For people who work, how do you do it?

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10sox

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Fortunately, when my back problems began, I was a stay-at-home mom doing freelance graphic design work. I've recently had to give up my last client because I cannot sit at my desk for more than five minutes without being in total pain. I recently bought this new contraption that makes it possible to lie in bed with my laptop. So, I will begin a few projects and see how that goes.

I fortunately am still able to function relatively well in society. I can grocery shop, run erranRAB, make it through a short restaurant dinner...etc. BUT, I cannot sit or stand in one place for very long. If I had to work in an office setting, I would be in excrutiating pain all day. Just sitting at my home desk for 10 minutes brings tears to my eyes. If I had a job where I was standing, I don't think I could do that either.

So, I am thinking there has to be a solution. I am 35 and would like to enter the work force again in the next few years and I am really wondering if that will be possible? I've been wanting to go to nursing school, but have put that on the back burner because I cannot sit through a class. My pain managment doctor says he will get me through nursing school, but then what? Who is going to hire someone right out of school who has so many back problems?

So, I guess my question to all of you is how do you do it? If your pain is that severe how do you manage to make it through your work day? I need to lie down several times throughout the day just to get some relief. If someone were to look into my life there is no way they would think of me as disabled (I attend my childrens playgroups, their mommy and me classes, take them swimming at the pool). This is all before 2pm when the pain is better and with the help of meRAB. I just cry when I think that I physically would not be able to return to my career right now and not knowing if I ever will be able to work again.

Thanks!
 
I am also dealing with this issue. I am unable to return to the workforce. I have been looking into the at home medical transcripiton field. I can not afford ssd, and must work.

REMOVED

Thanks for listening, my prayers are with you all....
Lisa:angel:
 
Hi,

I'm so sorry that you are having to deal with pain and the conflict of whether you can work or not, or go back to school. I know exactly what you are going through, as I've gone through it myself. However, before I had surgery, I did keep working...though I really can't say and don't know how I did it. I could only walk about 30 to 50 feet and would have to collapse after that from the pain and spasms. From my car to inside my office at my desk, it took me forever to get there. I always had to stop half way and rest for a while, but I always went in early. I was in serious pain all the time and just getting worse. I actually had incidents where I was stuck in the bathroom for 45 minutes because I could not even get my pants zippered back up. I pretty much could not stand for any lenght of time. I've had old people see my struggle on way to the 2nd floor of my rheumatologist's office and they wanted to help me! It was all so erabarrassing and humiliating. BUT..I had to support myself. SS disability does not pay enough to live on and I needed to work, so I just somehow forced my way to go. The good thing was my co-workers and bosses were extremely supportive, especially since I was always leaving to see doctors, etc.

Someone else mentioned sitting on the floor at work; well, I have done the same thing myself. When one is desperate and in so much pain, you will try anything to get more comfortable. I have also sat on a 6" high box full of catalogs so that my arms and head were level with my desk (at that time I had severe neck & shoulder pain, and spasms). I was in tears alot at work, my blood pressure was high and everyone always said my face looked very pained. I tried all sorts of those stick on heat patches, ice, I bought a bunch of different heating paRAB that get heated in the microwave and wore them all day long. Sometimes my co-workers would push me in chair to get somewhere. I hated that, because in my mid 30's, I felt I shouldn't be needing help like that...though I greatly appreciated it. All I can say is....it was extremely tough and going to work took every last ounce of whatever energy I had left from me. I would get home, and collapse.

I did have lurabar spine surgery, which did help me alot..however I still get sciatica and other nerve pains, plus I have worsening pain now in maybe my sacral and/or hip areas. My hip OA has worsened since '07...I just don't even know where it's coming from anymore. And...my place of work went bankrupt this year and everyone was laid off in January. So I was on unemployment and was faced with having to go to interviews in pain. I could not hide it all, however I really didn't get any interviews. I got one call, but it turned out to be a company looking for recruits and they all stared at me when I hobbled in & out of there. It is so very hard to deal with it all but I get through it somehow. I wish I could tell you exactly how...but I don't really know. I do know in the past I have gotten depressed about having physical limitations, but after a while I got tired of feeling like that. So somehow...I just keep thinking that I need to work, need an income..and I just have to deal with the pain and suck it up as best I can.

I did, however, decide to go back to school. I know the medical field where I live is rampant and there are always jobs. So I took a long course that covers billing, coding, transcription, medical office, insurance, etc..all of it. What I didn't realize, was just how horribly painful and exhausting sitting there in those awful chairs would be. They are certainly not ergonomic nor bad back friendly. I was in tears during classes, ughhh. Teachers did say I could stand and stretch when needed; I also ended up finding one chair that was a bit better than the others and I roll that with myself & my books to each class. There are ALOT of books, and they are heavy, so I cannot bring my books all home everyday as I cant get them all into my car from my gym bag. So I only take home any books I need to study for on a particular day. I also told my PM about it all..and he actually worked with me to find a corabo of meRAB that will lessen my pains and not cause as much brain fog during the day, but it's still not perfect, but I'm doing better than I thought I woudl. That's been helping alot, plus I have one of those car massage seat covers that I put on my chair, I have a portable lurabar support pillow...and just recently bought another sacral pillow and use that on my chair. That sacral pillow is helping even more. THe pillow has a hole where your coccyx /bottom of spine would usually sit. This way there is no pressure on your spine. In my school I don't have to walk far, as the classes are very close together. I also hang on to my chair while pushing it from class to class.

If you are having such a hard time standing and sitting..I really don't think nursing would be such a good choice for you. There is alot involved in nursing like someone else mentioned...lifting, walking, bending, all sorts of things. What you can do is go to your states' local DVR department (division of vocational and rehabilitation services) and see if they can help you. That is how I am going to school. They will also help me in my job search, so they say. But at least in NJ, anyone can go there and apply if they have a disability and their requirements are more lenient than SSI. THey will also help people who are on the job and might need job accomodations for their disability. That would include things like special chairs, special desk set ups, or even breaks and things like that.

Somehow I am getting through my school and am still doing well considering iv'e had pain and I'm taking all these meRAB. The meRAB still make me foggy, but now I take higher doses at night and lower doses in the morning, so it's not as bad. I take it all day by day. What I do still worry about, though, is being able to find a job when school's done. Right now, since the humidity broke, I feel a bit better...but I never know when I might get alot of pain. I always have a limp because of a badly arthritic ankle, and I do bend forward a bit while walking. But no matter what, never tell a potential employer that you have any kinRAB of medical problems. It's illegal for them to base hiring on that, but they do it anyway. Just never tell them what you're issues are. I hope employers look past my body when I interview...and I hope to convince them I can do the job no matter what. I do have to try to find a job close by because I cannot drive long either. And sitting in the car is the worst. After a few minutes I get tingling in my toes and feet...if' i'm in the car more than 15 minutes, the pins and needles get worse and the longer im in the car, my feet will actually go nurab, not to mention my back starts hurting more. One good thing for me that I hope employers will notice..I do have a letter of recommendation from one boss, plus my dept. boss said I can give any employer her home phone # to call her as a reference..and I know she will say good things about me.

Sorry about my book here...but I just wanted to let you know I have a similar situation and wanted to tell you of my experiences regarding working and going to school. I cannot tell you that it will be easy, because it won't. And the sitting, it's unbelievable to people without back problems, to hear just how physically and mentally exhausting it is to simply sit all day. It's excruciating. If you do decide to go to nursing school or school for something else...see if your doc can help you find a med corabo to help your pains a while before you actually start school. This way your body gets more used to the meRAB and you can make any adjustments. Then if you have more problems during school, see your doc and tell him exactly everything and make any other needed adjustments.
 
>>So, I guess my question to all of you is how do you do it? If your pain is that severe how do you manage to make it through your work day? I need to lie down several times throughout the day just to get some relief. If someone were to look into my life there is no way they would think of me as disabled (I attend my childrens playgroups, their mommy and me classes, take them swimming at the pool). This is all before 2pm when the pain is better and with the help of meRAB. I just cry when I think that I physically would not be able to return to my career right now and not knowing if I ever will be able to work again.

Hi 10sox,
I can't help with your question, but just wanted to say I'm right there with you. I'm 39 and have been a homeschooling SAHM for 7 years, since 1st grade. My son is starting 8th grade at a traditional school this fall because I can't manage homeschooling him (properly --giving him the opportunities I want him to have and that I'd been able to give him through homeschooling before). My problems became quite bad only this past fall and I had two surgeries this spring, but I can tell that I'm never going to be 'me' again. I'm okay with some of that, but have exactly the same question as you do about my future employment. I LOVED working before my son was born and have always intended to return f/t (and return to school, too, as you would like to). I am not in the level of pain and immobility that you are currently, but I've been there, still get there at times, and wonder about what level I'll be at later on, too. I can relate to your situation really well. One thing I know, even though I have not yet worked outside the home with my problems, is that I won't be doing what I wanted to do --I believe I'll have to make some kind of adjustments in what work I do, how I do it, how much/long, etc. Like I said, I can't answer your question, but I can empathize with you and say that I think that it's important to find a way and to find something to do even if it becomes a real challenge to figure out 'what and how'. It may not be what you planned or intended, but that doesn't mean it can't be good, useful, and possible. That's where my heaRAB at with my own future anyway.
I wish you only the very best.
Take care,
Meghan
 
Hi 10sox and WyMom94. I'm there with both of you. I'm a little older (47) but became totally disabled when I was 45. (Actually 1 day b4 my birthday). I was a retail rep, going from store to store. I can't drive for longer than 15 minutes or I will fall asleep, so I usually don't do any. I can't sit/stand for longer than 5-15 minutes so I couldn't really do anything. I just had to get used to the fact my life has entered a new chapter and find whatever I can do to fulfill it. I wish there were something I could say which would make us all feel more useful. I don't think 10sox, you would be able to do the job of a Nurse even if you graduated, and got the job. Nursing requires a lot of lifting. I always wanted to do that also. What makes it worse is my sister-n-law has now decided she wants to be a Nurse and is in school. A dream I will never be able to accomplish. Maybe some computer work at home on a laptop would be the only thing I think would be a possibility. You could move around, lay down, and take as many breaks as you need. Also working on your own hours would be a must. Good Luck and if you find something, please let me know. Good Luck

Cindy
 
I've been searching high and low for something to make my laptop usable while I'm laying down in bed. What kind of contraption did you find? Don't post any links to the product as I think they are not allowed, but maybe you can describe it? I think its also ok to state who the manufacturer is and what the product is called?

Thank you!
 
Lisa,

About feeling guilty....yes I went through that at first. I felt guilty of being useless. I have always been a very independent woman. Always in control of everything and everybody. I was a Manager or Supervisor in most all of my jobs. I was working 2 jobs when all of this happened to me. Getting used to the "looks" was difficult. But you know, it is like with anyone who gets stares for any reason, you get used to it and you get over it.

My Husband and Dr., and God know what I can and cannot do. "I" know what I can and cannot do. I have had to give up the life I knew as "normal". "I" have had to adjust. "I" am the one in this h^&ll. No one else can possibly understand. I have quit trying to make them. THANK GOD they can't understand!

I have worked since I was 14 years old. It is my rite to be able to get SSD. I AM THE ONE who has paid in. You know you really understand being on Disability and getting paid for it until you are here. You don't think about how unfair it is an illegal can get these funRAB (YOU have paid in) but you have to fight with a lawyer to be able to get it.

So "NO" I don't feel guilty anymore. I know I can't work anymore. I know what working takes and I don't have it anymore. I have paid my dues. I know if anyone else were in my position they would agree. That is why it is said, God is the only one qualified to judge. He understanRAB and knows me. So I will get off my soap box now. :) I Pray for all of you in my boat to Not have to feel guilty anymore. WE didn't ask for this.
Cindy
 
I have made a nuraber of adjustments at work. My computer is on a filing cabinet so that I have to stand and look up. That limits the sitting. In my office, I am often working on the floor with pillows propped under me - and frankly, they have gotten used to it. It initially bothered me but it was the only way I could function. I stand mostly at meetings in the back. In other worRAB, I do what I have to do to get the job done. Also, i take it a day at time - sometime an hour at a time. I have found that once I get to work, I can usually get through the day. I have also gone in early, taken and extended lunch where I go and lay down at home, go back to work and stay late. I have a wonderful husband who does most of the cooking. Also, in our house one of the chores is cooking dinner. So my three children (twins at 12 and a 27 year old) cook three nights a week. It has made life much easier but it is difficult. Good Luck;)
 
Hey Cindy thanks for the comments but I have already received my SS disability and proud that I did. SounRAB like you had a rough time also.

I want to say to everyone that has to work that my prayers will always be with you all because I know how tough it is because I did it for many years. My prayers are also to all of you that can no longer work because I know what we go through every day and we do what we have to do.

Hugs and Prayers to everyone
Linda :angel:
 
10Sox I hope everything will work out for you when you do have to go back to work because I know how hard it can be. When I had my first surgery on my cervical spine and went back to work I had a lot of problems because my desk and office were not set up ergonomically correct and my boss would not do anything about it. Well he did have someone from our safety dept. come down and check things out and that was a joke. I was able to talk to the nurse in our infirmary and she tried also but no luck. I was on the phone a lot and also computer and I would multi task which meant I held the phone many times with my shoulder. I would get head sets but then phones would be changed and the head set wouldn't work so he got mad when he kept having to order new head sets. I also had to lift boxes and it didn't matter what limitations I had because the people in the office would get upset sometimes because they felt like I should have to do everything like them regardless of my limitations. I worked like this for 4 years and then I had to have my second neck surgery and I knew that I wouldn't be back. I had the surgery then my lower back got worse and I had to take disability. I know if I had gone back to work he would have eventually fired me and then I wouldn't have even had my long term disability benefits that I had paid for 20 years. I am sure not every place is like this but it is a hard thing to do. I also had to drive 35 minutes one way and sometimes I would get to hurting so bad before I got half way that I had to turn around and go home. Disability doesn't pay much but it is better then nothing and I am thankful that I have it and I hate that my husband has to be the main bread winner because before all this I actually made more then him and had all the benefits so our life has changed a lot. I want to wish you luck when you do go back and document everything in case there are problems.

Linda:angel:
 
Cindy and Linda, you did a good job stating it. I do understanding SSD started this system to stop fraud, but now the system exists to support the legal profession that specializes in it. Now that I'm home and watching daytime TV, I'm appalled at the nuraber of advertisements for lawyers who specialize in helping you get your SSD. This has also been going on for a very long time. My father in law had severe RA and OA in his spine for years, trying to work through it until he just couldn't anymore. He went out on private disability insurance and applied for SSD. He actually had to go to a court hearing to get it, hobbling in on his cane, and this was over 25 years ago.

But it could be worse guys. I work with a woman whose husband's back was an utter mess. He thought he was doing the right thing by going to Philadelphia, to a big name surgeon. This surgeon put 3 replacement discs in his back (in spite of the man being very overweight) and within a month all 3 collapsed. During their fight with both his private short term disability and their attempts to get SSD the surgeon kept insisting the surgery was successful and he should be able to return to work - refusing to acknowledge the discs collapsed. They have had to switch doctors so the new doctor can help their legal fight - and there are a lot of surgeons out there who will not take on a patient under those circumstances. It's been very rough for them.

I also understand the loss of independence. I've also been a manager all my working life and so much of that is behind my driving need to return to work. I take some encouragement from a woman I met at the hospital. A young and very fit-looking young woman who worked as an orderly (she's the one who wheeled me in and out of surgery.) As she wheeled me she talked about how wonderful my doctor is, and how she had a 2 level fusion herself, done by him. Looking at her walking around, pushing the heavy gurney, you'd never know it. In my mind I think of her as I try to navigate this recovery. I choose to ignore the age difference. :D
 
Interesting to see the posts and your solution, DelawareGirl. I plan to try to return to work on 9/1 (2 level fusion on 6/24.) I can sit for extended perioRAB of time, but as the day goes on the pain builRAB up. Also can't consider this until I can slow down on the pain meRAB - it's a long drive and I can't be too drugged in the type of work I do.

Paula
 
I also can't work now. I am a substitute elem. teacher and cannot stand up long enough in the day. I was going to try half days, but I can't do that now either. Its a drag. I am in the middle of figuring out if I need surgery or not for stenosis. I hear you guys and know how you feel. Its depressing.
 
Kyma3,
SounRAB like we have been through similar fates. I was on LTD until they fired me. Then I appled for SSD and SSI. Didn't get SSI but with a lawyer and a year wait, I finally got a settlement fee and disability. Then I sued W/C also and won. Don't wait too long to apply, it does take a lawyer and time! PS my LTD insurance co. gave me a lawyer to fight for SSD for free. They didn't get any of my settlement! You see they want to quit having to pay you. Good Luck and sorry you have to be in my boat LOL.
Cindy
 
Laenini, if you look up "overbed tables" you'll find ones that tilt and are made to support a laptop. Amazon sells them, as to quite a few others.

Baybreeze, the type of work you're going to school for CAN be done from home - check into it. I know a young woman who gave birth to twins 4 months premature. Day care wasn't a consideration, so she had to quit her job. She started doing medical transcription from home and loves it.

Good luck!
 
Linda,
I am so glad you mentioned Praying for those who have to go back to work. I feel for each and everyone of you so much. If you feel anywhere near what I do each day, I can't imagine going to an 8 hour day of work, or even a shorter time, everyday. I sleep now (when I can sleep that is) more than I am awake in a day. On the days I can't sleep I am just miserable wishing I could.

Paula,
I wish you all the best on a full recovery. I traveled about 250 miles a day every day. I can't drive anymore unless it is to the store (5min) I wouldn't wish this on my worst enemy. Being able to go back to work would be so great. Not just for the money problems, but to be able to have a "life". To be able to have communication with something other than my cat! LOL Really I hope any of you with a shot at going back to work, get it! If not....make the best of what you can do! It will keep you from going crazy!

Cindy
 
well I am a nurse, and I have multi level bulging discs,the one causing the problems is at L5, causing S1 irritation. I've had it for nearly 6 months now, with severe back pain, sciatica in both legs down to my feet, the left being the worst. I was off work for months, but have recently started a phased return to work. I am lucky in as much that I can avoid sitting and standing for too long, as both cause considerable exacerbation of symptoms, but I as most nurses are on our feet, moving about continuously. I failed my phased return 3 times and am now on my fourth attempt. I am now managing to do 5 hours every other day, but luckily we have a sofa in our staff room, which i lay on for 10-15 minutes if the pain gets too much. I make sure I am well dosed up with pain relief. I have just had caudal epidural and facet joint injections and hoping this will further help me to get fully back on my feet. It is with no doubt a struggle, my life has been turned upside down,but with good support from my lovely husband and from my colleagues at work, I hope to beat this, I refuse to let it beat me. Dont give up hope, you got to get on top of that pain, be its master, not its slave and good luck!!
 
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