Facing decompression surgery...????

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carol632

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I wonder if anyone here has had surgery to remove bone spurs that are pressing on nerves? We've tried all the conservative treatment and nothing is helping much. The spurs are on both sides of the spine at L1,2, and 3. So I am scheduled to have decompression surgery on the 10th of Sept. Research isn't telling me much about what to expect....recover wise, especially. I do know that sometimes you end up with a fusion, but I am so hoping that is not the case for me.

I would appreciate any information anybody may have, especially personal experiences. I won't have the chance to ask questions until the 5th when I see the PA.

Many thanks.

Carol
 
I had a three level laminectomy 5 weeks ago and bone was removed that was causing sever stenosis, I too, went for laminectomy instead of fusion. He said after surgery my spine looks very stable and hopefully no fusion will be necessary for years. I won't say it has been fun but the butt and leg pain in gone. I was left with a little nurabness is the thighs but I am now walking 2 miles a day and feel no pain. Sitting is a little rough still, but is getting better everyday. I am not taking any pain meRAB but am starting celebrex. My surgeon is very concerned about taking narcotics so he gets you off them as soon as possible. I still ice my back a couple of times a day. I was in the hospital for 4 days and could have left after 3 but we live 4 hours from Northwestern Memorial Hospital in Chicago where the surgery was done. You will need lots of help at home. I am having a hard time remerabering not to bend or twist. I wore a clunky back brace for 4 weeks but no longer need that, my bestfriend is the grapper that they gave me at the hospital. I am still on a 10lb weight restriction which is difficult with a 12 lb dog. That is kind of my story if you have any questions feel free to ask.


patti
 
Carol,

Yes, I had bone spurs and they were removed successfully. When my doc went in he suspected the surgery would take 3 hours and ended up being in there for almost 6. The MRI/CT scans did not reveal the depth/size of the spurs. He said that this actually happens alot and he just had to be more careful around the nerves which is why the surgery was alot longer.

Recovery was a good six weeks -- it really took me 12 weeks to recover. I wore a soft back brace for 5 weeks.

I did end up having this level fused at a later date because the amount of bone that was removed during the compression surgery caused it to become unstable. My doctor forewarned me of this before my decompression surgery that this was a possibility and he would rather try the laminectomy then the fusion. We rolled the dice and I lost.

I have subscribed to this thread so I will receive notification of any updates you make to the thread. You know me I am here for you and will answer any questions.
 
Thanks so much for your quick reply. How did I know that you would be the 1st to reply? Maybe because you are always there for everyone, any time you can be.

I am amazed that your surgery took so long....6 hours! My doctor says to expect no more than 2 with a 3-4 day hospital stay. Since I am already fused at L 2-3, 4-5 and L5-S1, I am praying that there is not going to be another. I do have to say that I worry about 3 levels being decompressed leaving my spine unstable and that is something I will address with the PA on the 5th.

I'm surprised too, that recover is so long! Gee, silly me. I had it in my head that this wasn't going to be a tough one compared to the others I've had. Hahaha....guess the jokes on me!:confused:

I sure hope you are continuing to do better. I've read your latest post and am thrilled that your pain levels are low enough to allow you to overdo ;). Now you just have to learn to pace yourself!

Thanks, Pepper.

Carol
 
Carol,

I don't have much info myself, as I too am trying to seek information on it. I do kkow how it is to face a surgery, and not know what to expect after in regarRAB to recovery. I had gone for a discography on the 27th of August. And all my doctor had to say at this moment was I am looking as discectomy, or decompression surgery myself. But because I was on very little anes. for the procedure he couldn't go into details. I will be seeing my doctor, this Wednesday so that I can ask questions. At this point my surgery isn't scheduled yet, but is in the works for the sometime near? future.

Hang in there, and will keep you and all the other back pain sufferers in my prayers as I know how frustrating it can be.
 
In my case, I was not allowed to bend, lift, clean, twist, or drive for 6 weeks. I was also not allowed to clirab the stairs more than once a day.

I had full length vertical incision about 6 inches on the back. Unable to take a shower until the stitches came out.

I was in the hospital for 24 hours and did wake up with a drain and those lovely surgical stockings on the legs.

Sitting will be very uncomfortable for the first 4 weeks then you will start feeling so much better. I think some people go back part time at 4 weeks; however, my surgeon was strongly against it. He has a tendency to hold people back a little bit.

It is very important that you do everything in your power to allow this nerve to rest once it is decompressed. You will be asked to walk but not to walk anymore than you body tells you. If your back begins to hurt you know that it is time to back off and rest.
 
Thanks for your reply. I hope that this thread will give you some of the information you need as well. Having had my share of spine surgeries (6) I consider myself a veteran of the wars, lol, but have never had spurs removed. I had a laminectomy years ago which reruptured immediately leading to a second lami and then fusion, so I know that complications are always possible.

I hope you will question your doctor fully so that you have all the answer you need.

Carol
 
Hi Carol,
I had a lurabar laminectomy on May 21 this year. It was to remove bone spurs and drill a hole in bone to relieve compression. I was miserable before the surgery, couldn't walk or stand without excruciating pain and was using a cane or walker when I did walk. I was told the surgery would be a few hours (and it was) and that I'd be in the hospital for 2-3 days (and I was). I feel I was released before I should have been, though, needed an extra couple days, but that's water under the bridge now. My initial/earliest recovery was really hard because I didn't get that extra time in, but I was still able to manage with a lot of family help. One thing that helpeld tremendously was renting a hospital bed (for our living room) for my recovery. That was essential for me and I used it for 2 months, would have used it longer but I was tired of not having a living room anymore and missed sleeping next to 'the husband'. Also, the raised toilet set with bars on the side was also essential, a real help. I continued to use my walker for early recovery even though I felt immediate relief with walking and standing --from the first time I got up out of bed in the hospital after surgery even. I did have a short-lived setback with sciatic pain about a week or two after surgery, lasting about a week or so and have recently developed a 'new' sciatic pain (not the same, old one, a different one that doesn't impede my walking at all, but my sitting instead). I'm hoping that this is temporary as well, although it has been about two weeks now. My PT has been helping me with it. (I started physical therapy in recovery at about 7-8 weeks post-op --strictly pool therapy to start). I have back pain now and am not use to that (only felt sciatic pain beforehand), but I think it may still be because I'm recovery from my back being cut open, of course --not a permanent new pain. Sitting is very difficult when recovering from back surgery and it still is for me, although I can sit in supportive furniture quite nicely most of the time. I cannot sit in 'regular' chairs and such without trouble. I carry a special pillow to use when I go out and know I'll encounter 'regular' chairs and such. It helps, but I still need to get up and walk to stretch my legs if I'm sitting too long. I managed a 6hour day at the State Fair with my husband and son last weekend, using a wheelchair to rest when I couldn't stand or walk anymore, and getting up to walk when the wheelchair seat (with special pillow in it) became too much for me. Without the chair, I would have needed to leave after an hour, maybe an hour fifteen. I never use aiRAB such as that, but knew I'd need it for a long day out like that (needed it for our son, too, who neeRAB rest breaks for his legs between walking, too). I can walk a good 45 minutes straight before I need to rest, longer sometimes, but never more than an hour. If I get in a good 20 minute rest in a chair I can actually get some relief in, I'm good to go another stretch walking before needing to rest again. I do not regret my surgery. It gave me back a degree of what I had before my pains took so much away from me -and I hope to have even more back as I continue to recover more. Recovery has been slow and sometimes very 'step forward, step back' and, honestly, frustrating in that aspect. But, it's a huge improvement from where I was. I've told my husband that even if the new back pain IS permanent, it's still better than the debilitating pain down both of my legs that left me unable to function as I was before. I do hope, though, that the sitting issues abate eventually, or at least lessen. They make some things very tricky. I still take meRAB and that was a disappointment, wanted to leave them behind entirely (and have stopped repeatedly, only to restart when I needed them again). I prefer to rely on OTC pain meRAB whenever I can, but I do still sometimes take Rx meRAB for pain and muscle relaxants. What I can DO now makes up for the disappointments. My surgery didn't make me 'perfect' again (me, perfect --lol, my sisters would snigger at the suggestion), but it made my life much better, muuuuch better.
You will need a lot of help in early recovery. Set things up ahead of time as much as possible. Whether or not you rent a hospital bed, definitely follow the sit, lay sideways, then roll into bed 'rule' --without fail. Follow the "no BLT -bending, lifting, twisting" rule religiously. Definitely get a 'reacher-grabber' tool and have things in the kitchen and bathroom (bedroom/dresser, too) set to your height as much as possible -beforehand. Just 'let go' of having a perfectly clean and kept up house and yard for a while, don't even think about it (or hire out). Focus on you, your recovery, and ways to distract yourself from the boredom that comes with recovery. Also, get up and MOVE as much as you can, walk a few strides at first if that's all you can manage, but keep getting up to do the few strides, then add more and do that multiple times during the day, too. Don't push yourself, of course. Just do what you are able to, but keep adding to it as you can. I think dietdrpepper already said that, though. I'm redundant, but it IS a key part to recovery.
My incision is about 4&1/2 inches, not as long, plus the two little dot scars from my drainage tubes. I joke that my back is now in morse code with dots and dashes, lol. I thouht my incision was uuuuugly at first, thick and ropy and soooo red and raw. It's only 3 months since now and it's almost perfectly flat already and a light red or dark pink -not exactly 'pretty', but quite nice for a scar, imo. I started using vitamin E to rub in at about 6 weeks, gently at first. My scar and incision site were very tender for awhile and I didn't like the area touched. It's fine to touch now. OH! My PT told me that deep-heat ultrasound can help break up scar tissue or even help stop it from forming. I get this done once or twice a week in my PT sessions. Oh, and if at all possible, schedule your surgery right after your menstrual cycle, so you wont' have another for as long as possible. Taking care of 'female neeRAB' while recovering from back surgery is as far from delightful as a person can get. There is no way to avoid bending forward to take care of 'certain things' and that hurts! It's also not necessarily something you want a loved one helping you with in the bathroom, so just try to work the date well, if you can. Sorry if that was TMI, but if it helps you, I wanted to suggest it. And, sorry I've been in such a chatty mood.. I get like that sometimes.
Take care, good luck, God bless, and may the force be with you --and your neurosurgeon,
Meghan
 
I'm so sorry you had such a rough time with your surgery. It scares me but I need the information so I can make plans. Having been through several surgeries, I am well prepared as far as knowing my limitations, having a grabber, high toilet, walker, etc.

I am just hoping that these spurs are not going to be bigger than they think. Right now, sitting is very difficult and sometimes near impossible. I just got out of bed and things are quiet at the moment, lol.

I'm glad you are improving well and hope that your recovery is complete soon. It's awful to have our lives so disrupted by pain. Personally, I'm getting worn out and at my age surgery just gets harder. My last surgery was 18 months ago and I bounced back pretty quickly which is amazing. My dr. couldn't believe that I was fusing well at only 6 weeks but I worry about the future because it seems that I am not ever going to be without the fear of more surgery.

Anyway, I appreciate all your suggestions and all the time you took to go over everything with me. Believe me, I read every word and hint and stored them away. I'm real familiar with the "log roll" to get out of bed. In fact, I do that even when I'm not in pain......it's just automatic.

Thanks again.

Carol
 
Patti, thanks for telling me your story. It's never easy, is it? I'm glad your girlfriend is your personal grabber, lol. It's just great that you are doing so well and able to walk like you are. I sure hope I end up with the same outcome. I miss being able to sit at my computer like I used to. I can't even sit in my recliner unless I use 3 pillows and a lurabar cusion and at that it gets painful after a short while. I just want my life back.

Keep on getting better and better.

Carol
 
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