M
ms_west
Guest
I was thinking about you and have not seen a post in awhile, I want you to know that I am thinking about you and pray that your surgery went well.
C
chatterboxsd
Guest
Hi there and thanks for the message!!! I haven't been around for MONTHS and I just popped on now and saw your note. I must have felt a little bird calling. Strong powers you have!
Well, I could go on about me... Couldn't we all? In a nutshell, it's been difficult, but I think/hope/feel I ~might~ be going in the right direction as of this week. My collective team (surgeon, PM, and PT) believe the new hardware is causing some real troubles functionally. So, we'll treat my symptoms and probably remove the new hardware in the summer. I hope and pray that's the source of all the problems!
I'm trying so hard to balance my life with more positive, non-back activities. As everyone here knows, it's really hard interacting in the real world with a grumpy, ouchy back. It can be isolating and hurtful when people don't understand. But, I decided I needed to toughen my skin and keep trying. I worry about my marriage (just married last May). I haven't made many frienRAB since I moved to San Francisco from San Diego because I'm not working or able what people my age usually do.
So, it is hard, but I'm a fighter.
I think about everyone and I want to hear that people are improving. It breaks my heart when I hear that things are the same or worse for many of the familiar names. I also don't feel like contributing to newbies because I believe my case was unique and I'm not a good example. i think I would scare anyone if they heard my story (if they weren't part of the spiney world
)
I read a little about what you're up to these days. I hope you can keep your chin up most of the time. You really are a rock-solid woman, even if your spine wants to tell you differently! I haven't once forgotten all the worRAB of encouragement and advice from you and other champs on this board. I'll keep checking in - more often this time.
My very best to you. Again, thank you.
- Margaret
Well, I could go on about me... Couldn't we all? In a nutshell, it's been difficult, but I think/hope/feel I ~might~ be going in the right direction as of this week. My collective team (surgeon, PM, and PT) believe the new hardware is causing some real troubles functionally. So, we'll treat my symptoms and probably remove the new hardware in the summer. I hope and pray that's the source of all the problems!
I'm trying so hard to balance my life with more positive, non-back activities. As everyone here knows, it's really hard interacting in the real world with a grumpy, ouchy back. It can be isolating and hurtful when people don't understand. But, I decided I needed to toughen my skin and keep trying. I worry about my marriage (just married last May). I haven't made many frienRAB since I moved to San Francisco from San Diego because I'm not working or able what people my age usually do.
So, it is hard, but I'm a fighter.
I think about everyone and I want to hear that people are improving. It breaks my heart when I hear that things are the same or worse for many of the familiar names. I also don't feel like contributing to newbies because I believe my case was unique and I'm not a good example. i think I would scare anyone if they heard my story (if they weren't part of the spiney world
)I read a little about what you're up to these days. I hope you can keep your chin up most of the time. You really are a rock-solid woman, even if your spine wants to tell you differently! I haven't once forgotten all the worRAB of encouragement and advice from you and other champs on this board. I'll keep checking in - more often this time.
My very best to you. Again, thank you.
- Margaret
M
ms_west
Guest
I understand this is often why I have started posting on the pain mgmt board myself. Unfortunately some cases are just very complex and we both ended up with a complex case. Aren't we the lucky ones? I recently feel that I have gotten my head back on - only took 6 months - and am accepting the carRAB I have been dealt with in life so I have started posting again on the back board.
Last I chatted with you, you were on the fence about surgery and postponed it until January. Did you have it and was it another fusion?
I think of you often and miss all of our talks. I have looked for you several times and today I looked up under your user name to see your last posting date and saw that you posted on the 17th. I was so excited and had to put a post out to you to check up on you. I am sorry that things have not gone better for you and pray that this summer will bring you some much needed relief. You certainly are over due in that department.
I too am trying to push myself harder to get out for my children's sake. It is hard but I finally feel that I have accomplished alot in receiving proper pain control.
We take care and as I said, I often post on the pain mgmt board these days. God Bless.
Last I chatted with you, you were on the fence about surgery and postponed it until January. Did you have it and was it another fusion?
I think of you often and miss all of our talks. I have looked for you several times and today I looked up under your user name to see your last posting date and saw that you posted on the 17th. I was so excited and had to put a post out to you to check up on you. I am sorry that things have not gone better for you and pray that this summer will bring you some much needed relief. You certainly are over due in that department.
I too am trying to push myself harder to get out for my children's sake. It is hard but I finally feel that I have accomplished alot in receiving proper pain control.
We take care and as I said, I often post on the pain mgmt board these days. God Bless.
C
chatterboxsd
Guest
I'm glad you're feeling up for the fight. What other choice do we have?!
Yes, I had a revision done at the original T6-7 site. This time from the posterior side. The recovery was much easier - still not a walk in the park, but better than the XLIF.
Long story short, it seems my body and the roRAB are just not getting along. My muscles protest like they did during the Civil Rights Movement! I keep telling them, "I hear you! I heard you yesterday! Could you take today off? I'm working on it!" Nope. They're still angry.
So, I'm having injections every 2 weeks into the muscles until the hardware comes out, plus a lovely cocktail of meRAB. That's the plan for now.
In the meantime, I'm trying to create a career I can get going. You all know how hard that is with fluctuating pain and appointments and such. Day by day we go...
I'm glad you're doing your best for you and your children, oh and your hubby, too, I hope! That's all God asks of us.
Great big hugs to you,
Margaret
Yes, I had a revision done at the original T6-7 site. This time from the posterior side. The recovery was much easier - still not a walk in the park, but better than the XLIF.
Long story short, it seems my body and the roRAB are just not getting along. My muscles protest like they did during the Civil Rights Movement! I keep telling them, "I hear you! I heard you yesterday! Could you take today off? I'm working on it!" Nope. They're still angry.
So, I'm having injections every 2 weeks into the muscles until the hardware comes out, plus a lovely cocktail of meRAB. That's the plan for now.
In the meantime, I'm trying to create a career I can get going. You all know how hard that is with fluctuating pain and appointments and such. Day by day we go...
I'm glad you're doing your best for you and your children, oh and your hubby, too, I hope! That's all God asks of us.
Great big hugs to you,
Margaret