it IS really good to hear from you there DD,seriously. can you explain exactly 'how' they 'determined'(what actual types of testing did they do?) this as just a type of "severely sprained nerve muscle"? when there just realistcally is NOT actual 'nerve muscles" inside our bodies, that really IS what i am wondering about here among other things DD.
with YOUR particular ongoing and the very sudden onset types of symptoms you described here initially, this would require at the very LEAST a good contrasted CT or even better, a contrasted MRI done on your brain and c spine areas to really get the very BEST type of info to even MAKE a good solid Dx of what this just IS at all you have going on?
do you actually have a confirmed and fully dxed AVM in your brain DD? if so, exactly where is this located and do you also have any and ALL of your past scan reports that have been done on you that simply dxed it and describe it too? if you do not have your own copies of any and all types of testing reports, esp ALL radiology like CT, MRI or even the angiogram that if you did have confirmed AVM just should also have been done to better define what IS the arterial make up and possible venous make up too, and any draining vessels within it as well?
despite what you were told at the ER, and believe me i am very happy you went, i would keep very close track like with writing down in just a notebook type thing, of anything 'odd' or anything that you simply FEEL is not at all 'normal' for you. this would also include any and all symptoms from the 'alleged severely sprained nerve muscle" too? i do NOT get THAT Dx at all since it just does not make any real sense given how the nerves run and the way the muscles just are?
now, having a 'compressed nerve" within or TO a muscle IS a possible here if that muscle gets overly inflammed and overlytightens 'surrounding' that muscle which just can compress nerve and also create pain, but what they told you just really sounRAB rather odd to me. its simply what YOU truely described as "going on within your body as ongoing symptoms that seriously does NOT sound like any type of actual sprain to me. the pain intensititys simply sound much higher along withthe headpain upon exertion too to 'only' be a sprained muscle here,ya know what i mean?
but if you do actually have AVM up there in your brain, did you mention THAT to the doc in the ER? if you did,and considering your presenting and ongoing symptoms, that should have been a no brainer immediate CT at the very least to check for ANY possible 'changes' in it or esp bleeRAB. but knowing exactly where your AVM just is would help. and the actual size?
and DO obtain every single scan report from the ordering doc who sent you for it or from the facility where the scan(s) were done. this just truely IS crucial when you have anything within your brain or within your spinal cord that can bleed at anytime. its all part of your ongoing medical history that you just HAVE TO keep all reports on anytime that gets scanned for possible changes/enlargement or bleeRAB of ANY kind.
but just get the older reports then KEEP getting any others too and keep them all in some type of a folder so you simply have everything in one place that wont get lost. i have to do this too for my crappy medical conditions which also did include having what was first thought to be an actual AVM inside my spinal cord? an angiogram determined it was actually the venous fed counterpart called a cavernous hemangioma,and not the dreaded AVM. but since my initial MRI actually stated it WAS "definitely" an AVM, trust me here when i say that i just did sooo much real solid research on them thinking that was indeed what i had. it took me about six very loong months to finally even get IN to see a neurosurgeon who finally ordered that needed angio for me to finally find out it was NOT an AVM? but i learned one heck of alot about all kinRAB of possible vascular malformations that are simply even possible to have within the spinal and the brain too.
can i ask just how old you are and when this AVM was actually Dxed(how long have you known about it)? how did they actually even Dx this in there? were you displaying some type of symptoms? sometimes they are simply found "incidentally' like mine was when getting a scan for something else? are you being regularly monitored by either a neurologist or neurosurgeon for this?
glad you are okay there DD, but if you could answer the questions i asked, it really would help me to help you here in the best ways FOR you if you DO indeed have that actual AVM. FB
