Princess Bondoc
New member
First off, I know you aren't doctors... We're looking for any information about anyone who may have and these kind of symptoms or any direction to turn or advice on what to do. Even other websites - like more medical ones that questions can be asked... She has had this on and off for 4 years but this is the worst it's ever been...
She keeps getting turned away at emergency and doctors cause tests come up normal or when in hospital on IV saline solution – she got better and was released – but then when home got worse, way worse...
She is trying again to get referred to a neurologist but she can’t make it into the doctors (too weak)...
The following are some of the symptoms....
feels like her central nervous system is drying up
on her tailbone – there is a triangle red spot- burning
bleeding from vagina & in urine & stool – comes out in globs
feels like it's sucking moisture out of body
pain goes up the spine around into her face and burns everywhere
eyes & ears giving off a white waxy flaking stuff
stomach & internal organs – dry can taste blood
can eat a little- doesn’t digest – really hungry
hands crumpling up- atrophying
insides feel like they are pulling up towards her chest
feels like nails being driven into her skin
left arm – and fingers numb
very weak- losing weight (very very small to begin with)
talking / crying anything makes it worse and burns
any idea's / suggestions at all???
She keeps getting turned away at emergency and doctors cause tests come up normal or when in hospital on IV saline solution – she got better and was released – but then when home got worse, way worse...
She is trying again to get referred to a neurologist but she can’t make it into the doctors (too weak)...
The following are some of the symptoms....
feels like her central nervous system is drying up
on her tailbone – there is a triangle red spot- burning
bleeding from vagina & in urine & stool – comes out in globs
feels like it's sucking moisture out of body
pain goes up the spine around into her face and burns everywhere
eyes & ears giving off a white waxy flaking stuff
stomach & internal organs – dry can taste blood
can eat a little- doesn’t digest – really hungry
hands crumpling up- atrophying
insides feel like they are pulling up towards her chest
feels like nails being driven into her skin
left arm – and fingers numb
very weak- losing weight (very very small to begin with)
talking / crying anything makes it worse and burns
any idea's / suggestions at all???