tennis playa
New member
Hey every one, I do seriously need help. About a 2 and years ago i had to have my Colon removed since it did stop working (Extreme constipation) no one knew Why? Diagnosis Colonic Inertia. They did attach my small intestine to my rectum so no I have no Bag. Since than my life has been going down the hill. Presently I have 8 different doctors working on me and no results starting from a family Physician, Rheumatologist, Neurologist, Cardiologist, OBGYN, Sleep Disorder Specialist, Endocrinologist, Gastrointestion. No one can figure out what is wrong they all agree there is something. You might wonder why am I on this particular Board. After the surgery my Legs started to bother me a lot Bilateral pain. The surgeon thought it was because I used to be very active now for 6 months I had to have limited physical activity, than 6 months latter I did discover a lump on my throat too It took my ex FD forever to recommend me to see the ENDO, because my test result for thyroid are normal on a lower side but normal. So finally I went to the ENDO did bunch of test then he did diagnose me with a Multi nodular Goiter and put me in a very low thyroid medicine ( Levothryxine 25 ) but my goiter is not shrinking. I have every symptom of Hypo but according to the doctor not Hypothyroid . You might wonder what are my symptoms well lets see: Severe Headache, Leg pain at beginning was my Calf's the right side more now the pain is just making me crippled, it starts like very bad pressure than from my hips down to my feet it's excruciation it is muscle pain nerve pain and deep bone pain, hand tremors , I'm very sensitive to cold and heat but mainly I'm always cold. I'm 5 feet 5 inches and even 9 months pregnant I did not get heavier than 125lbs now I'm on 1200 calorie diet and exercise like maniac, in 6 months I did gain 50lbs, I did not have my period for over 6 months and I'm not pregnant I'm only 29 so no not menopause, hypoglycemia, and to top it of my heart rate is going nuts past 4 months I can't get my heart to go under 95 BPM and a small stress or movement can take it on 125 BPM So now according to my Cardiologist who did every test under the sun and every thing came normal I have IST which is Inappropriate Sinus Tachycardia. On October this year I had a Laparascopy for Endomitriosis and awful scare tissue, now I have ovarian Cyst as well and Fybrocystic Breast , my breast did enlarge 2 cups for past three months .Headache is uncontrolable, past week I was diagnosed with two more things IBS and Livedo Riticularis. My three year old daughter can eat more than I do. I'm always tired no energy , fatigue and barely get any sleep. I'm loosing my hair a lot my nails have this weird texture and my skin is awful full of acne and very dry. and oh boy my moods are a roller coaster.My latest test do show a multi nodular goiter on my left side not cold and just above the limits of normal radiotracer uptake at 6hrs of 15.93%. Blood tests for:
TSH 1.034 reference 0.300-4.900
T4 ...7.8 reference 4.9-11.7
T3 1.1 reference 0.6-1.6
Vitamin B12 370 reference 208-963
Cortisol 12.1 reference 3.1-22.4
(TPO) Ab 7 reference 0-3,
By the way I do have a family history of Hypo and Hiper. Oh also my Vitamin D levels are low at 19 so I'm also taking 50000 units every week and 2000 units daily. B12 1000 ( over the counter ).
They did check me three different times for Lupus, the test came Negative, for a while one doctor did suggest Deep Connective Tissues Disease but the other Doctor ruled that out, Yes the did try my for Fibromyalgia, RLS, Deppression, but nothing I'm currently on Prednisone and too many pain killers which I avoid until I have no choise. Pleas help me. Oh also I do have Degenerative Discs and mild arthritis on my lower back.
TSH 1.034 reference 0.300-4.900
T4 ...7.8 reference 4.9-11.7
T3 1.1 reference 0.6-1.6
Vitamin B12 370 reference 208-963
Cortisol 12.1 reference 3.1-22.4
(TPO) Ab 7 reference 0-3,
By the way I do have a family history of Hypo and Hiper. Oh also my Vitamin D levels are low at 19 so I'm also taking 50000 units every week and 2000 units daily. B12 1000 ( over the counter ).
They did check me three different times for Lupus, the test came Negative, for a while one doctor did suggest Deep Connective Tissues Disease but the other Doctor ruled that out, Yes the did try my for Fibromyalgia, RLS, Deppression, but nothing I'm currently on Prednisone and too many pain killers which I avoid until I have no choise. Pleas help me. Oh also I do have Degenerative Discs and mild arthritis on my lower back.