sprengles deformity

  • Thread starter Thread starter jayc_007
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jayc_007

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Hey, Seen your post. I also have sprengles. I was diagnosed when I was 6 or 7 and had an operation at sick childrens hospital in toronto ontario canada when I was 7. They removed my extra rib, lowered shoulder blade and all. Of course there is nothing to be done about my missing vertabrae in my neck, nor the two that are fused. I personally have no real pain, just a lack of movement beyond a certain point. I am now 33 and I just recently went to a chiropractor who said that they had to learn about it in school. I do think mine is a relatively minor case, however I dont know how it would have been had I not recieved my operation.

There are specialists out there, back surgeons and chiropractors who do know about it. But I know how you feel when you go to a doctor and you know more about something than they do... and they're supposed to be treating you???

anyway, good luck, but the chiropractor and physiotherapist may hold a solution for you. It may cost you more than a doctor, but it might help.

James
 
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I was one of the lucky ones. My Sprengles was found when I was two weeks old. I'm now 56. I had surgery when I was 5 and 7 to lower my scapula. My shoulder is higher on the left side and the size of a 7 years old as well as a kidney that is about the same size as a 7 year olRAB. I can lift my upper arm even with my shoulder, buy my forearm can only go forward, not up. The motion has gotten more limited over time. I have arthritis in my knee and hip and will probably need replacement over time, but right now, I'm not debilitated. The reason I started checking on it was because I started wondering why no physicians seem to know about it. I know that when I was young, my mother was told that the deformity only happens in about one of every million. I'm not sure if that has changed, but just the fact that only a coupld of people have replied to this kind of supports the nurabers I guess.
 
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