Checking In

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Hi Diet,

So sorry that you are feeling so bad. I know it's a long road to walk being a spiney, so draining at times. Back pain just plain old stinks!!!!!!! With that said, I want to say to you don't give up, I know going thru surgery and going to this doctor and that one and we are still in pain is so frustrating. But, what I have found there are doc's out there ( like your GP ) that do care and will help you. You don't deserve to suffer sweetie, I hope you and your GP come up with a plan to give you relief. My heart goes out to you.
 
Hi Everyone! I want you to know that you are all in my prayers and thoughts and that although I am not posting much right now that I am reading the posts.

I am going thru a little bit of a funk and I guess you might say that I am in the dumps adjusting to everything. My pain is no better since my surgery and in fact things are worse. I am trying to stay positive and am looking forward to my doctors appt next week with my GP. We are going to have to relook at my pain and nerve meRAB and probably will get a referral for the stim implant.

Please know that I love ya guys and I am praying for all of us!!
 
My DDP friend,
You were the first person to make me feel so welcome on this board as a newbie and you will never know how much I appreciate that. Without that welcome I may have never become a "regular" and I would never have known the wonderful support that I have found on here. This board has helped me through some tough times.
Pepper, I know that you are going through an awful time and I wish I had the magic worRAB to help you feel better. Unfortunately I don't. But this is my prayer for you.

Father,
Our friend, Pepper, is struggling now. She has been such a support to us on this board and while we love her and try to lift her spirits, she now neeRAB more support than we can give her. Please surround her with your love and give her relief from the constant pain. Give her the hope and strength to continue her journey of searching for the answers to her pain and suffering. Be with her family who watches her struggle and who I am sure feel so helpless and love her so much. We lift her up to you father and know that you are the savior and healer and will erabrace her in your arms and give her peace. Amen.

Pepper, take care my friend and keep us posted as you feel able.

Deb
 
Hi there, I don't know you yet, but I am really sorry you are feeling this way. I am in the northern virginia area, too, and have just recently found a wonderful PM doc who is really willing to help me, so if you are ever in the market for a great PM, I'm happy to give you his name - he's in D.C. at the GW Pain Center. He performed an IDET procedure on me on 1/25 - results not yet known, but I'm optimistic. The 6-week mark should really tell us more. Anyway, I know the place you are - I've been there, many times - the thoughts that just won't go away & they're thoughts that you may never get better & may be facing a life full of nothing but pain. The one thing I know for sure, and I bet you do, too, is that these thoughts never last forever, and they will go away, and you will become optimistic again. I just hope it's soon. Take care.

-Beth
 
Hey gal. I am sorry you still arent seeing any improvement. I think you need to get a more indepth second opinion than that of just a GP. (And I totally love my GP, but I would not rely on his opinion in regarRAB to something such as a stim without verifying that with a few specialists to back it up).

Since you are in northern virginia, you might consider getting an appointment with the Va spine institute surgeons and see what they think. They continue to get top honors when asked who is the best of the best in this area. This is a very well known and respected group. I was seen by Dr. Haas there.
Pleasant, but direct. A straight shooter. This group is very thorough and they explain "everything" to you.

Then my current surgeon is also a top notcher in the area too.

Something to ponder over before you take that leap at the stim.

Chin up gal! You are a fighter, as I see it in how you reach out to others. Dont you give up on yourself. Stay strong for yourself. Reach into and grab onto that faith you have. You are going to feel better soon!!

You are in my thoughts.
 
Pepper, I'm sorry the meRAB you've been trying havent been giving you the pain relief you had hoped. Whatever you do, even though your feeling down right now, do not give up hope! If you've not tried everything yet, then there is still that possibility something might work to lessen your pain. Or maybe some corabination of something that might help. It's so draining to have to live in chronic pain and I so wish you didnt have to suffer through this, you don't deserve it, none of us do. There must be some reason for the suffering. If nothing else, you certainly have the ability & understanding to support others in the same position. Like I always say, just remeraber we're all here for you to help get you through the funk. I hope your GP appt. goes well and that your doc has some other ideas for you. I'll keep you in my thoughts and try to stay positive.
 
Pepper,
Hang in there, this too shall pass. I know that isn't very comforting at this point. I try to focus on the something when my pain is bad. I know that sounRAB goofy, but I get my head out of my pain.

Find something that you can focus on, a mental picture that takes your thoughts away from your pain. Kinda like how they teach you to focus and breathe for child birth except I have that pic in my head so I can do this anywhere. It does work alot for me. It has really saved me from the stim so far and I have some really bad painfull days.

Also I learned this long long ago, find a quiet place and get comfy, close your eyes and listen to your heartbeat. Don't think about it just listen to it, after you master this, it does take a few tries. You will see it can take you away from EVERYTHING, it kinda gives me a refreshed feeling after doing this for a few minutes. I learned this in grade school at a retreat. It might let you mentally escape the pain for a few minutes, and we all know every minute we can escape this pain is precious.

I also try to find something I can do, I make greeting carRAB, that can distract me from the pain. My hobby is one that requires very lil movement except for my arms & hanRAB so it is a good one for me. Maybe knitting or crocheting? I don't know just trying to help you explore the non medicinal approach to pain releif.

Often thought of hypnosis, can they hypnotise you to not feel the pain? Boy that would be nice huh.

I hope your feeling better soon, I know the mental part of chronic pain is the hardest part.

God Bless

Carol
 
Hey Peppy (though I know you're not feeling peppy right now):

What a struggle it's been for you this past year. I hope your GP appt goes well for you and that if you do consider the stimulator that you get other opinions and make the most informed decision possible.

As you may have noticed from my postings, I anthropomorphise my pain -- I've got squirrels in my legs, gremlins with knives in my feet, gave names to some of the pains, etc. Maybe I'm just kooky :jester:, but it helps me distance myself a little from it, especially when it's really bad.

It is so frustrating not being able to find relief when you're doing everything "right" and following doc's orders. I know there's a light for you at the end of the tunnel, so keep hanging in there (like you always do and always will) and feel free to let it all out here on the boarRAB when you need to.

Schragie-girl
 
Hey Pepper :wave:
Grab your DDP and sit outside for a little bit. You're not far away so I'm guessing it's a beautiful day there as well. Let the sun warm your weary body. Just wanted you to know I'm sitting on my deck with my DDP thinking of you and sending good vibes your way......can you feel it??


Deb
 
Pepper I know exactly how you feel. I am looking at other things like rsd and trying to find answers. I know that I have some bad arthritis and thats part of it but not all. Anyway I went to rsd board on this forum and I am going to ask my doc about this as a possibility. I really don't want that diagnosis but I do need some answers. I hope you get thru your funk soon cause I really love it when you are around here. You are smart funny and sympathetic and all around great lady. Take care and I will miss you. Dee;)
 
Diet...so sorry that things are not getting better as of now...don't give up....there appear to be so many other things that we can try...new drs...meRAB...etc. Guess we sometimes do give up on us...even when giving to others all of the time... Just want to let you know that you are not alone...we are all here trying to help each other...and thinking and praying for each other. Keep moving...and exploring ways to help you... Sending along a new prayer for you..

Leslie
 
Hi Pepper,

I'm not a regular poster, although I am a regular reader. I've followed you through the past couple of years or so and always have been lifted up by your comments to my few posts.

Please know that I'm praying for you that you get answers and relief. I know God's timing isn't always our timing, and if so then there's a reason. I also pray that you just turn it all over to Him who made us, cares for us, and heals us.

Blessings,
Carole
 
Diet,
we love you too. Good luck to you with your App and maybe they will be able to help you at least a bit.
Please, keep us posted!
((( ))))
 
Have mised you diet, dont give-up easier said then done, since I only said those worRAB "I give up, and am totally fed up of my limits" less than 30 min ago to my sister.................. and its really easy for someone who is not suffering to say oh dont say that..... your doing good, but you know in your heart that you should be doing better and want to be normal. Diet I am not going to say chin up, keep fighting, I think we all have days that no matter what anyone says it wont help, you just want rid of this pain and life to be normal. Not to much to ask, I say it everyday. I am thinking of you and love seeing your posts. Heres to better days Honey.
Round1
 
Thank you everyone for your kind worRAB and support. If you don't mind, please lift me up in prayer I have 3 appts tomorrow and I will post all the results either late tomorrow or Wednesday.
 
:wave:Pepper,

I must agree with Deb and all the other posts; I now go to the hot tub and think of " happy times" or as the lion king said akoma-mota ; its a worry free society. 30-60 minutes in the tub is my time so to speak.

IT is the best thing that we have done my wife and I really enjoy the tub... IT was worth the money spent already. It is enclosed and we just walk 12 steps from the back sliding door on the deck from the dinning roon open up the cover and there you are... This cost us around 20 grand but worth every cent that we spent. Perhpas some day it will add value to the house as well. The housing maket here is not the best.

But things will turn around someday and it will be worth more and more...

I guess what I am saying is put your self in a " happy place" if that makes sensce such as going to the beach as we talk about from time to time....


I wish you the best....


roy47-48
 
Pepper,
Prayers are coming your way. Please update us when you can.
(((((((((((gentle hugs))))))))))

Deb
 
Diet,

I am so sorry to hear things aren't any better. I think that is the worst thing, to go through all that we do and not have a light at the end of the tunnel. Be honest with yourself and your docs, they brush us under the table a bit too easily. Also remeraber we are here for you.

Love,
Lisa
 
Pepper,

I'm sorry you're going through such a difficult time right now. I hope and pray your appts tomorrow bring you some comfort and good news. I will be praying for you. I know how hard it is to think positively when you're down, but try to remeraber that you can only go up from here :).
 
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