Tired Of Pain

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scrappinmaniac

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Hang in there Jerris. If you think something isn't right with your body, then something probably isn't. We know our bodies better than anyone else, so we would know. I have experienced that. For 7 mths after my fusion surgery I told my Neuro how much pain I was having in my back between my shoulder blades, I told him I thought something was wrong with some of my thoracic discs, well, he didn't listen but my PM did and guess what? I was right. So, keep telling your doctors until one of them listen to you. Maybe your hardware, used during your fusion, is causing your pain and neeRAB removed.

I have to agree with you about doctors, I think a large percentage of them don't care.

I really do think the burning pain you describe sounRAB like nerve pain. Have you discussed this kind of pain with your doctor? If so, what does your doctor offer to do to help alleviate it?

Try to hang in there until the 14th. When you see your doctor on the 14th let him know that your pain is out of control and he neeRAB to either increase your meRAB or switch your meRAB.

Take care,
Scrappin'
 
:(Hi every one I thought that I would let every one know that I am going to the Dr. tomorow and am gona ask about topomax for my neuro Pain . I am also gonna ask if there is anything that he can do about the way I don't get sleep . I will be so glad when that MRI is done the 29th of this month . Maybe they will figure out what is causing me so much Pain :mad: Dr's huh it seems that after 3 years that they would figure out what is causing so much PAIN. You would think that they would figure that a PERSON WOULD GO CRAZY being in pain every day all day long for that long with no relief. I am so close to losing it you wouldn't believe!!! I am so glad I found this WEB site and that there are people out there that understand . I want to thank every one for answering my thread and letting me vent . Thank every one so much !!!!:(
 
Pain is hard to live with everyday . I too suffer from chronic pain ..Chronic pain I say ? Something has to be wrong to have pain , it just doesn't hurt for any reason . I hope your MRI shows the reason for your pain . I must admitt your on some heavy meRAB , all I was getting was Norco ( hydrocodone)
10 MG 3 times a day ..It helped but little ..

If I were you , I would try to relax and not do to much until you find out the reason for your pain . I also have a failed fusion but I can't see why it would cause pain . I did however find out the hardware is causing me pain but it can't be removed .. I know you have diabetes and the injections help , but can you have more injections soon ? From what I understand the sterioRAB do something to your blood sugar right ? Sorry your in so much pain and hope they find your source of pain soon .

Try to take it easy please , you'll learn not to over due things , I still have to watch what I do or pay dearly ..

Shawley
 
Jerris, I think alot of these doctors are just like robots. I like where I go for pain management but it is like a factory. They herd you in like cattle. They charge $5,000 to the insurance for a 10 minute shot if that long. They did make me feel a little strange when they asked me how the shots worked and I said they didn't. They looked at me like I was lying. Then I had to ask for a refill on the Oxycodone. I also asked for a higher dose because I was taking 5mg and they were not doing anything. My prescription for over a year was one every 12 hours. Some days I would take one per day or 5 per day. So she said to take every 4-6 hours. So last time I asked for a higher dose. So they gave me 10mg. They tell me to take every 4-6 hours before the pain starts. That makes no sense to me so I only took if in pain. This time I asked about changing the Lyrica. The dr. said he could do that and was very nice. The other dr. gave me a strange look. Maybe I am paranoid. I wanted to stand up and scream at all the people in the O.R. that I was the one that requested pain management because I wanted off the pain meRAB. It was not because my dr. wanted me off them. He was content to keep refilling. I felt the Lyrica was causing swelling and weight gain. My Neurologist increases it to six 75mg pills per day. He tells me to talk to the pain managment people. What happened to the old days where you went to one doctor and they did it all? I read the Topomax was for migraines too. I guess it is used for nerve pain too. I guess a migrane is really nerve pain when you think about it. Not sure. I will let you know how it works once I get it. Sorry you had to deal with the idiots at the dr. Give them a day in our pain and there would be changes.
 
I don't know about any one else but I'm tired of pain! I have had failed spinal fusion at L4, L5 , and sacrum. I am in constant PAIN! If I do house work of any kind my Back starts hurting and it heats up like its on fire. If I walk 500 ft {example} my back feels like it is on fire an starts hurting so bad that my legs will shake then I feel like my legs are going to buckle under neath me . When I go to th grocery store am in tears before I'm through! I take 200 mg of MS Contin 3 times a day, 30 mg of Roxicodone 4 times a day 6mg tizanadene 3 times a day for muscle spasms . :( Also when I try to sleep at night waking up every 1 to 2 hours in so much pain that i can't get comfortable , when lying on the right or left side makes no difference. The only thing that I can think of is that its nerve pain steroiRAB help But having type 2 diabetes all that done was run my sugar up, tried neorontin , lyrica, antiflamitory one after a nother . I am scheduled for another MRI the end of Jan. I hope that they schedule me to see a neurosurgen or do something soon! Does any one else have a sugestion of a medicine or treatment that I can suggest to my pain DR. to help relieve me of some of my PAIN PLEASE!!!:(:(:(
 
I think I can speak for just about everyone here when I say yes, of course, we are all tired of pain.

Who is this "they" that you want to schedule you to see a neurosurgeon? Does that mean you don't have a surgeon at this point? Because of course, that's exactly what you need to do.....see a spine specialist and have another MRI and see what is going on and what, if anything, can be done to help you. There is another kind of spine specialist you might consider and that is an Orthopedic Spine Specialist. That would be an ortho with intense training in neurosurgery and he limits his practice to the spine only. I, personally, have found them easier to work with than the ns. Just my opinion, of course.

Other than neurontin and Lyrica, you could try Cyrabalta or topomax for the nerve pain and it's something you need to discusss with the doctor.

I'm sure you could get more help if you posted more about your situation tho the board is always slower on weekenRAB. You may get more responses later in the weekend.

Carol
 
Jerris,
we all can relate to you regarding pain and leaving in pain every day.
One thing I can tell you for sure: my first fusion failed too and I could not walk/seat or stand more than 10 min at the time. I could not do much at all and learned not to push otherwise I had to pay a big price.
Pushing yourself to do things our bodies can't do - meaning damaging your problems even more.
I went through many DR until I got lucky and found excellent PM Dr at HSS in NYC. He does not believe being on meRAB for a prolong time. He designs "meRAB coctail" for your condition only. And if in a month your are not getting better, he changes it and tries something else.
I was on Neurontin for a year and told him that in the beginning helped me, than stopped, he was suprised that previous DR did not take me off it. He changed to Keppra and it worked for me for a good 6 month, than he changed again.
I believe that if you are on your meRAB for too long, your body adjusts to meRAB and doses and they have to be changed. That is why you need a GOOD PM, who really cares for you.
Just because certain meRAB help me, not nesserarily it will work for you - that is why a good DR will be able to help you only.
And try to take care of yourself: always remeraber that mind and body work together; meditation, relaxation tapes, positive thinking, trying to find happines in everything helps with pain tremendously.
It took me a great deal of learning and researching from a big "guru" in this field to realize that help for us, CP patients, can't come just from meRAB and DRs, we can be a big part of helping ourselves too. Good luck to you, sweet heart, I hope you will find answers for yourself...:angel:
 
I am tired of pain too. I just got back from the grocery and both of my legs feel like they are on fire and low baCK AND NECK ARE KILLING ME. i HAVE HAD CERVICAL FUSION AND LUrabAR FUSION AND A WHOLE BUNCH of shots and prolothearpy. I guess I just have to live with it. I do think that this Indiana weather makes it worse. Well thanks for letting me vent and I hope you find answers soon. Dee
P>S> sorry about the caps
 
Hi there! I am so sorry you are dealing with doctors who are not being compassionate. I think we all have dealt with a few in our journey of spinal pain and I pray that soon you will find that compassionate doctor who really listens to you and provides you the help you so deserve.

I highly recommend that you look for a new docor and let someone fresh look at your overall case. Make sure that they are a spinal surgeon (an orthopedic with an additional period of training usually 2 years or more in spinal surgery).

Collect all of your current recorRAB and take them to this new doctor. If your old doctor questions it simply explain that you appreciate their excellent care; however, since you continue to have pain that you would like a brand new set of eyes to look over your case. I recommend that you simply do not burn your bridges because you may need them later on for one reason or another.

I so understand about fighting to go on cyrabalta or topomax with my surgeon. He absolutely refused to let me try them because he had no experience with the medication. I ended up going to my GP and explaining that I really liked my surgeon; however, I was beginning to sense his frustration with my case because I was not getting better and that he was making me frustrated. I explained about my unrelenting nerve pain and that we had tried the typical lyrica, elevil, palemor, neurotin, etc and had reactions or they simply did zilch for me.

I told him about reading up on nerve pain meRAB and that I found these two meRAB and was wondering if he would feel comfortable perscribing them because I really wanted to reduce my meRAB and get off them if possible and I was willing to try anything to find some relief. He agreed to research it and the next day my gp prescribed it. Yahoo!!

You might also try talking in detail with your family doctor and ask him for help and guidance about what he would do with your overall case if you were a family meraber. Tell him you are desperate for help and becoming very frustrated - all you want to do is find some relief.

Good luck and keep posting!!
 
:mad:Well every one how have ya been I had my MRI the 29 of Jan. and I go for the results this wednesday 2-13-08. Lets hope that they found somthing with all this matter My psych. and I discussed the cyrabalta for the nerve pain and she said it might work and it might not she will increase the dosage when I return and so far I sorta feel like it may be helping with the nerve pain and the feeling is a little different but my back stays so sore at the surgery site that even I can't touch it at times but I am still trying to deal with it. I am so depressed today that it's unreal it's so cold out this time of year that it seems that to get out of bed would be a chore. I will be so glad when it gets warm again . I want to go fishing or just get out of the house 'm going stir crazy well guess I'll go let you know how the MRI went this week .Jerris:mad: Prayers be with us every day:angel:
 
Jerris, my heart and prayers go out to you! I pray that the MRI will reveal "something" that is causing your severe pain and that it will be treatable. Please keep us all updated about your condition!
 
Hi Jerris,

Welcome to the boarRAB. I think you'll find your own little piece of home on this board and also over on the pain mgmt board. There are many wonderful, knowledgeable people here. Don't be afraid to post anytime day or night, there's usually someone logged on at all times, even if you just need to vent, we understand :).

I would like to say that I'm so tired of pain too :mad:. It gets old, doesn't it? What our frienRAB and family and even our doctors don't understand is that pain has stopped our lives. We can't live a normal life with chronic pain.

Are you currently seeing a PM (pain mgmt) doctor? Is he the doctor prescribing your meRAB? Have you been on the same doses of your pain meRAB for a while now? It could be that your body has simply built up a tolerance to your current doses, maybe your doctor just neeRAB to up your meRAB. When is your next appt?

It does also sound like you're having some severe nerve pain. Have you tried Topamax? I've been taking it for 3 mths now and I love it. I've tried neurontin and lyrica previously. For the first 6 wks Topamax made me feel "durab" (apparently topamax affects your frontal lobe in your brain) but since my body has adjusted to it, I feel fine. The great side effect to Topamax is weight loss. It kills your appetite. I've lost almost 30 lbs without effort. I would recommend that you talk to your doctor about trying Topamax to see if it's for you.

I'm a victim of "failed fusion syndrome" too. What a nice club to be forced into, hun? Lol. Sometimes you have to laugh, otherwise you'd cry. The other day I was watching an Extreme Makeover, Home Edition episode from October and this 8 yr old little girl had cancer and every evening, even when she was vomiting from having chemo, she would take teddy bears to other sick kiRAB at her local hospital. That day I was really down b/c I was having a bad pain day and after watching that show, I realized I'd rather have chronic pain than battle cancer. If that little girl could fight cancer, I can fight chronic pain. My battle is nothing compared to hers. It definately gave me a new perspective on my back/pain problems.

Have you tried using a heating pad on your back? I LOVE my heating pad. There's nothing like scorching my back pain away. I turn it up full blast and burn my back until I can't take the heat anymore, literally. I know no doctor would say that's healthy but we all have to figure out what makes our own pain better and my heating pad is my saving grace :D.

Please keep us updated on how you're doing. I sincerely wish you the best. Take care.
 
scrappy thank youi for your concern . My next app. is the 14 of this month ,yes been the same meRAB for over 1 year. I want to try the topamax but afraid of the side effects am gonna ask my dr about the 14 do I really need to lose some weight I gained about 40 lbs when I quit smoking they said that was what cuased part of my pain and wouldn't consider to operate again when all along I have been trying to tell them something wasn't right. yes I'll keep in touch Its nice to have some one who understanRAB . Sometimes I think the drs really just don't CARE.
 
Jerris,
I am so sorry that you are in so much pain. Most of us are right there with you. Chronic pain sucks and impacts your life in every area. Until you have your MRI can you call the doctor who prescribes your meRAB and get him/her to up them so you can get some relief? You can't suffer this way until the end of the month! This is a great board with many knowledgeable, caring people. Come here to vent and ask for advice. We care, please keep us updated.

Deb
 
Well here it is the 29 day of April and MY Pain mgmt Dr has not even recieved the results of my MRI in Jan they ask me if I would mind getting it before my next visit so just how helpful do you think they are gonna be ????? So I have gotten an appointment with my primary tomarrow to talk about seeing a Neuro specialist to find out if that is the problem, I am so tired of this pain that it makes me sick to my stomach !!:mad::mad::mad:I just hope the primary sees my point of view of the little help my pain spec. is so maybe I'll get some help , If that don't work I want to see the ortho that done the surgery so that I throw it back in his face the smoking was not the problem because I quit the 8th day of July in 2007 !!!! Keep hopes up and prayers going for every one !!!Jerris
 
Thank all of you I really appreciate the concern and No they wont up my meRAB they keep using me for a guienne pig on all this other stuff dr even has tried to put me on something I'm allergic to an I found out about it by the interactions . I don't have a neuro surgeon but a orthapedic surgeon is who done the fusion and told me cigarrett smoke was the reason I was still have pain . My pain dr is new and of course until you try every thing they dont up nothing. you are right there is a reason for the pain but ask ME I dont know for sure but I think something moves around in there and causes the part of my back to heat up like its on fire. I hope the drs find something soon.Am not crazy but REAL CLOSE . Jerris:mad::(
 
Jerris, I have some of the same problems as you. My surgery was Sept. 2006. I've tried everything. On my own I decided to get referred to pain management. There were none in my insurance plan but my dr. referred me to one that takes the insurance only. So far I had the three steroid shots and two facet shots. This last shot has actually lessened the lower back pain. My leg pain is still there. The electric shocks are better too. So who knows, maybe something is working. Won't get my hopes up. This way won't be too disappointed. You never know. At my request they took me off the Lyrica and put me on Topomax. Have not tried it yet. Sent it out to the mail away pharmacy. I go again in two weeks for my 6th and I assume last shot. This place picks you up home, drives you home. They knock you out. The doctors are nice. Have not found any thing wrong with them except for my first visit when the dr. said I should have never had surgery and never should have had the disc taken out. Could have gone on not knowing about that.
 
:mad:Hessi I have read the threaRAB in here.my DRS experience was horrible and rude I was so mad I wanted to do things to this person I can't say what but am still mad. I explained to her that I have been researching neuropathy on the pc. and that my primary took me off the Lyrica an this other thing they wanted me to take I couldn't take (Ralifen) for inflamation DO NOT TAKE IF ALLERGIC TO ASPRIN just like this on the information adverse effects . She couldn't understand why my primary took the lyrica because of the extreme swelling in my legs, and didn't like it because I refused the ralifen. I am not gonna take something that I am allergic to, and I am not gonna take somthing that makes my problems worse or do nothing at all. I was told no that topomax was for MIGRAINES, (Iknew that) but also explained to her about my research and no couldn' t have it! Then ask about cyrabalta somone else suggested that an no it was for somthing else!!! She really made me feel likde a criminal I told her that I was Tired of being in PAIN and would like to know why. It was really a bad day I requested that I see the DR that I have been seeing or the main DR on my next visit because I seen her one time and that was enough!!! Moldova I guess I am gonna have to find my own DR for the tests and DX of the reason am having so much pain Like I told Hessie about my DRvisit today I am still sooo mad!!!I know it only makes the pain worse by getting upset, But somtimes THEY make me sooo Mad!!!! Thank you and every one for your concern and understanding it really makes a person feel some better just haveing a place like this to get information to maybe help our situation its just the DR's Who won't cooperate!! Jerris:mad:
 
I can relate, tired of pain, I think this should be our middle names, as we all have been there many many of times, and are still there. I sympathize with you, definitely get in with a doc. and another MRI probably should be done. You are on alot of medications, I don't know how long your on them, but sometimes our bodies get so used to medications that they actually stop working, please try and contact your doctor and get in to talk to him or her and have them try and help you with your medication, and definitely if you don't have a surgeon you need one to see what is going on.

I agree with the other you probably need to cut back on your activities for awhile just to try and calm things down and then slowly increase your activities and see how it goes, I know this is easier said then done, cause I've been there with that scenario myself.
Good luck to you, and let us know how your doing.
Tulip15
 
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