Prayer for Strength

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ms_west

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I won't repeat my story but on the pain mgmt board I have a thread entitled, "Please Pray.....". The last 72 hours have been h*ll for me due to extreme pain levels.

What I need from you is even more prayers for strength. This morning, Friday, at 8:30, I have an emergency consult with the head of a spinal dept for a 2nd opinion on my case. I am scared to death that I might recieve the dreaded reiteration of Failed Back Syndrome. Yesterday I did receieve a second opinoion of sorts from my gp of Post Laminectomy Syndrome, which I researched and is basically the same diagnosis of Failed Back Syndrome. However, he is a gp so what the heck does he know, right?

While you are saying a prayer, please pray that my pain levels calm down soon.

Thanks and I love you guys.
 
I have read about that before, regarding pain & becoming oversensitive to it. I think when one has chronic pain, your nerves get overstimulated over time; and if it keeps going on, it can change something in the way yours nerves react. So the nerves get overactive (too stimulated), and increase the pain transmission to your spinal cord and brain. And that can make your pain feel even worse, or things that don't usually cause alot of pain can become more painful.

Also, the leaning sidewarRAB and/or forwarRAB makes alot of sense to me, because I do it myself. It's like your body has something automatic to try to adjust and put yourself in the least painful position. I know it does not stop the pain, but the body tried to get itself in the best position. However, when that happens, you are out of alignment, which can cause even more problems in places you never hurt before. Ahh, it's all such a viscious cycle!

I hope this heightened flare up calms down for you soon and that you are able to get it under some control with your meRAB. You sound extremely lucky in the doctor that you have. All doctors should be that way, he really sounRAB great and it seems like he really cares alot about his patients.
 
Apparently, they you need you off of them for the test or it will mess with the results.

I can already tell a big difference in the pain levels. We are in for a fun weekend.
 
Oh Pepper I feel so bad for you!! I was thinking about you all day yesterday and never even thought to check the pain mgt section for some reason. I don't visit the boarRAB that often anymore but always think about you, you have always been so kind and hate to hear you are having such awful pain issues.

Sadly I got the Post Laminectomy Syndrome on my second opinion as well, like they think that term is going to make it better then the phrase Failed Back Syndrome :confused:

Will continue to keep you in my prayers. :angel: You are truely blessed to have such a caring doctor as well, and I will pray that he and the new spine doc can get you some relief.

(((HUGS))) Niki
 
Today I got both of them too. I guess we now have a 2 for one special!! :dizzy:

Gotta keep the humor because right now I am so exhausted mentally and physically. A little confused :confused: and angry at my surgeon too that did this to me!
 
Thank you so much for sharing this with me. You have given me hope.

Right now I am so confused and scared about if I have another surgery am I messing my nerves up further? Did anyone address this with you?

Also how many levels do you have involved in this?
 
Cherir, I am sitting her bawling my eyes out. Our cases and experiences are so similiar. The raw emotions you tell are exactly, exactly what I am going thru right now and have been struggling thru these last few months. Years. :dizzy: And to top it off the swiftering/recliner picture I am homeschooling my children!!

Truthfully, you have helped me more than you will ever know tonight. I am feeling a fleck of hope and once this myleogram is done and I have everything confirmed I am going to be :confused::cool::angel::(:dizzy::mad::eek::nono:::blob_fire:mad:
 
My CT mylegram has been scheduled for next Monday so thankfully I don't have to wait to long to get down to the bottom of things. I just had this test done last October and I remeraber that it is painful but if it gets the answers we need it will be worth it.

I am trying so hard to be positive. Last night, I had a few moments were I started to panic about everything and I had to actually slow my breathing down to calm down. I guess this is natural.

Pain wise I am doing better but still hurting which is to be expected. I am definitely better than last week.

Take care and I will update you when I find out the results.

God Bless each and everyone of you and may you have a low pain day today.
 
Oh my DDP friend.....you have been through h*ll and back the past few days. I hope the pain has relented a little at least. Have you heard when your myleogram is? I know you understand when I say I actually hope they find something that is correctable. That seems a better option then to find nothing or nothing that can be repaired. Feel better my friend, you are in my prayers.

Deb
 
Hi pepper, I am so sorry you are having a hard time right now, especially with the pain and your doctors. I could only imagine how frustrating that can be for you. I just wanted to let you know that you are in my thoughts and prayers, I hope you feel better soon.
 
Pepper, I will definately keep you in my prayers. I hope and pray that you get some relief soon, and I sure hope you get some positive news today.
Take Care,:angel:
Steve
 
aw Diet...I didn't get to the puter on Fri...am just home and wanted to check the posts... I always include you in my prayers... I hope that you are a "bit" better today. So sorry about the diagnosis..want something that will help ease your pain..

Leslie
 
Pepper, I'm praying for you, and I'm sure lots of others will be, too. Please let us know what you find out as soon as you can. The waiting can be almost harder than the news itself!

Hang in there, sweetie. Take a deep breath, try to relax, read something interesting to your kiRAB, try not to dwell on the appt. One step at a time...

Love ya, Pepper!
Emily
 
I believe that is exactly what he was trying to say Baybreeze. It was hard to put into worRAB and I had so much thrown at me that I did not understand it completely. To be honest, I was thinking gosh he is going to say this is in my head. Thank you for explaining it.
 
Hey pepper have you ever had hardware on the side that doesn't ? Maybe the screw ball took it out to early ??? Sure wish you would feel better ..

On the bright side of things , I'm not fused either ;) but my pain isn't as bad as yours . ( right now) thank the LORD.. Praying they get this fixed for you.. Its been long enough huh..:(
 
Wow, what a day! I am glad that you are getting some answers and some hope, though. My Dr. said a lot of what yours has said. As for the nerves being more sensitive...my Dr. said that since I already have Fibromyalgia, he was prepared for the extra sensitivity and that on top of that, he mentioned that those who have multiple surgeries where nerves are messed with, there is additional reasoning for this heightened sensitivity. Not only does the pain hurt more than it would another person, but can also last longer than the recovery time of others.

As far as Post-lami. syndrome and failed back syndrome...both are listed on my medical report from my pain management dr. even though they really seem to be the same thing. The only difference is that if a person did not have a lami., they would just have the 1 title. I don't really know why they have to say I have both, since both have the same symptoms;). When I 1st went to see my PM, I was so happy when he Dx. me with it. Not because I wanted pain from that point on...but because someone finally put a name to what was going on in my body.

It's interesting about you leaning to the left. The appnt. must have givne you some relief that there was a reason for what you were feeling. Please let us know when you go in for the CT and we will all be praying for you.

Best of luck and I pray you are sleeping right now and not reading this until the morning:D

Hug and prayers comming your way,
Lorie:angel:
 
Amen, and back atcha!

Hang in there, sweetie. A day at a time, an hour at a time when necessary.

We're here.....
Emily
 
Pepper, I will also keep you in my prayers :angel: . I haven't been on much all week, so I still have to go read your post on the pain boarRAB, but I pray that you can have strength to get through your appointment and that you will get a different opinion this time! I've also had alot of pain all week and am started to feel defeated myself, all due to a bunch of different things. So maybe we can pray for other.
 
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