Please help.....Numbness suddenly 8 mos. after fusion surgery

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mznell

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Hi Laf,

I never could get my doc to say how compressed my nerves were -- all he'd say was that there were "no surprises."

I bet if you call on Monday, you'll be told it's only been 7 months...and that you should continue walking and doing what you're doing and when you get to a year, you can re-evaluate the situation.

Even if he did a MRI and found something, what would you do about it at this time?

I am increasingly finding that I am more comfortable when I get up and move around. When I've felt lousy and have been really lazy for a long weekend or something, I think I feel too bad to go to the pool or take a walk, but then I do, and I always feel better (or at least somewhat better). You said you're working one more day/week -- maybe that much more sitting is causing some of the problem....

Hang in there, my friend.

xx M:rolleyes:M
 
Thanks SHannon...sounRAB like we're in the same boat...Hope you are feeling better soon too.

MM...Glad to hear you are walking farther and farther....and working again..Good for you...SUre sounRAB like you are trying everything..I'm impressed...Today I'm going to try and do more..lately too much standing in place .off for a walk.

Have a good week.;)
 
at this point,just having a flexion and extension type of x ray may be able to tell whether or not you actually did fuse. my fusion did not take in my c spine,but the MRI i had done was inconclusive and recommended having a CT,well that CT stated i was INDEED fused despite my ongoing symptoms. i knew something just was not right since i was getting intermittant(the on and off nature of your symptoms would fit more with non fusion vs constant?)nurabness and tingling that was even worse than the pre op crap,i could also actually hear that bone piece grinding away when ever i turned my neck and the pain,oh that pain. the bone end when you are not fused just moves around a bit and can hit on nerves and other areas too when it is simply not actually attatched to anything.

it actually took me bugging the heck out of my neuros nurse for like nine months despite that 'perfect" fusion the ct stated i had,to convine her to even let me see my own neurosurgeon and to finally send me for a very simple flex and ext x ray. that one simple x ray told the whole story. it showed without a doubt that i was NOT fused. sometimes it is just really hard to tell whether or not a real solid fusion took place in there. but that particular x ray shows it pretty well. it works best on the c spine since you can actually see the boney prominences kind of fan out and not stick together at where that fusion is supposed to be, but even in the lower back area,if there is not real fusion going on,it would show in most cases,some level of gapping in there where the endplates are not attatched,you know what i mean? in my particular case,the top endplate fused,but the bottom did not. we went back in and placed hardware right after that x ray revealed the nonfusion. the thing is,i still would not have ever truely known with any certainty that i finally did fuse if it had not been for the spinal cord surgery i had to have a couple years later. it just happened to be in that same level area that they had to go into in the back? so when they removed the back of my c 6-t 1, that is when my new neurosurgeon saw that fusion with his eyes and told me post op that i did finally fuse.

there are alot of people out there that just never really fused but their docs told them they did based upon a ct or mri. the only true way to fully ever know is to actually see it with someones eyes like mine was. but who wants to go that far ya know? this was just a coincidence and gave that opportunity or i would probably still be wondering about it. you just simply cannot always rely on any scan to really show any true area or real picture since it is afterall,only a scan of an area,and NOT an actual kodak moment. but that one positive CT,if i had not actually kept pushing it with my NS,would have been what they went by and i would have been running around without any attachment at one endplate in my neck. in this type of situation,symptoms that you are having just really DO matter,not always a scan ya know? do you feel any bone grinding in that area at all? your symptoms just sound like a possible non fusion. but it could be a host of other possible issues too. but i would most defintiely mention this to your surgeon and also ask about that flex and ext x ray. that really tells much more than any MRI or CT would,it made the total difference in my particular case anyways. you simply NEED to know whether or not things went according to plan or not. that one really cheap little x ray just told SOO much of the real story in my spine. you just need to know what you are actually dealing with with regarRAB to new sudden symptoms showing themselves this far out post op. i do hope everything is actually okay in there and this nerve is trying to wake up and right itself,but you just need to be certain ya know? please keep us posted on things. good luck,Marcia
 
Didn't really have much nurabness the first few months after surgery...Lately two little toes on the foot that had the bad sciatica prior to surgery, have become nurab...On and off, not constantly...Sometimes the botton on the same foot gets tingly and a bit uncomfortable to stand on...I am able to walk a good distance but find it annoying.

Has anyone experienced this or something similar? Does this mean the feeling is "coming back" or perhaps a new problem...

Just curious...anxious to hear from you.

Laurinda (LAF):confused::(:confused:
 
Hi LAF ~

My painfreeness was short-lived!! I developed my same old/same-old while cooking breakfast this morning. Then I had front of thigh pain during the day, so I am disappointed. I also hardly know who to go to next. My PM guy said to see my surgeon and see if he wanted to do another injection...and I think my surgeon would just as soon let the PM guy handle me from here on out.

The neurologist told me to get the results of the EMG/nerve conduction study from the surgeon. My surgeon glanced at them for all of 3 seconRAB (after I spent 1 1/2 hours getting the stupid tests) and said "Well of course you're not going to have a "normal" report. YOU 'VE HAD BACK SURGERY. IT WILL NEVER BE NORMAL."

So now I'm thinking I'd like to go back to the neurologist just to have him explain the results to me.

I go to the museum 2 days/week from 9:30-2:00 -- when I can fit it in between my various doctors' appointments and tests! :dizzy: This is really getting boring!
 
Thanks SO much MM and Marcia..I will ask for another Xray...what can it hurt right?

MM how are you feeling any better these days...Are yo still doing accupunture?

You're right the more I do the better I feel...Today was damp and I was outside at an event for a boat/yacht showcase...My company was sponsoring it..(not too many folks buying big boats w/ this economy)..SItting in that dampness swelled everything up..

Going to lay down and read the paper...have a good rest of the weekend..

LAF;)...thanks again
 
Hey LAF ~

Oh boy...I'm sorry to hear you are having new problems. Isn't that just the most frustrating thing?? Did you have nurabness in your feet prior to your surgery?

It is a bit confusing as the bottom of the foot and the little toe are generally referred from the S1 nerve root, and the big toe is from L5...and neither of those were the source of your original problem, right? My recollection is that you had surgery at L3-4
 
Hi LAF,

Yes, I think I am feeling better. I had the SI joint nerve block on Wed. and I really didn't think it worked -- but Thurs. and Fri I was able to walk further than ever since my surgery. I actually got tired and felt like I was developing shin splints before the leg pain kicked in. So back to my surgeon on Thurs. to see what he wants me to do next! I think the next thing will be to try a diagnostic block at L5 and see what happens. We're into the trial and error thing because I want to find out what the cause is of this pain that keeps me from walking very far.

I am being more active. I started back at the museum --am going through the training again so I get to sit a lot, but it is still a lot of walking on the marble floors. So far I am tired when I get home, and sore, but no worse for wear from what I can tell.

If we can't figure out what is causing the pain, I am going out to CA for a "new" kind of MRI that can image the nerves. It supposedly can tell exactly where the nerve is compressed, bent, kinked, trapped behind a muscle, etc. It sounRAB really great, but I can't figure out why the technology isn't being used all over the country.

I go to acupuncture every week...and massage therapy, too. I'm into trying a bit of everything!!

Hope you're feeling better. Being outside in the damp I'm sure didn't help any!! Try to have a nice day tomorrow!

xx M:cool:M
 
NICE...can't believe what your surgeon said.....

It's like mine telling me my groin pain was arthritis and he had the name of a good hip doctor..I NEVER had this pain before surgery.

Sorry to hear how frustrated you are, I feel much the same way...this STINKS:(

Today I spoke w/ surgeon's nurse...She said what you said...nurabness in the 3rd and 4th little toes are related to L5-S1...levels below my fusion..GREAT..Something's inflammed...I haven't taken Motrin since the surgery....She suggested I try this and pretty much pushed me off onto Pain Manag. Dr..Also suggested a shot in my hip....and to ice before and after my walks...SInce I walk mid day in the office..should be fun to find an ice pack..........

I .....like you....... have become exhausted by this process.I feel like we already paid our dues.........DARN..

I just pray we can avoid a 2nd surgery...

Thinking of you spiney buddy. Let's try and keep smiling..

Laurinda:confused:;):confused:;)
 
Well, with my internet MD, I think your groin pain is related to this new nurabness. Something is inflamed. Please tell me specifically what are your symptoms pertaining to the nurabness and more about the groin pain.

When you go to PT ask your therapist about piriformis syndrome and also sacroiliac joint dysfunction. Either one of those can cause sciatic pain. That is the root I am taking right now in trying to find what is causing my thigh pain, and then I get funniy electrical feelings that run from my knees to my ankles. Then sometimes I get sensations in my other leg. My pain just kind of floats around.

I went to the museum today but left after the morning session. We were going to spend the afternoon in the galleries and would be walking or standing and I just couldn't deal with it. It was a really damp day here and I felt achy.

I'm going to see my surgeon again Thursday to see where we go from here. Luckily he likes me so he doesn't seem to mind that I go see him practically every week! But he doesn't know what to do with me, that is clear.

Let me know about your symptoms.

xx M:wave:M
 
You should contact your surgeon - they may need to do ct/mri to see what is going on and what may be impinging on the nerves.
 
I had fusion in Jan 08. My nurabness, tingling, weakness and some pain has returned. I had a TF epidural Thursday and another in a few weeks. Feels a little better down to my knee. The bottom part of my leg is weak. Really to soon to tell. This is being done by my pain dr. I had xrays that showed nothing out of the ordinary. I wanted an MRI but the PM dr said it wasnt necessary. Im going to call Monday and talk to neuro's office though I dont know if i need 2 drs in the middle of my treatment, especially if they dont agree. I went w/ PM dr because he is alot closer to home.
Shannon
 
i agree you need to contact your surgeon. how long ago was that surgery and are you 100% certain that you fused,if you indeed had an actual fusion done? this just sounRAB like symptoms of possible non fusion(the bone enRAB that are not actually fused can cause a shift and place it intermittantly upon a nerve or just irritating a nerve). if you had another type of surgery,your surgeon really neeRAB to know about any real changes in your neuro status. some are expected,some are not. only your surgeon can really tell you that part. if these symptoms were not there pre op,then that just ups the need to let him know. i do hope things stabilize soon for you. marcia
 
I think you may be right..It was better today taking the Motrin....

The groin pain is NOT constant comes and goes on the LEFT side..Sometimes difficult to get up the stairs without wincing...

Toe nurabness on the RIGHT foot, 3rd/4th toes nurab on top and on the ball of my foot when standing...I also sometimes hear a clicking sound somewhere in my back but can't quite place where..Only happened a few times have to concentrate where and when.

I also get a WEIRD cold feeling quick shooting pain in that same RIGHT leg hip/buttocks......It almost feels like I have an ice pack there BUT DON'T...Strange sensation..

The funny part is ther isn't alot of pain..I walked almost 2 miles tonight and dispite all of this my endurance is great...

Plan to get a new x-ray and return to pain man. Dr...PT is pretty much over but always open to my phone calls...LOVE my therapist..don't want to stop..but not covered anymore..

Good luck with your visit. Do keep me posted.

Thanks again..

LAF....;);):):(
 
Thanks you all....Funny I did have an MRI 5 months post surgery and my surgeon said I'm fusing beautifully now you are guys are making me nervous. I'll call on Monday and see what he says..( My surgery Marcia was almost 8 months ago)

Yes I did have some of this nurabness prior to surgery..My Dr. also said my nerve was severely compressed and immediately after surgery he asked me several times...How is that leg feeling?? He said it might take at least a year to start feeling back to normal ( almost back to normal, of course no guarantee)


I still get some creepy crawler feelings after standing for a long period of time..Tonight I was at a cocktail party for 2 1/2 hours....Feels good to be sitting at the computer.


Thanks much for your feedback..Hope you are all feeling better these days.Enjoy your weekenRAB.

Laurinda :angel: :angel::angel:
 
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