glad to help believe me. do not "just' mention or bring this up to your doc, make certain this perceptionary "thing' finally gets evaluated. if someone like only a mere primary feels that what you are feeling/displaying is not real critical or important, only because they do NOT have a freaking clue? they in most cases, wont 'do' for you the patient just what really IS NEEDED becasue they have never dealt with it or had any other patients who have what you are? and this just IS where YOU have to become your own advocate.
this is why you really DO need a referral to a neuro to start and that MRI of the brain and at the very least c spine level too? to simply even 'percieve" what you have and for soo very long just is usually a "something' that has possibly been there awhile too? but it does need to be MRIed just to see what is or is not possibly generating this that IS "seeable" upon MRI. this can be some issue with the actual cranial nerves too that run thru and innervate the sensory area where this is being 'felt' as well? but i really do personally feel just based upon how you described this and what i KNOW i was able to truely perceive as soo flippin real, that this has to be something neurological. so, MRI and a neuro referrals would be the very best ways to just get this identified.
you just gotta start somewhere here and this really IS what i would do if i were feeling/percieving things just knowing what I went thru before too? i just had NO freakin clue til i found a highly experienced with what I just had neurosurgeon who had seen what i had hundreRAB of times in my cord simply explain what IS possible to 'feel' with anything IN your spinal cord(but it is not 'only' cord stuff that can do this, that brain also has this capability depending upon what particular area may be impacted with "something"). he was also my third opinion too. he simply just had over 30 years of experience in TONS of the "neurological strange and insane stuff" since he was head teaching prof at the U of MN here too, also head of neurosurgery. i WAS dang lucky let me tell ya. the other two NSs i saw were just hugely under experienced with these and could not tell me much at all. the patients any given type of specialist simply sees and has REAL hanRAB on experience with over years during their own practice really ARE the best teachers to the specialists, ya know what i mean?
it was sheer durab luck that i actually was able to find this particular NS since he was going to retire in just a couple years after he did my resection surgery. things just 'came together" in all the right ways in even finding that 'perfect' doc for ME and MY problem. and that IS the key here with anything that YOU may have? getting a good specialist who simply does have the most experience in what YOUR problem actually just "is'.
but DO give your primary a bit of a push if it comes to that. you just DO need to at least to start, get the MRIs done to see if anything shows up? then let that MRI dictate from there just 'who" you see next. OR, if the primary wont go that route first. get a referral TO the neurologist who WILL want to do those two areas with an MRI scan and WITH contrast, esp for the brain.
what this really basically comes down to hon is in order to just even percieve what you are and have been for so long, something would have to be 'generating it'? testing and ruling in or out comes next. good luck with the primary WA, and please DO keep us posted. FB
