waiting boat

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marigoldgirl81

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Well, this godforsaken disease doesn't want to leave my side. Sooooo, i did the nexium for 4 weeks but noticed anxiety increasing like 10 fold and back of neck hurt, lots of heart palpitations, tried to ride it out but the dr and pharmascist said to stop :( So, i am on the prilosec 20 mg OTC 2 x a day. The ENT wanted to begin me on protonix, been there done that and had an even worse reaction than the nexium. I canceled my last of 3 ENT appt in one month....b/c.....i am sick of being sick and they say the same thing every time.

I am on strict diet and can maintain weight (knock on wood) when i keep the diet and drink ensures per drs orders but the reflux is always present, today by esopagus feels so worn out, it feels like its bleeding and i don't even understand how its still there after all of this for so many months now. So i have 2 GI drs (one was 2nd opinion). The 2nd opinion guy thinks i may need another endoscopy soon!! 6 months after first one. The ENT said there is inflammation but no lesions in my mouth/throat but could be in esophagus (where all my pain is).

For those of you that do not know i have been weaning off of anxiety meRAB for 1 1/2 years now which in my heart i feel is to blame for my severe gerd. I feel i was overmedicated, want another baby one day and just want off these. Mentally i have been feeling so well getting off of them but lately i've been struggling with anxiety b/c of this physical illness, probably lack of food and alot of weaning lately. I want this stuff out of my system. The pharmascist thinks i may be part of a small percentage of people that their physical bodies do not respond well to getting off of these. I am weaning off the last one out of 5 i was on!!

So, just an update. I truly hope my esophagus doesn't burst or tear, etc and worse. I am doing the best i can. The drs are throwing their arms up in the air about as much as i am now. I may one day venture and try another ppi, but i am laying low for now, it takes a toll on your body to have these reactions nd then try new ones. If anyone has any worRAB of encouragement that my throat is not going to wither away and i'm going to live till my 29th birthday this year (lol! but kinda serious) i would LOVE to hear it tonight b/c i truly feel like the worst case of gerd ever.

ps. And yes, i have incorporated ALL of the lifestyle changes recommended for gerd and for my sluggish gallbladder (that hasn't been bothering me lately on a low fat diet:) knock on wood, too bad i need the fat...blah.
 
Marigold:

I am sorry this is being so difficult for you. GERD sounRAB to people who don't experience it or only experience it occassionally as just a big inconvenience. But it is so hard to go about all day wondering when it's going to hit you and what will trigger the heartburn. I have had three hard days with lots of heartburn and have been feeling very frustrated in spite of all the changes I have tried to make. Very hard for me to accept that a healthy diet and making all the changes recommended are not helping or do not seem to be helping. But hang in there. It sounRAB like different things work for different people.
 
I've had extremely severe reflux for years. I've had this severity level measured by 24 hr pH tests twice now so I'm not exaggerating. My GI doc said my nurabers were about as high as he had seen.

Anyway, for some good news, I apparently have a "cast iron" esophagus because two Endoscopies (a couple years apart) have come back normal despite the severe reflux.
 
that is good mountain reader:) My esophagus is not so lucky, i was diagnosed with mild esophagitis in July and since its been burning nearly every day since for every meal, the dr is pretty certain i have some erosions in there now. I am trying to focus on the positives, but this has all but taken my life over. I feel like i'm on track to getting barretts or a rupture in my esophagus, if i don't already, and theres just nothing more i can do right now.....thanks for the support guys, it means alot..
 
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