7 months Post Op 2 level PLIF update

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NLena

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Hello all my fellow Backfolks,
For those who havent followed my story I am updating a sort of week to month update. I am a 55 year young lady who had a laminectomy L4 and L5 in 07 (unsuccessful) and a year later I am now 7 months out from the 2 level plif L4 L5 S1. Before and even between the surgerys I did everything humanly possible to avoid it...2 series of 12 weeks 3X a week PT, 6 series of epidural injections, a ryzotomy (burning the nerve-cauterization) and a racz catheter, the single most painful experience in my life, and I have had 3 children so that tells you something about that....All mostly worthless as to my constant intractable back and leg pain. I have been on pain medications of mostly norco (a vicodin and tylenol mix) of various strengths for now, going on 3 years...a short course of lyrica (did not agree with me) the last surgery was hopefully going to make meRAB unnecessary...so far...not yet.
So back to the present....Ill start with the good news. I have zero pain in either of my legs, Zero pain in my left heel and no mysterious come and go pains in my toes. BIG YAY. Before the surgery walking was painful, my heel I could not put weight on at all...for this gift of pain free I am grateful. I get up in the morning and feel pain free totally..stiff a bit but actually pain free..this is only not the case when it is raining and cold...I feel like the old lady on the porch saying she can feel a storm coming in her rumatiz. But it is true as can be..if it is raining no morning feel good. I walk a mile nearly every day at a good enough pace.. to be breathy if I have to talk..another improvement. All over, I move more smoothly, I get in and out of my SUV without pain. The little Saturn is another issue as it is much lower and although not painful to get in and out of very uncomfortable and slow for me to do so. Incision looks like a red line but no issues there, and I can recall not too long ago the morning shower and hair routine would have me down on my back following for sometimes a half hour with exhaustion...no more..its just part of my day now.
The update would not be complete without the bad news. I have good days and bad. I have pain in the back area still... after about 3 hours upright I will need meRAB because I hurt. I still cannot sit for over 30 minutes without having to either get up and walk or lay flat, and this frankly limits my life obviously. To pick something up from the ground is still hard but I can do it and I do but very slowly and awkwardly. And the meRAB the meRAB. To sleep I take a valium and a 7.5/350 norco or I will wake after a few hours in pain. So I am down to about 3 a day which is a vast improvement (needing less and less strength norco) but not able to go without. I want to be able to sit upright for at least a few hours to work rather than doing my job basically on a lap top laying down..it makes for more getting up and down to accomplish what would be much easier if I were only steps away from what I need. I struggle with depression over my condition because my grown children live plane rides away which I could never tolerate at least at this time..so in some ways I am back to where I was previous to the fusion...I try very hard to think positive and believe the doctor saying it might take up to 12 months or more to completely fuse and heal...yet I have days where I fear that I am where I am and will not improve...Please make this a wrong thought and sometimes I can believe it..sometimes not. All I can say in conclusion is that I am improved from the surgery but not all the way pain free or med free which was my goal to begin with..I ask the Lord for patience and thank all of you here for your support and interest. I read posts here every day and wish you all the best in your efforts to live a better life
God Bless
Lena:wave:
 
Hello,

your story reminRAB me so much of my mother one's...

She had laminectomy and foraminotomy in 2007. From that day our lives are terrible. She can't walk, sit or lie in bed for more than 10 minutes. She did not slept well for aprox. 2 years time.

Your story is similar in another way - she was recommended a spine fusion 6 months ago. I didn't allowed her to fuse, and I found her best neurosurgeon in the area, who made another surgery, but she is still feeling pretty bad, as she has disc tear (HIZ).

I am bearing with you, and wish you good luck and all best with your recovery.
 
Thank you K, I am holding your Moms' hand and giving it a friendly squeeze....and yours too, if you are the care giver. I took care of my Mother for 30 years. Caregivers and frankly Daughters are a blessing!..Holding both of you in my thoughts
Lena
 
Hi Lena,
Always good to hear from you. I am 6 months out this week from a L4-L5 fusion and having very similar issues that you are having. I still find that if I try to go to sleep without pain meRAB that I wake up an hour or so later and miserable. Not nerve pain but just a deep seated ache in my lurabar area that drives me crazy and I have to get up and take something or lie there all night tossing and turning. Still having problems sitting for perioRAB of time. In order to watch an hour long program on TV I have to stand after about 30 minutes (kind of like a seventh inning stretch I guess!) But, I am much improved from pre-op as I do have no weakness in my legs and the bladder incontinence and foot drop are a thing of the past.....yeah!! So I still consider myself a back surgery success story at this point.

I did just fly 2000 miles to visit family. I flew half way in an aisle seat and got up and walked to the rest room every 30 minutes (whether I needed to or not just to get up and move). Then during the layover in Houston I walked, walked, and walked so that when I got back on for the last leg of the trip my back was ready to sit for a while. Of course I had my poly pharmacy with me just in case but only had to take something at night. Don't give up on travel. Maybe just plan a short flight in the near future and see how you do. Just remeraber to get an aisle seat so you can get up without difficulty.

I was 55 also when I had this done (just turned 56 this month). The depression part of this has been very difficult for me and my SO to deal with as I had to quit a job I had just started when this occurred. So, at my age I am looking for a job in this horrible economy. I have a job that is considered recession proof but I am still having difficulty getting an interview. I'm pretty sure age discrimination is out there regardless of any laws on the books to protect one from it!!

It sounRAB as if you are on a similar recovery track but I know how you feel about the recovery time. This certainly wasn't the "just three months out of your life" that the neurosurgeon estimated for a recovery. But, considering the shape I was in prior to the OR I have to be content with where I am currently. I'll keep you in my thoughts and wish you the best of times in the future. Jan
 
Hi Lena,
Don't despair! At 7 months, you can still expect improvement. I was still seeing improvement even at the year mark. It takes such a long time to fuse, and generally we've been less active for a while because of pain, so once we can actually start doing things again, albeit carefully, it takes a long time to get everything working right.

You may have to accept that you'll have some pain at times. Try to think positive and remeraber where you've come from. I have a 14 levels fusion, and pain-free was never even on my radar, so I'm thrilled to be as improved as I am and to have a doctor who is happy to keep me stocked with Vicodin. I count my blessings, and re-count as needed! :D

I hope as time goes on that you'll be able to sit longer and longer. There are some little tricks that can help. Sitting on as high a seat as possible helps, and tucking your feet under takes pressure off your lower back. I have an office type chair that my kiRAB chipped in for after my fusion. I went to three different office supply stores and sat in every office chair they had. Some were awful, but some were not bad at all. Having arms on the chair and being able to swivel to change where the pressure is on your back helps a lot. And I have a heating pad plugged in with an extension cord so I can use it in my nifty office chair. My chair gets pushed around the house, too. My husband puts it in the living room for me so I can actually watch a show with the family. I usually watch TV lying down upstairs. You'll find little ways to adjust.

But for now, don't lose hope. You still have more healing to do, especially if nerves are involved. Hang in there!!! And thanks for the update!

Blessings,
Emily :wave:
 
Hi Lena!
SounRAB very good and I can relate to the back pain for sure, I am almost 2 months post op L4-5 Fusion. I too get that bad back pain at night, and/or wake with it on my own no matter what- I think I'll be stuck with that and even thou I can MOVE now, and walk, and drive, which is much more than I expected or could do 9 months ago, I am hoping over time the back pain will subside some more.

Are you fusing? Does your dr see bone growth when you go?? When/if did you start to?

I am glad you are doing so well even if it's not back to 100 anything is better than post op conditions!! Chin up and know you still have some time on your side to let your back ease up even more than it has, you are a success story :)

Take care
 
Thank you Rose for your support, at 6 weeks visit the Dr's nurse said she saw tiny threaRAB of fusion beginning, at 13 weeks the Dr pointed out the fusion on either side of my L4 L5 and said there it is. I asked him if that meant I was fused...as I could only see slightly lightened areas where he was pointing and he said its the fusion at the beginning and removed all my restrictions with the warning.."be intelligent here" you cannot break this but you can aggravate it. Your life of turning over 60 feet of Michigan clay in your garden is OVER (Im a crazy avid gardener) but told me movement is good, dont overdo it...it might take over a year or so to actually do a complete fusion..but its there right now...So what exactly that means Im not sure..accept he seemed happy at that point and I do not see him again (unless there is something unusual) till august. Rose please pray or wish for patience. I am not a patient person and it causes me grief everyday Im not just healed and done with it...remeraber you are trying to grow bone..that does not move fast and you are early early in your recovery. SounRAB like you are doing great with moving around...keep at it..listen to your pain levels and dont push too hard. Its too slow I know it..but it will come...I promise...big warm hug
Lena
 
Uh I'm up and it's 2:16 am. JOY :o Like I said- I CAN RELATE ON THE BACK PAIN! Wow at SIX WEEKS! I got an xray at 6 weeks but he didn't say anything, I go in another 3? weeks that will be my 9l/10 week post op visit, I'm 7 weeks now exactly.

Patience, OHH I wish I had patience, I had 2 surgeries 5 months apart, the 2nd was a fusion. My SO yelled at me today for what I try to do, and how I am trying to move or help out with things, and said you may be feeling better but you still got alot of healing to do knock it off and take it easy!! It's just sooo hard.

I got a pedicure today, after being unable to reach my feet for 7 of the 9 months since my injury, it was heaven HEAVEN!! They even massaged my feet which I cant do whatso ever for 9 months! I was loving it. My feet were so gross lol SO my goal is to save money every few weeks and get pedicures now, little goal, not so easy but, I'm going to do it. And no pushing, pulling or lifting involved to get me there or to do it!!

I usedto LOVE gardening, I moved, (divorced) so I have no yard or freedom here to do it, I had tons of flowers and plants and bushes, and I attracted birRAB to my yard too, I love bird watching. I'm going to do that now too, with my camera and just take it day by day, luckily my 'have to walk' time is spring and the summer, if I would of had surgery in the winter I'd of died, I hate the cold, so, things are looking up for me, or rather I'm trying to take the good in all this.

take care, that's great you showed fusing so early! I am going to start aquatherapy possibly in a month as I'm deconditioned from being bedridden except to drag my leg to the bathroom for 7 months. I'm looking foward to it.
:) Chin up! You have alot of time to feel better, I spoke to a woman on another message board who told me, if someone would have told me at a YEAR I'd still be healing I'd of told them they were NUTS. LOL SOOO NOW I know its REALLY a LONG HAUL!! Take Care.
 
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