New here ~ and feeling upset

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marigoldgirl81

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Hello~

Well, it has been very interesting to read about this thing called LPR b/c i am quite sure this is it....

I have never been known to have stomach problems...just mild acid reflux a few times a year, if even but this year has been a nightmare of ibs, gastritis and esophagitis and NOW gallbladder pain for the first time in my life lately. I don't even feel like i am writing about myself with all of that terminology.

So, i controlled my diet and worked on anxiety and the ibs went away :) after a few months earlier this year, then at the end of June, it came on so suddenly...i felt like i couldn't breathe and told myself it was anxiety, but after a whole day with a swollen throat i knew it wasn't. So i went to off hours linic and they did an eeg and said it was anxiety....ok....over the next few weeks i could barely swallow food, it was awful, so i went to a GI dr whom said i have gastritis, acid reflux and esophagitis (all mild-this was after an endoscopy) but he can't figure out why acid reducers, inhibitors aren't making my swollen esophagus go away! Well me neither doc....ugh..

It subsided for a bit but is back full fledge, ppi's don't seem to do much. This literally came on overnight after i began weaning off of the horrid benzos i've been on for over 2 years. I am so sick of western medicine making me sicker that i have recently sought out chinese medicine/acupuncture with (knock on wood) quite a bit of success for my gallbladder sludge but this reflux is AWFUL!!!!!!!!!!!!!! and i am crying b/c it has worn me out and my family and my wallet and i keep losing weight....i never know what food is going to trigger it b/c its unpredictable. I hesitate to call the GI dr b/c he is no help. I have not been officially diagnosed with LPR but i don't have the burning like gerd, its all in my throat with a swollen esophagus all of the time and the other night some acid must have gotten in my lungs a little bit (after i strayed from my super strict diet a little bit) b/c i kept feeling like coughing and now it feel wierd, sore and sensitive in part of my lungs and the most awful pressure feeling in my chest like my skin was going to tear, not any burning. Part of me is freaking out b/c i am terrified of all the stories i read about acid in the lungs and part of me is crying and saying try to remain calm, this is the 3rd ppi i've been on and so far my body DOES NOT like ppi's but i am staying on them just to reduce risk of damage.

I am so scared right now, i was so young and healthy before i chose medicine for my panic attacks and my health started to rapidly deteriorate after i was on it and the weaning process (still on tiny amounts of xanax and lamictal). Do you heal after these lpr episodes? Does your lungs feel irritated too? I know none of you hold the magic wand but i feel sooooo alone with this, if i go to the dr he'll want to change ppi's and do another expensive test and we are financially hurting b/c of all of this....and my body neeRAB a break from med change after med change. Just looking for support, need some help to see out of this dark tunnel, yoga hurts right now, eating is awful, drinking is awful....has anyone been this bad and feels better?

thanks for listening to me vent...i just don't know what to do anymore and no one seems to understand:)
 
I suffered from BURNINg and pain in my esophagus for weeks...then I suffered SEVERE pain in my chest , thought I was having a heart attack...went to the ER. They thought it was a heart attack too but thankfully it wasnt. ER Drs said it might be stress or gall bladder. I eventually had upper GI studies ...was told I have gerd...acid reflux.. my gastro Dr had me try various RX's including the Purple Pill...nothing helped. I was in agony. Finally , I found a new Dr who told me to try an over the counter product called DGL . I had a hard time finding it but it was worth the hunt. I went to a store called "The Vitamin Shoppe" and bought two different branRAB of chewable DGL. Amazing stuff! DGL worked like a miracle drug on me!! I now keep a big bottle of Enzymatic Therapy brand DGL with me at all times!! It's chewable ( tastes like black licorice) and I chew one or two each morning , afternoon and night time. It coats the lining of the esophagus and stomach and I suspect it may also helps the lower intestine . All I know is that I NEVER have reflux or gastro issues anymore.
 
Hi Mari,
I read your post and I hate to hear what a bad time you are having. I have to share this with you. I had acid reflux. Slept in a chair 2 years. Then I changed my strategy from eating many small meals all day, to having plain oatmeal, 3 times a day, with 4-5 hours in between meals. About 2-3 cups of oatmeal a day. Black beans and brown rice for dinner. No butter, no white sugar. I also bought a juice machine. I buy 30 pounRAB of carrots a week. 1 lbs. beets. A human head sized chunk of brocolli and also cauliflower. 4 red grapefruits. 5 large apples. 4 tablespoons wheat grass per gallon. It makes two gallons of juice - lasts a week - costs about $30/wk. Except for a living hell neck injury I feel awesome. I have one tall glass of juice a day. If I feel heartburn coming on I have a shot glass of balsamic vinegar and go for a walk. No acid reflux for 3 years now.

Yes, you are right about western medicine. It is an unholy union that is driven by the profit motive. Very scary. It is sad you have to be suspicious and on guard. I read one docs. theory that eating small meals often keeps the acid flowing. And antaciRAB (I have not needed 3 yrs.) and acid blockers work against your body. I don't fully understand it, but it changed my life. I dropped about 30 lbs to boot.

Well, whatever you decide to do I hope things turn around for you soon. :wave: matt
 
hi mari
My heart goes out to you. My symptoms were so bad I lost my voice at one time. Yes it will heal in time, but getting stressed out about it makes it worse. I have ordered some mangosteen juice as several people on here have recommended it. worth a try maybe. Just hang in there girl, you are not alone - we are all behind you.
 
thank you everyone:) I am trying some alternative techniques although i have been told & believe they are slower to work and i do think stress and anxiety has something to do in precipitating it although for me lately its an around the clock thing but i'm sure thats b/c its sore down there. i am trying to tell myself what is, is what is, i have been doing the aloe vera juice, apple cider vinegar and acupuncture with breathing techniques. I am also eating small, small meals throughout the day with a little more ease although it is still rough BUt an improvement. My dr. said i can switch meRAB again but i am so sick of switching meRAB and the side effects. Its early but i do see a a connection to stress & this and it is sad what stress is doing to my esophagus and stomach and gallbladder but i am commited to healing it and even though its been inflamed for 4 months, its ok, i am working on getting it better and thats the best i can do....although this came on overnight, it most likely didn't take me overnight to get here and its not going to take me overnight to get out of this :) have a good day.
 
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