awhile yet before I know anything. If I thought wc would approve it, Id call their office to see if they would order it now...so that much would be taken care of....but....I doubt the dr would agree without having seen me first, and I almost know wc would not approve it without me seeing him. So..more waiting...lol. I think that everything comes and goes because of my being pretty much inactive...when I get active...its stirs things up real good. I had a VERY busy day today...and my back/leg/butt has been aching like a toothache.....nurabness in my toe and calf.....rolling of the foot happening after I stand up from laying down....and burning in my lower calf and foot. So I really think that when I move around alot, that it causes the material, or disc, or whatever, to reposition itself onto the nerve...if that makes any sense??!! Mostly my day consisted of driving, in and out in and out of the vehicle...and walking in the stores....taking my sister to get groceries and getting her things tended to. (i didnt do anything more than drive and walk...no lifting!!..lol). thats why i like being inactive....even though i know thats a bad thing....but it keeps all the pain/symptoms at a minimum when i dont do much of anything. ive heard nothing but great things about this dr.....everyone goes crazy as soon as they hear his name and starts talking about how great he is....so guess we will see!! im gonna tell him right off that i am against surgery....so i do expect him to do all else possible before mentioning that word!!! As I told my hubby...first visit I think I can handle by myself...because I feel that its going to be more of a "get to know me and my symptoms" day.....then he will order the MRI...then the appt after that would be to discuss options. No, the neuro wasnt too busy to squeeze me in....and was nothing but wc holding things up waiting on the medical report from 2nd opinion dr....they were wanting to see it in writing, i guess, that there is a definite recommendation for surgery. And yeah...I have every copy of every drs visit, mri reports, that I have been to/had. I have found that they dont tell you everything.....so I like to get them myself so that I can ask questions....like for instance...the discs that no one has mentioned that is bulging...lol.


NO, you didnt tell me your son has epilepsy!!! My goodness!!! I pray that hes going to be ok!!! Please let me know what his pediatrician says....and I hope that he had a great 2nd birthday!! Treasure it while you can...they grow up wayyyy too quick!!!

Well, have a good night...and let me know what goes on with your appt on Monday...as well as your sons appt tomorrow!
 
Hey Scrappi!!

I got some good news too!!! haha. well....kinda...lol.
I do have an appt now!! im tickled pink..and yet ticked....lol. but whatever. maybe i will finally get some answers to MANY questions!
 
Hey Scrappi,

yeah it definitely is hard....and scary. if it werent for all of you..i dont think i could have kept my sanity all of these months. im just so blessed that i have you to talk to. the possibility of having nerve damage just terrifies me. i never wanted surgery, as you know....but as i told my husband, i may not have a choice in the matter now...or might get told that theres too much damage for it to work. i mean, i at least wanted it to be an option that i could choose later on...but im so afraid that it wont be an "option".

yeah..it makes me feel so good when my kiRAB frienRAB says that im "cool"..lol. my girls are definitely honest about where they go, and who they are with. they have freedom....but not too much. they arent allowed to get out there and just run wild. i know everything about who they are with and their plans. they understand and respect that. im more proud of my girls than i am of myself...lol...if that makes sense. i done the best i could to raise them right...it was their doings to stay on the path that i created for them.

im glad that i suggested that about getting your son an appt without a referral. luckily, with my insurance, i dont need referrals...i think its crazy anyway to have to be referred when you already know what kind of dr that you need to be seeing! good luck! and let me know how it goes.

im so sorry that your NS appt didnt go that well. i would have been upset too if my dr had made remarks concerning my kiRAB. i mean gee..not everyone has a babysitter they can turn to everytime they have an appt!! i dont know what to tell you. it sounRAB like you wont be happy with him...so why not keep trying?? i know that gets old after so many tries to find one...but you have to feel good about your dr...and feel that "connection".....otherwise, you are just going to doubt/question everything they say. i really dont know about what he was saying about pain control after surgery....i wouldnt know how to respond to that one....but i do feel that apparently he doesnt understand what it means to be in really bad pain, and not being able to handle it when it gets that bad. i just dont know about him. i know it makes you want to give up..but there is a dr out there that is willing to treat you with respect...you just have to keep trying. what does your hubby say about it??

we are working on getting me an earlier appt...but they said they gave me the earliest appt they had available...that if anyone cancels, they will let us know. i dont really care if i dont get an earlier appt..i just want the dr to understand that i want/need an up to date mri done so that its available for him to see when i do get to see him. but, without him ever seeing me before, i really dont know that he will agree to ordering one beforehand. so, hopefully, he will either agree...or they can get me in sooner.

well..have a good day..and keep me posted.
 
Hey Scrappi!!


I certainly hope you get to feeling better!! We havent had the flu in over 5 years...knock on wood!!! and I hope it stays away!!!! I hate that it knocked you out of celebrating little e's birthday....thats just gotta suck along with everything else you are dealing with! I dont think its common for kiRAB to have rapid blinks,etc?????? hmmm...maybe you should get a 2nd opinion on that?? gosh...what is it with drs these days???? id rather them refer the child to the appropriate dr...have them run tests....then tell me everything checks out fine!! geeeee!


yeah..i kinda hate that the new appt is on the anniversary of my daRAB passing. thats a sad day in itself....but my girls told me that my dad has to be looking out for me since my appt is on that date. i guess maybe i shouldnt look at that date negatively considering its something ive been wanting to happen for soooo long now. the last MRI done was last year...so yeah..it will definitely be time for a new one to be done....otherwise...they aint nobody touching my back!!! hahaha.
as far as the driving, etc without pain meRAB..i do what i have to do.. and just deal with it the best i can. just like tonight...i took my daughter to the movies...actually stayed there myself.....first time ive done that in over a year....and i guarantee that it will be another year before i do that again!!!! it was painful sitting in those chairs...and extremely painful to get up to leave. im hurting quite a bit now....but....by the grace of God, im handling it the best i can. well take care and let me know how things go for you on monday.
 
Hey Scrappi and Deb,

im really sad right now....due to the "activity" that ive done this week taking my sister to the store...and going to the movies with my daughter last night...which as i said, was the first time in a year....because it hurt so bad the last time, that i said i wouldnt do it again..but....she wanted me to go...and i dont get to do much with my girls in that manner anymore..so i decided i was gonna go. (gee...how many teenagers wants to hang with their parents?? LOL...so i feel blessed that she still does)......i have been in pain about all day....a 7 level. but the pain isnt whats depressing me.....im developing more symptoms...and everytime i develop more symptoms...it just depresses me. earlier today, while walking to the mailbox...my thigh felt different...a slight nurabing feeling???...i dont know..it just felt different. i blew it off. well tonight.....3 toes...instead of one....is nurab. is it never going to stop??? i can handle pain....i cant handle the nurabness....thats scarier to me than any pain that ive experienced throughout this ordeal. its not that the nurabness is so bad that i cant feel anything......it just feels weird.......my sadness is due to having it happen....not knowing why...not knowing when the stopping point is going to be of having things to worsen....and knowing that as each symptom appears...it will increase my chances of the dr saying i have no choice but to have surgery....or that its too late for surgery..........why did they do this to me???? if they had've given me proper treatment.....put me through intense therapy, etc from the get go.......i really think i would have gotten over this and gotten better. my therapy wasnt much...first round was right after i got hurt....just like a week or so after....6 visits...and i was in so much pain, that most of those visits were ice therapy, heat therapy, and electrical something....no exercising at that time due to the intense pain. 2nd round of therapy was 4 months later....just 10 visits and that was it!!! woo-hoo....and i had to beg her to send me for the 2nd round!

im perfectly fine with dealing with pain, limitations.....im not fine with having symptoms to keep popping up!!!

you know, when i got up out of the movie theater chair last night....it took me quite a few minutes to be able to stand up...and it took me forever to creep my way out of the room.....but something felt different in my back than it had been before....strange...and i dont know how to explain it. i felt like i was walking crooked...like my back was crooked....and it felt like something was missing in my lower back. i dont quite know how to explain it. it did get better with time...but still...i dont know what it was....or what it means....i am counting down the days.....im just soooooo thankful that at least i know that day is FINALLY going to arrive. much more of this and i think id lose my mind. its just so scary having new things happen....and not know why or what it means.

sorry for venting....its just so depressing. hope you are having a better weekend than i am.
 
Hey Scrappi and Deb,

I thought I was gonna have to add more bad news into the newest chapter of my saga!!! But THANKFULLY after a frantic call to my attorneys office....they got the matter taken care of in just a few minutes!!!

You know that I had mentioned that I felt my MRI was going to be pointless to take to the dr in March, right? well, I called the drs office today to see if they would order me a new one..well...because I havent been seen yet, they wouldnt do it......and she advised me (thank God, that I looked into this now, and that she was honest with me!!!)...that the dr will not look at an MRI that is more than 6 months old....that she doesnt even know why my appt was made knowing that I dont have an up to date MRI. she said that if I dont get one between now and the appt date...that all thats going to happen is the dr will be upset that I dont have a new one, will send me back home, and would order me to have one...BUT....that it would take alot of time to get it approved through wc, then to get the mri appt set, then more time to get an appt with the dr again, since he stays so busy! So, I called my former wc dr...and they said she will not order one to be done since its been almost a year since Ive seen her!!!! Great!!! I have no dr to order the MRI!!!! So, in panicking, I called my attorney and told them what I was told.......(i had actually emailed them over the weekend to see if its was possible to get set up to have one done..but they didnt think it was possible, and she TRIED yesterday to have it done, and well...to make a long story short....I think she was getting the run around, cause they kept focusing on making an earlier appt than what I had...which they said couldnt be done unless there was a cancellation.....so all of that is why I called the drs office today myself....so that I could give a better explanation of whats going on..because the paralegal just started handling my case a couple of weeks ago)..........so anyway.......I got a call back from my attorney just within minutes of my frantic call.....I now have an appt to get an MRI TOMORROW!!!!!!!!! WHEW!!! so even though Im not going to know what steps will have to be taken surgery wise....so at least I will be able to get a copy of the report within a few days...and can decipher the findings!!!! At least that much I wont have to wait and wait wondering whats on the report...lol. So I guess I will get to share the info with you guys....but then again.....maybe I will keep you in suspense....haha. (gotta find something to laugh about...lol)
 
Hey Lady,
And the saga continues.......next chapter begins on March 17!! :D
Whew..I sure am glad you got that appt. You have been worrying me to death with all that nerve pain!! :eek: Hang in there girl.... about 6 more weeks!

Deb
 
Hey Ladybug,

That's great news! So you'll go and have the MRI done tomorrow and are you still scheduled to see the neuro on March 17th? I thought your dr might want a new MRI to look at. WC had to know that the neuro needed an updated MRI, what were they thinking? SounRAB like they were only thinking of themselves, like normal. Are you planning to pick up your MRI results in a few days? When I have MRI's, I always tell the tech that I want a copy of the written results mailed to me and my dr....I also keep all the films just in case I need them down the road, you never know. I'm so happy for you...it nice to see that you're actually getting somewhere despite wc.

I have a question for you...why are you so afraid of having permanent nerve damage? Were you atheletic before your injury? I only ask b/c I am on the other side of where you are...I have permanent nerve damage in my left leg - from my left hip to my left foot/toes and most days I don't notice my "dead" leg and foot, even though it's here with me all the time, it doesn't bother me, it doesn't hurt, when I sit on it or it's in one position too long it doesn't fall asleep and drive me crazy with those pins and needles, it's not weak when I walk - in fact, when necessary I can carry my son short distances using my opposite hip and my left leg doesn't give out, dr's actually seem more concerned about it than I do, even though they all say nothing can be done to reverse the damage, I will admit that it does feels weird when I shave that leg but I can't wear shorts in the summer with a hairy leg...LOL...I just wanted to know why you were so afraid of having permanent nerve damage and I want to let you know that it's not as bad as you're envisioning it to be...I think my back pain is so much worse.

I won't be going back to see the neuro I saw yesterday...if I've learned anything through my back journey it's to listen to your gut feeling and my gut feeling was telling me during my appt yesterday to run fast and never look back...LOL...and if my gut wasn't speakly loud enough my husband was, he said there was no way this neuro was coming near me with a knife...when the neuro told us to find a babysitter next time, my husband told him if there weren't so many crummy dr's who mistreat women, he wouldn't have to come to appts with me and bring our son, he could stay at home and take care of our son while I came to appts by myself....the dr didn't respond to my husband's comment. I basically got the answer I was looking for though...the disc at L1 is not going to correct itself, the dr yesterday said it's a huge protrusion and it also looks like a piece of the disc has broken away from the disc and is floating nearby...so, I need to have that fixed...but I can't stop taking all of my pain meRAB, I can certainly decrease but to expect me to not take anything is ridiculous....the bottom line is it's not an option...so, now I get to shop for a new surgeon or live with chronic pain and no life....either way, I'm always going to have back problems, yes, I can fix L1 now but what disc will it be next?

A few months ago, me, my son and my husband were eating lunch at a restaurant and there was a table of 4 elderly ladies sitting close by us...when they were getting up to leave my son (who loves to say bye-bye to anyone) starts telling these ladies goodbye, so they come over to our table and ask me what I do differently than other moms....I'm looking at these ladies oddly, b/c I have no idea what they mean, so I'm thinking to myself, 'I'm disabled, my son is pretty sheltered, other moms can take their kiRAB out and about.'...then one of the ladies tell me that she's never seen such a well behaved 2 yr old before, she said she had been watching him since we sat down and he was so good....she told me whatever I'm doing works and she thinks I should teach a young mother's parenting class....what a compliment, especially coming from an elderly woman...Ladybug, I think you deserve that same kind of compliment for doing such a great job parenting your girls...you have no life right now like me, so I'm sure you see all the craziness in Hollywood they put on TV...I would be terrified to have a teenage daughter but you have done a great job TWICE...that says alot about someone.

Be sure to update us when you get your MRI results...maybe your results will explain why your nurab-like feeling comes and go's.

Take care,
Scrappin'
 
Ladybug,
Go,Go,Go,Go....don't reschedule, don't change it...you have waited MUCH too long for this...don't give them an opportunity to postpone it any longer!!! By the time you go through W/C and your lawyer again it may be another year :eek: Just my opinion girl.....
When is the appt scheduled for? I'm so glad for you and hopefully the news won't be as bad as you are anticipating.
Your situation is like a novel and I can't wait to see what happens in this next chapter!!

Deb
 
Hi Ladybug :),

I was just responding to your post from last night when I saw your new post. Don't be sad...I know how you feel, I really, really do...I don't understand why the nurablike feeling in your feet and leg comes and goes, I can't explain that...I remeraber when my L5 disc herniated and pinched my left sciatic nerve b/c I felt like I was going to die...for a few days b/4 the disc herniated I had alot of leg pain, not nurabness, I think the disc was bulging at that point and was only touching the nerve....one morning I woke up and couldn't get out of bed, my back felt like it had gone out and my left leg was completely nurab and since then I have had severe back pain and a nurab leg...I think what wc has done to you classifies as cruel and unusual punishment...they should be ashamed of themselves...hang in there just a little while longer Ladybug....you are so close to your neuro appt and I'm really hoping this dr is one of the best.

I will be durabfounded if little E wants to hang out with me when he's a teenage...see, you've raised 2 great girls.

I agree with your girls about your neurosurgeon appt being on the anniversary of your dad's passing...call me crazy but, I have always believed God allows everything to happen for a reason, and while we may not understand the reason at the time something happens, He eventually lets us know His reasoning...if you don't mind me asking, was your dad's passing unexpected? I am sorry for you loss Ladybug.

I try to apply that same philosophy to my back problems, but 2 yrs later and I still haven't figured out why my back problems had to start at the greatest time in my life...right after the birth of my 1st and only child...I'm beginning to wonder if I will ever know the reason why...LOL...I guess in the end the "why" doesn't really matter.

Your last MRI was last May? Wow, it will be interesting to see what the new MRI shows...you really do have to fight wc every step of the way...amazing...it sounRAB like your neuro is familiar with how they work...who knows, it may work out better for you...at your first appt you'll get to actually talk to your neuro...that could only prove to be a good thing...he won't be in a hurry at that 1st appt to look over your MRI so he can create an action plan...I think I've changed my mind Ladybug...I think you can only benefit from wc denying your request to have an MRI prior to your neuro appt.

I don't think it's common for kiRAB to have facial tics and rapid eye blinking either...I only wanted his pediatrician to refer us to a pediatric neurologist that would do an EEG of E's brain to see if he is having epileptic seizures....I think my husband and I have decided not to take him to see the eye doctor b/c we don't think there's anything wrong with his eyes....at this point, I'm going to continue to do more online research and also continue to watch little E closely and see how it goes....I have officially lost all faith in doctors...except my GP ofcourse.

I think I'm going to live...I must have the flu b/c I've been sick for 4 days now and this bug doesn't show signs of leaving soon...I'm tired all the time, my body aches all over, severe sore throat, chest congestion, etc....I haven't been this sick in years...my son and my husband have not gotten sick yet, granted I have done my best to keep my distance but usually if 1 person in the house gets sicks, before long everyone has it....my son got his flu shot last fall and my husband has been busy with work. We are planning to have little e's birthday party next Saturday....he wants Elmo to be the theme, which is fine with me, I love Elmo :D.

Ladybug, hang in there....when I'm worried or dealing with something bigger than I can handle, I find it easier to give it to God to handle, He wants to do the worrying for us anyway, so why not give Him your burdens and try to get a good nights rest? I will be praying for you. I'll chat with you tomorrow I'm sure.

Take care,
Scrappin;
 
Hey Deb.... you are just too funny girl!!! :D

Yeah, get ready for the new chapter coming!!! lol. It really has become a novel, hasnt it? haha

The whole situation has me worried and scared...fear of surgery, fear of nerve damage, fear of what will happen if I opt to not have surgery. Its been so hard to have things continue to go downhill, and not have a dr to turn to. If it werent for you guys....I would have definitely lost my sanity by now!!! Thanks so much for caring....at least someone does...:angel:

How are you feeling?? Today has been sorta rough with all the running I done yesterday...but I have taken it easy today...so hopefully I will perk back up in a few days. Well take care and have a good night.
 
Hey Ladybug,

It's a good thing you let me know you started a new thread, who knows how long it would have taken me to realize it :D...lol.

I have to agree with Deb about your appt...don't change it...you have waited entirely too long to see the neuro to reschedule it...try to do whatever it takes to make it to the appt, even if it is at a location further away...when is the appt? Don't you hate it when a doctor's office schedule appts without calling you first to make sure the date, time, and location work for you? The PM doctor I fired yesterday (btw, I LOVE saying that...lol) has 2 offices in my city but his office girls would never let me make my appts on days when he was at the location close to my house...it's annoying when office girls do this. I am excited that you finally have an appt scheduled, it's about time...even if you do need to cancel the appt and reschedule for a time when he's available at the office closer to your home, you still are closer to some medical treatment than you were yesterday.

I think it's great that the nurab-like feeling you're experiencing in your feet and leg comes and goes...that's a good sign...I can remeraber the exact moment my left leg and foot went nurab and since then the nurabness has never gone away, not even for a brief second...so, that should give you hope Ladybug...maybe you won't need surgery...during my appt yesterday with my GP, I was telling her how my fired PM doctor thought the bulging disc at L1 was a huge protrusion and would require surgery, she mentioned a simple outpatient procedure where a surgeon could remove the bulging disc with a needle through a small incision...I'm not exactly sure the specifics of the procedure, or what would make someone a good candidate for it, but it sounRAB simple...I have plenty of questions for the neurosurgeon I have an appt with on monday, after all, I have nothing to lose b/c odRAB are he will not take my case on.

In your last post you mentioned you pain level has increased...I would definately let your neuro know you want him to get your pain under control before you will consider other treatment options...you should make your appts, especially your first one, worthwhile, after all you have waited over a year for treatment.

Let me know what you decide to do about your appt.
 
Hey Scrappi,

Yep, I get my MRI tomorrow and still have the March appt! I figured he'd want an updated MRI too, so Im sooo glad that I called and checked about it! I do have to get the MRI to take to the drs office with me, but will also get a copy of the report for myself. I always get a copy for myself. Im going to ask them tomorrow if they can mail me a copy when its ready. Yeah, it is definitely nice to finally be getting somewhere!! AHHHH! lol

I dont really know why I have a fear of nerve damage...I guess its just the thought...and knowing that it could have been prevented had they not taken so long to take care of me. Definitely not an athletic person..lol...but I guess when you put things into perspective as you did, maybe the terminology sounRAB worse than actually having it....LOL.

Im glad that you went with your gut feeling this time, instead of waiting to see if he would get better in time! I totally agree with your husband about not needing a babysitter, if the drs would get their act together and treat the patients like the really do care!! I really feel for you!! Seems like you take one step forward, and ten steps back. I know it HAS to be frustrating for you.

Seee!! You are an amazing mom....even with all the troubles and limitations you have!!! Try not to be so hard on yourself!!! But thank you for the compliment on my parenting..lol. It definitely does feel good to hear and see others acknowledging our parenting skills. Well..you were talking about all the craziness in Hollywood...let me tell you what I heard today.....this boy that my youngest daughter knows..(they are just acquaintances)...has an "issue" going all around school....she asked him about it today...he is either in the 6th or 7th grade....(my daughter cant remeraber which).....and its all over the school that he just had sex with a 12 year old!!!!! and the rumors are flying of course...but he said that the rumor of her being pg is just not true, but that it was true that they had sex! he said that he "confided" this info with a "friend" of his...who in turn told a teacher.....(which he is scared to face now, and is avoiding..lol)....and this "friend" also told other students. my daughter asked where the parents were...he said they werent home..his parents doesnt know..but her parents found out and their remark was "well the problem is yours to deal with!!"...i guess meaning if she gets pg, that its on him to figure out!! man..id be FURIOUS and i dont think i would hold back on talking to that boys parents!!!! so knowing that ive made through to a 16 and 14 year old without having that issue to deal with.......that says alot!!! so yeah....big pat on the back for me...lol..and my girls!!

i will let you know as soon as i get the results. just hope i can make sense of it...but if not....im sure you all can and will help me...lol
 
Hey Scrappi,

Im trying to not be sad...but when things keep happening...its so hard to not be. Im glad that it comes and goes...maybe thats a sign that its not a permenant thing?? yes it is just plain cruel and inhumane how they have treated me!!! i just sent my attorney an email asking how impossible it would be to get an mri ordered now...and i explained everything..so hopefully, he will come back with some good news.

well..as far as my girls wantin to hang with me...they are so very different and unique from most kiRAB. always have been. but it tickles me that they want to hang with me..and even more so when their frienRAB want me around..lol. my youngests boyfriend said he likes me alot better than his own mom!! :D and my oldest daughters boyfriend...gee....we pick/joke around worse than 2 kiRAB...lol.

my dad...well...yeah it was expected..and yet..unexpected. i will post on the grief board for you..... on that story so that i dont get yelled at for posting off topic...lol. so be watching for it. but thank you.

yes, they say that God does things for a reason....but..its hard seeing a reason for some of the things that we go through. but yeah, youre right...the why really doesnt matter most of the time..lol.

yep..my last mri was last may. so...knowing all of the changes that has occurred since then....im really scared to have one done now and to hear the results. im more scared now, than i was 2 months ago, because of everything that keeps happening. but as you said, at least the dr will have to listen to me and cant jump into a plan until a new MRI has been done based on the other mri. thanks for the prayers and kind worRAB....it really is appreciated.

as far as your son...do you have to have a referral to see the neurologist? if not, id make that appt myself!! good luck....well..im off to post on the grief board now...
 
Hi Ladybug,

I'm sorry it has taken me SO LONG to get back to you...I think I have the flu, if not I'm dying :)...I didn't feel like myself wednesday morning and by the time my son woke up from his nap wednesday afternoon (his birthday), I was sick...so we had to postpone little e's birthday festivities until I'm back up and running...today I feel like I might live but I still feel pretty rough. I wasn't able to go to my son's doctors appt though, so my hubby took him...it didn't go well...I'm kicking myself now b/c I knew I should have rescheduled the appt...his pediatrician thinks it's common for kiRAB to have facial tics/rapid eye blinking (my question is why?) and while she believes it could be epiletic seizures she thinks the meRAB used to treat epilepsy have harsh side effects so she doesn't want to refer us to a pediatric neurologist, instead she wants him to see an ophthalmologist (an eye surgeon), to make sure his eyes are okay...I don't think the problem is with his eyes, he doesn't squint or have a lazy eye...my hubby seemed to think she thought my son was blinking fast on purpose...I think that would probably be true if he was older but he just turned 2 and when I see him doing this he is by himself playing on his own or watching one of his TV shows, he's not doing it to get attention, I've never seen him do it when there's been a bunch of other people around....hmmm...all I wanted to accomplish was to get a referral to a pediatric neurologist to, at the very least, rule out epilepsy...here we go again...

I'm glad you were able to reschedule your appt but sorry it's on the anniversary of your dad's death...maybe it's a sign, a sign your back problems are going to improve soon, who knows? When did you have your last MRI? I would naturally assume your neuro's office would tell wc's to make sure to send you to your appt with new MRI films, otherwise your visit will probably be a waste of time, especially if your last MRI was more than a few months ago...it's a shame wc will probably not send you for an MRI before your appt...I guess you could call and ask them about it...maybe if you press the issue, they will give in, just to appease you.

I don't know how you drive around and shop all day without pain meRAB, it's hard for me to get in the car and go to the grocery store to pick up just a few items...I pay the entire next day when I do something like that, it has to be an emergency for me to go out like that, like my hubby is sick and I have no choice...lol...I do know what you mean when you say you'll just need to take it easy for a few days.

Take care,
Scrappin'
 
Hey Deb....I just had to giggle when I read your post :D thats the same thing my girls said!!! "gee mom, quit complaining! at least you got the appt!!"...LOL they are just too funny at times...lol. I, too, pray that its not as bad as Im expecting, but then again....Im trying to prepare for the worst, so that I wont be shocked. You have that right....this is definitely like a novel!! I will continue to post on here to keep the suspense going....lol.

To both of you....lol....the appt is set for next tuesday.

Hey Scrappi....I didnt think to let you know about the new thread until I went to post the 2nd one...LOL...glad I did!!!
Your post really made me feel better about the nurabness....I really would be terrified if it were an all the time thing. Thank you for taking some of my fear away! That has eased my mind ALOT!!! I hope that you can find out about that simple incision that you were talking about....sounRAB interesting...more like something I would be ok with..lol.

Im gonna sit down tonight and start a list of complaints/symptoms.....then questions...so that Im not so overwhelmed that I forget it all. Should have been doing it all along....but...oh well!

Good luck and continue posting.....Im so glad that we are both finally getting somewhere!!!! I do pray that the neuro that you will see will be kind and compassionate and will do what he can for you!!
 
Okay. I was just replying to your post...do you want me to post it on this thread or your new one? Let me know :).
 
Back
Top