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kathryndrew59
Guest
can you die from syringomyelia
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Marywoo
Guest
Hi Kathy and welcome,i tried to find out about syringomyelia by and it doesnt mention death,Iam so sorry that i cant help you but just wanted to let you know i was thinking of you.if a dr diagnosed you with it you would think he would mention your prognosis.this is the first ive heard of this disease,i hoipe and pray you are feeling better,just wanted to let you know i am thinking of you. marywoo
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senorw64
Guest
I'v e had it for 30 years, and my doctors have never said it can cause death.
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pbjmom
Guest
Hi! I was just told last Friday that I have a cyst on my spine. It is in the c6 region of my neck. I go to see the specialist on Monday. From the research I have done, as the first doctor was not a spine specialist and offered no info, I tend to think mine is the syringomyelia type. I am no doctor though and I could be way off.
Many people have this and seem to live with it without symptoms. I am symptomatic and actually the cyst was found because of a diagnosis of a herniated disc. No herniation, but a cyst. I am looking forward to finding out if all this pain I am in is due to this type of cyst.
I do not think that death is a result. From what I have read, it seems as though surgery is one type of treatment if there is pain. My biggest concern is debilitating pain and lifestyle...but cannot find any info regarding that. Hopefully someone will add some info. After I talk with the spine doc on Monday, I can post back with info.
Kathryndrew59... what makes you ask about death? Where is your cyst? Post when you can...thinking of you!
Many people have this and seem to live with it without symptoms. I am symptomatic and actually the cyst was found because of a diagnosis of a herniated disc. No herniation, but a cyst. I am looking forward to finding out if all this pain I am in is due to this type of cyst.
I do not think that death is a result. From what I have read, it seems as though surgery is one type of treatment if there is pain. My biggest concern is debilitating pain and lifestyle...but cannot find any info regarding that. Hopefully someone will add some info. After I talk with the spine doc on Monday, I can post back with info.
Kathryndrew59... what makes you ask about death? Where is your cyst? Post when you can...thinking of you!
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mznell
Guest
Syringomyelia, and the related chiari malformation, are being diagnosed more often now that MRIs are being more routinely performed. I have not heard of them leading to death either, but it is very important to find a spinal specialist that is well-versed in this condition. There are only a limited nuraber of places in the country that are truly qualified to perform surgeries for either conditions.
I think both conditions can be very serious as the surgery can be of a very delicate nature. Some involve the brain stem and others are lower down, but still in the area of the spine where you worry about paralysis.
I think both conditions can be very serious as the surgery can be of a very delicate nature. Some involve the brain stem and others are lower down, but still in the area of the spine where you worry about paralysis.
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chickgeek
Guest
Hello All,
I came across this board while researching my illness. I have syringomyelia from T2 to T12 5mm in width and in the cervical spine. Mine is not related to Chiari.
BTW, Syringomyelia is a progressive and terminal condition if not treated. It is very important to see a Neurologist and to seek treatment. Some people may have a stable condition. (one that does not progress) However, that does not mean it doesn't cause death. A minor car accident can immediately make the condition worsen. Pneumonia, a severe cough, excessive weight strain and other strains can make the syrinx larger. The syrinx can grow on its own.
Saying Syringomyelia is not terminal is incorrect. If left untreated it can be terminal. Even with treatment, some excessive damage, can be permanent. If it grows to your cervical spine, and causes nerve issues with respiration, it is very terminal.
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I came across this board while researching my illness. I have syringomyelia from T2 to T12 5mm in width and in the cervical spine. Mine is not related to Chiari.
BTW, Syringomyelia is a progressive and terminal condition if not treated. It is very important to see a Neurologist and to seek treatment. Some people may have a stable condition. (one that does not progress) However, that does not mean it doesn't cause death. A minor car accident can immediately make the condition worsen. Pneumonia, a severe cough, excessive weight strain and other strains can make the syrinx larger. The syrinx can grow on its own.
Saying Syringomyelia is not terminal is incorrect. If left untreated it can be terminal. Even with treatment, some excessive damage, can be permanent. If it grows to your cervical spine, and causes nerve issues with respiration, it is very terminal.
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