Son without a diagnosis!

M

mr_j526

New member
I have a 6 year old son, with two alleles of normal range when he was tested for Fragile X. This has left doctors in Seattle, plus doctors overseas, stumbling over words, and scratching their heads. I am confused, and the school is also having trouble with creating an actual learning plan. Does anyone know where I should turn to for genetic guinea pig studies?
 
I don't understand your prediciment,but the feds have lots of info.Last night I went there on Womenshealth.Gov,(for a friend),and found my subject matter.Good luck....Bill .
 
There is a research program going on. To find more information about that research program and ways to connect with other parents who have children who are with out a diagnosis check out www.undiagnosed-usa.org

Amy
 
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