LPR what food NOT to eat

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Seeking Sunrise

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how about this idea. eat anything you bloody well want. your disease is not acid reflux, despite what some moron told you (do you think Dr. House is going into larynology?)

You probably have a neurological/psychological disfunction.

The only time I would (very quickly) admit I'm wrong is if the symptoms began with severe heartburn and progressed to sore throat (which probably feels nothing like an LPR sore throat), or if gastritis or espophagitis and barett's esophagus can be proven.

Otherwise, the so called reflux issue is bogus and you should just eat whatever you want. The problem is nerve damage, or perhaps something else with the same symptoms, but it sure as hell isn't GERD. This lie is holding up finding a solution, and it is further harming patients of the bogus disease called LPR, which is actually nerve damge. Enough is enough.
 
Interesting stuff man. I got LPR 3 months ago. Just came out of nowhere. I've tried PPI's and such with no relief. Really suffering here. Never heard anyone talk about the drugs that you brought up.

Have you found relief with them?
 
So what happens next if you ARE on something for sensory neuropathic cough (amitriptyline) along with PPI's for LPR, and neither are working??
 
Hi Xhale12,

I'm 29, male, and my onset began just like an explosion during a cold. Never had one single issue before, and suddenly I had a burning tongue, felt like a grapefruit was in my throat, then the throat clearing started not long after.

I haven't got on the drugs yet, but hopefully as on Monday, the neurologist will give me some.

I also live in Calgary, Canada. In nearby Vancouver there is a doctor named Murray Morrison. In 1999, he wrote about something called the irritable larynx syndrome. It was basically the symptoms of LPR, but something he thought started from nerve damage during a virus, where the nerves connected again in a weird way. He also suspected at the time, there was a psychological component (because LPR patients are so stressed out, I guess)

Anyway, if I don't get the drugs here in Germany, I'll be meeting with him as soon as possible. I already emailed him about my case, and like all doctors, he said, I can't talk about "your case" unless I meet you.

So I wrote simply this. "Then can you just tell me simply, have you used pregabalin and elavil to successfully treat supposed LPR?"

He wrote back, "Yes." Short and sweet.

So my question for you is, were you sick when yours began? What was happening on the day it all began? Also how old are you and did you ever have any heartburn issues before? You might be in the same boat as me, and you should probably be reading everything you can on laryngeal sensory neuropathy. It's a pretty recent idea that more or less emerged from Murray Morrison's work on the irritable larynx syndrome, and yes, Koufman's work on "post viral vagal neuropathy." What I don't like about Koufman's work though, is that she is fixated on the idea of acid reflux being a contributing factor.

Even if it was, the treatment of LPR is proven to be useless, so you want to working toward treating your symptoms of whatever you have. I find it amazing that people here are dreading getting the "big C" from their reflux rather than working solely on relieving the symptoms. Who cares about 30 years down the road, if every day sucks in the here and now? I'm sure that you agree with that. So yeah, if we can compare details, it will help both us figure out what might be going on...
 
Yea man we need to bounce ideas off eachother. That's how we can cure this problem. We are sure doing more than those money hungry docs.

I don't remeraber when the symptoms started to be honest. They started very mild, and there was not burning. Just sharp pains in my throat area. Then the acid/terrible burning in the throat happened. Now it is just awful.

Don't remeraber if I got a cold. However during that time I was doing a TON of new voice work at a new studio I was attending ( I am an actor). Perhaps I damaged some nerves doing that? Who knows. Perhaps your wrong and it is acid reflux like I've been suspecting. We shall see. Let us know how the lyrica works!
 
For acid reflux, fooRAB to avoid are the 'acid' fooRAB (Most Acid, More Acid, Low Acid, and Lowest Acid) from this post:

http://www.healtrabroadoarRAB.com/boarRAB/showthread.php?t=763999

FooRAB that have worked well for me are watermelon, fresh raw green kale, molasses, sweet potatoes, yams, cantaloupe, and onions. Cal-Mag-Zinc supplements work well, also. FooRAB to avoid are grains, cereals, meat, dairy, beer, and any type of processed food or beverage.

This works for me for acid reflux, but I'm not sure if it would work for LPR.
 
weird how the acid ones are actually the alkaline ones if i ate citric fruits my throat would be worse than it is now
 
then i would recommend trying a host of other fibro meRAB like sevella (sp?) or cyrabalta.

Can I ask, did your LPR have a gradual arrival, or was it all very sudden, with an upper respiratory tract infection?

And I know, and am prepared for, the eventuality that these treatments won't work for me. But I know from what I've read, and from conversations I've had with people who suddenly had no more LPR symptoms, that it seems like it is related to nerve damage, if you don't really have heartburn or signs of reflux.

The point is, these treatments (elavil, lyrica, let's add bonine the sea sickness drug, cyrabalta) that messing (in a good way) with your central nervous system is much more promising than eating stale bread and ashes every day, sleeping on a slanted wall, and trying to arrange your schedule around 6 meals a day.

Suppose, it's not acid related. Then on top of your phyisical pain and discomfort, you just removed from your life all the fooRAB you like, your freedom, your previous lifestyle. What a horrific cruelty, if this is not actually related to acid reflux.

Read all the cases on this site. Doesn't this so called reflux seem surprisingly random. It afflicts people for 6 months, regardless of lifestyle change, then suddenly relents, and goes away, then comes back, because they ate A FRENCH FRY??? How stupid is that theory. They just try to make sense of a random, nerve affliction and tie it to ideas about reflux for the most part.

If you have fibro, keep searching in the list of medications, trying raising your dose. I think you are on the right track, and I hope you find your relief, (or it mysteriously finRAB you, which you'll probably attribute to a diet of dry oats and water for half a year.) ;)

Seriously though, keep going with the nerve stuff. Lyrica doesn't work for a lot of people. 6 milliion people use it in the USA. I'd say there are a lot more, for whom it works and works well..
 
I read a post by a singer who said lyrica solved that person's problem. their voice was not able to switch and they were producing a lot of phlegm. Again, could be reflux. Could not be. You could always hedge your bets and take the ppis with lyrica.

Anyway, I'll definitely be sure to let you know how it fares with me. Weirdly, today my symptoms are the best they've been in 2 months. It really improved once I started smoking a pack of marlboroughs a day. Maybe they should prescribe them...

Let's keep in touch.
 
Seeking Sunrise - I have noted your various comments and interested to see how you do - please keep updated.

I agree with further comments you have made. I have tried eating all the "correct" fooRAB and found it made my LPR worse! Its like the pressure and expectation is too great...that no results are produced! Last week - I just went f**k it and headed to Mac DonalRAB. I felt great for the rest of the day...Heavy symptons had subsided!

Its all about the belching - stopping that mechanism of belching. I don't notice it when I am half a sleep - infact I am dam sure I dont belch when im a sleep. Therefore your neurological debate is a valid one.

Yes - LPR came on after a Viral and Chest infection. Started taking Ibuprofen/followed by Antibiotics. Then LPR came into my life. Happy days
 
Another poster said they had trouble with citrus as well. I don't think I've ever had citrus. However, I have had success with watermelon, sweet potatoes, yams, onions, fresh raw green kale, and cantaloupe.

Another thing you can try is chewable calcium tablets or Cal-Mag-Zinc supplements. I overdid it on the drinking last night and have probably taken around 10 of the Cal-Mag-Zinc supplements this morning. The bottle says to take 2 per day, but when I overdo it on an acid food I just take those supplements until the acid goes away.

I think the most I've ever taken in a day is like 20. Beware that if you take too many you can get diarrhea. Note also that I don't take the Cal-Mag-Zinc supplements every day, but only tend to take them when I overdo it on something (usually beer). So maybe 3-4 days a month I'm taking a large amount of Cal-Mag-Zinc. The doctor who gave me the list of acid and alkaline fooRAB says he takes ten of those pills per day.
 
For me with LPR I can eat more things than many, so I guess I can count myself lucky there.

I've noticed Lactose Free Milk works fine for me (and no I'm not lactose intolerant, so I agree this is weird). Normal milk gives me some slight bloating issues and the burps carry up the acid. Only few cereals work, basically the ones without sugars or added aciRAB like Rice Crispies. Tried some of the heavier stuff a few times (one maple nut and one cinnamon) and they caused some pain.
I've noticed some milk products cause less issues than others. Joghurts with added citric acid or sugars are more problematic than those without. Well worth paying the higher price for the natural product.

Fruits work well for me except citrus and cranberries. And very large amounts of rasp- or blackberries (like 1 pound) will cause some issues. Mulberries are great, can eat unlimited of those and they actually even taste better than the aforementioned. Bananas, Melons and Cherimoyas also work well.

Meat doesn't seem to cause many problems if eaten in small quantities and cooked without (much) fat. That goes for almost anything for me: no fat, no oils = no reflux.

The things that I must absolutely stay clear from are:

-Tomato. Even a tiny teaspoonful of it causes me terrible pain that lasts for 2 weeks. No more pizza for me. I've improvised pizza for myself with red wine an cream sauces and (almost) no cheese.

-Garlic. Even tiny amounts give me pain.

-Mint. Just plain deadly.

-Chili or anything really spicy. I can tolerate a tiny bit of pepper, but anything more than that begins to hurt like hell.

-Onions. Can't have more than half teaspoon ful or I regret it.

-Almost all teas. Notable exception: Fennel and calmus (calmus actually seems to help)

-Coffe, Alcohol, any sweets. Not needed for healthy living anyways, don't miss them.
 
P.S.

how many mg are you taking a day? I think you can go up to100 or more. but 10 often suffices.

Jamie Koufman the great LPR quack has started treating LPR with 10 mg elavil in conjunction with gabapentin (neurontin) and/or lyrica and/or baclofen. All of these mess around pretty hard with the nervous system, and are to be recommended (in a good way).

get yourself some lyrica and give everyone an update after a month. Tell them you have a burning tongue or something (common lpr/neurological issue) which also afflicted me very very suddenly one day.
 
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