L
LMT033167
Guest
I was temporarily paralyzed due to damage to my upper neck area (around the 3rd disc) almost 30 years ago in HS when someone playfully knocked me in the face - PT & a neck brace for a year, but a full recovery. I don't know the specifics because it's been so long and I've had no other problems until 2009.
Then I was in a car accident 12 years ago that messed up my pelvis - knicked the outer right bone, I went through PT for 6 months. Recovered and was able to lead a full life even walking/running whatever I wanted to do with no problems.
I had to have female surgery for severe Endometriosis/Adenomyosis in 2005 and tests before this showed - 12/2/2004 my xrays showed Changes of Osteitis pubis with some sclerosis identified in both side of pubic symphsis, so my pcp did a CT 12/27/2004 Sclerotic changes seen on both sides of the symphysis pubis, which has the appearance of post partum symphyseal changes (youngest child was 2 1/2). After reading this shows changes in my pelvic area but I still didn't have symptoms.
I felt better until I started having heart problems in my electrical system in 2007. In short, my electrical system in my heart shut down and caused blood & oxygen loss throughout my body and left me with nerve damage. It's to where I burn my hanRAB often cooking because I can't feel parts of my hanRAB or I can't walk due to nurabness or I trip and fall because of my left leg.
Since heart surgery, my back, pelvic region and legs have given me so many problems that I wonder what injuries I sustained when my heart stopped 3 times. My pain stays moderate and spikes to severe levels often day/night. My pcp sent me to a neurologist, who thought I had Auto Immune issues on top of neuropathy and possible DDD around my L5 & S1, due to nurabness, tingling & spasms in my LE's and L hand and my R eye is affected.
On 7/26/2009 CTA & Xrays - showed Degenerative changes in the thoracic spine; vascular crowding and cardiac enlargement; Right Hemidiaphragm slightly elevated.
Now, I can't sit, stand or lay down for very long and have to change what I'm doing often which is aggravating and I'm not taking any type of meRAB right now, not sure I can with heart problems (electrical) and a pacemaker/ICD.
It's getting worse quickly to where it hurts to even walk around my house and seems to have spread to my outer hip area and the bones in my legs, hips and back hurt "inside".
I don't know if my whole spine is degenerating now because of the damage I've sustained, but the changes in my CT/Xrays seem to show that I am. I've gained weight and can't exercise due other health problems and have moderate obstructive sleep apnea and can't sleep more than an hour or two at a time between my back and OSA problems.
I've been a secretary since I was 17 and I've worked for my husband's company since 2001. I filed SSDI for my heart problems, but they denied me because I could think for myself and could keep a check book, which was confusing to me. What used to take me 10 min, now takes me an hour and writing is very difficult - I often have to copy & paste typing or it may take me days to complete 1 paper instead of an hour like before.
I don't want to have any type of surgery; my dad had an accident when he was in his 30's and had his spine fused (1980's) and I watched what he went through for the past 30+ years and really don't want to go that path.
I find it strange that I was ok for so long then after surgery and especially the past 2-4 months this has progressed so far.
Any suggestions? I'm going to a new pcp with new insurance, so hopefully I'll get some answers and relief from all of this.
Then I was in a car accident 12 years ago that messed up my pelvis - knicked the outer right bone, I went through PT for 6 months. Recovered and was able to lead a full life even walking/running whatever I wanted to do with no problems.
I had to have female surgery for severe Endometriosis/Adenomyosis in 2005 and tests before this showed - 12/2/2004 my xrays showed Changes of Osteitis pubis with some sclerosis identified in both side of pubic symphsis, so my pcp did a CT 12/27/2004 Sclerotic changes seen on both sides of the symphysis pubis, which has the appearance of post partum symphyseal changes (youngest child was 2 1/2). After reading this shows changes in my pelvic area but I still didn't have symptoms.
I felt better until I started having heart problems in my electrical system in 2007. In short, my electrical system in my heart shut down and caused blood & oxygen loss throughout my body and left me with nerve damage. It's to where I burn my hanRAB often cooking because I can't feel parts of my hanRAB or I can't walk due to nurabness or I trip and fall because of my left leg.
Since heart surgery, my back, pelvic region and legs have given me so many problems that I wonder what injuries I sustained when my heart stopped 3 times. My pain stays moderate and spikes to severe levels often day/night. My pcp sent me to a neurologist, who thought I had Auto Immune issues on top of neuropathy and possible DDD around my L5 & S1, due to nurabness, tingling & spasms in my LE's and L hand and my R eye is affected.
On 7/26/2009 CTA & Xrays - showed Degenerative changes in the thoracic spine; vascular crowding and cardiac enlargement; Right Hemidiaphragm slightly elevated.
Now, I can't sit, stand or lay down for very long and have to change what I'm doing often which is aggravating and I'm not taking any type of meRAB right now, not sure I can with heart problems (electrical) and a pacemaker/ICD.
It's getting worse quickly to where it hurts to even walk around my house and seems to have spread to my outer hip area and the bones in my legs, hips and back hurt "inside".
I don't know if my whole spine is degenerating now because of the damage I've sustained, but the changes in my CT/Xrays seem to show that I am. I've gained weight and can't exercise due other health problems and have moderate obstructive sleep apnea and can't sleep more than an hour or two at a time between my back and OSA problems.
I've been a secretary since I was 17 and I've worked for my husband's company since 2001. I filed SSDI for my heart problems, but they denied me because I could think for myself and could keep a check book, which was confusing to me. What used to take me 10 min, now takes me an hour and writing is very difficult - I often have to copy & paste typing or it may take me days to complete 1 paper instead of an hour like before.
I don't want to have any type of surgery; my dad had an accident when he was in his 30's and had his spine fused (1980's) and I watched what he went through for the past 30+ years and really don't want to go that path.
I find it strange that I was ok for so long then after surgery and especially the past 2-4 months this has progressed so far.
Any suggestions? I'm going to a new pcp with new insurance, so hopefully I'll get some answers and relief from all of this.
dr's put me on Zantac which has not helped and they have no answers for the nausea