And I am back...(long, but please advise)

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mishl.kari

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Hi everyone. I was here several years ago, and now I am back. A short history ---

Serious car accident in 2001 leading to a fusion at L3-L5. The fusion failed, and was redone with new hardware in 2003... The pain NEVER got any better, so after lots of epidurals, drugs, physical therapy - etc... I was approved for a SCS stim. It was installed Dec 05. I had great results and until Jan 09 I was active and down to taking a few vicodin a day -- it was GREAT. Latest X-rays/CT showed stenosis from T-levels down and arthritis, nothing glaringly bad according to the doctors - But boy does it hurt =( My diagnosis is "failed back syndrome".

In January my stim seemed to act erratically, it was determined that I had broken all but 1 lead and was not getting relief.

In July they replaced the stim in its entirety (it is a Medtronic Restore - same as before).

Currently, my pain level starts about a 7 when I wake up, and then varies 5-7 until mid-afternoon when it peaks at around an 8/9. I teach elementary school, and am a single mom.

The pain is higher than anytime I remeraber and I am so frustrated and tired. I am currently back under the pain dr's care and am on Oxycodone IR 5mg/4 hrs. Its not cutting it. Not even close. I have met with the Medtronics rep, who has tried re-programing to no avail - I feel it buzzing but its not doing much to help, I am 2 months post op - why isn't this helping this time??

I am debating using a cane as pain in my right leg and hip is making walking almost impossible - will that help? Someone who uses a cane for pain - is it helpful?

I need to ask my dr about increasing meRAB - in the past (pre stim in 05) I was on Fentenyl patches -- before that Oxyxontin ext release.

My pain Dr seems very reluctant to let me have anything stronger than what I am on. Any suggestions to help? I tried facet joint injections at his suggestion a few weeks ago - I had 3 days of big improvement then it got even WORSE - not eager to do that again.

I know I am rarabling - thanks for reading this far and any suggestions. I feel like I am loosing my mine - I feel alone and frustrated and like giving up. The pain is knocking me out.

Thank you for any suggestions and advice.

Michelle
 
Michelle, I am new and trying to learn the terminology...what is a stim?
(Sorry for my ignorance..thanks)
 
Michelle:

I know with the Spinal Cord Stimulator in that doing an MRI is not possible - but if the unit is no longer effective and you have it removed I think you'd be well served to get an MRI. You could have some further or different kind of spinal problems.

Is your pain any different with the stim off? If it's the same, off or on, then you've run into a real roadblock.
 
Michelle, have they done a CT scan or myleogram?

I am lifting you up in prayer and hope that you find some relief soon.
 
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