Let's rant on our disabilities?!?

A

Amanda

New member
I have ADHD/LD and a tic disorder, I'm so sick of people acting as thought I'm too slow to get what they're saying, too stupid or immature to possibly relate or worse acting as thought i'm not a functioning member of society! i hate the fact i can't even step in a public area without the threat of being thrown out looming over my head ( i have coprolalia, its a swearing tic) argggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggggg
People, sometimes it's good to get our problems off our chest by just complaining about them, we've been sucking it up and being brave far too long!
 
Complaining about disabilities isn't going to improve the situation. I believe that it's a better use of time to figure out ways to better deal with disabilities. You shouldn't let your disabilities define you as a person.
 
I scored severe Haemophilia. Layman's terms my blood preeeeetty much doesn't clot at all, not without an outside factor (more on that later) this means I am easily susceptible to life threatening blood loss, and even a nosebleed can end up being a trauma ward worthy accident. I can also bleed into joints and muscles, which means that blood pools and creates pressure in the joint or on the muscle, causing sometimes severe pain. These internal bleeds are often the result of physical activity, or may just be spontaneous. A more long term side affect of the joint bleeds is that blood has a tendency to eat away at cartilidge, so it's most likely, that if i hit old age, I'm going to hit it in a wheel chair at half a k an hour due to crippling arthritis.

These symptoms can, in the most part be prevented, or treated by the injection of synthetic clotting factor into my blood stream, I currently have a port (small metal drum, linked up to a vein in my neck) for ease of use, as my veins are bastards to get, however, they don't last forever so its conceivable in the next year that i get to go in for yet another surgery to have it removed, after which I'll have to start trying to do my own injections, which require getting a butterfly, aiming for a vein in my hand and then hoping. Generally doesn't work too well.

Basically, It's genetic, and it can't be cured, I've already spent half my life going in and out of hospital, and its apparently not gunna change anytime soon.
 
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