Please help! No one can tell me whats wrong with me.

djannika

New member
I am a 35 year old guy who used to be healthy and vibrant. Now I feel like a very old man who's been run over by a truck.
I shall tell my story:
Almost three years ago, I started experiencing occasional chest pains. They were minor at first, so I just attributed them to exercise or other activities. After awhile it got to be quite bothersome and I ended up going to the hospital for it. They did some scans and tests and found nothing wrong with me. A few weeks later I saw my general Physician and he ordered some more tests. All negative. He mentioned something called Costochondritis. I looked it up, and it sounded like a term they use when they don't know whats wrong with you. He sent me to see a Cardiologist and a Rheumatologist. I was put through more tests, and was given prescriptions. None worked. In the meantime a year and a half had gone by and my pain seemed to be getting worse.
January 2009 showed up. I manage to get the stomach flu(first time in 17 years!). About a month later I start experiencing lower abdominal problems. Bloating, pain, etc. I go back to my Gen. Physician. He says it could be IBS(another catch all, if you ask me) They run some tests. Everything appears normal. My symptoms persist, so I am sent to a Gastroenterologist. He does more tests(scopes and all) and says everything looks normal. He sends me to see some fancy doctor out of Rush University in Chicago. He's actually a really cool doctor who listened to me. More tests. Pretty much all normal except I seem to have some bacterial overgrowth. Try two different anti-biotics to no avail. Puts me on Lyrica for the pain. Doesn't do much.
My symptoms continue to grow. I start to feel shaky and imbalanced. The pain has spread to all parts of my body.
Last week, I went and saw an ENT thinking the balance could be an ear issue. He put me on prednisone, which did help while I was taking it. Now I'm back to feeling like I could fall over any minute.
I am now scheduled to see another Rheumatologist. I'm going to ask about auto-immune diseases and such. Fibromyalgia has also been tossed out.(another catch all)

All symptoms:
bloated/distended lower abdomen
PAIN everywhere. lower and upper back, neck, thighs, arms, even my fingers and toes sometimes.
overall weakness and fatigue
shakiness/tremors in my body. very noticeable in fingers.
numbness and tingling in fingers on occasion
imbalance issues(just started last week) where I feel very unsteady and can fall over any second. kinda like I'm drunk without drinking.
tinnitus


I am only 35 years old. I am 6' and 150#'s. I used to be a very healthy, strong, man. I have a wife and a son who I feel really bad for, because I am unable to be the husband and father they deserve right now.
I just want to know what is wrong and how to fix it! Even if it's something horrible, I just want to know.
This is ruining my life.
Any input would be appreciated. I've spent hours and hours on medical sites looking for answers.
Thank you
 
Gluten ataxia from Celiac Disease?

http://www.ncbi.nlm.nih.gov/pubmed/18787912

Celiac disease (dx by small intestinal biopsies, at least 6) is often misdiagnosed, poor testing or misinterpreted labwork may result in false-negatives. 85% of people with Celiac do not know they have it.
 
Hi, I agree with auntieleela. Digestion problems can be hard to diagnose but with some, they are completely missed by docs and not checked for. Do you have an internal med. doc you can see, or find one that specializes in diagnosing this? I noticed you said the predinisone helped only while you were on it for the imbalance problem, I had the same thing, the med helped only while on it. I did find out that the reason for this symptom was my sinus and ear canals were swelling up from irritations in the air, and this causes the balance problems. These symptoms can come and go and be worse at certain times of the year. My doc prescribed a nasal spray that helps immensely, keeps the swelling down and I no longer have the balance problem. You can get it over the counter. I had many other symptoms with it, but only occasionally, such as headaches, tiredness, dizzy sometimes.
 
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