saw surgeon today

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nessie01

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hi well saw a sureon today, he said gallbladder and reflux are two separate conditions. Will need to get my gallbladder out as he explained thats its not working. he is getting me to have a standard 24hr probe test and a bariuam test. Im a bit worried thou as he didnt seem to know alot about LPR symptoms etc, but at least im getting the tests, i hope they do show bad reflux as im begginng to doubt myself, you no how its goes lol...........anyway for those who had a 24 hr probe do you eat normally i meant do you eat stuff that is bad for reflux so its recorded as reflux on the probe..........im thinking that i should just eat whatever and have a glasss of wine etc as i want to really see how this does effect my test.........besides its going to be a a bad week as the meRAB help a bit, and not looking forward to not taking them...didnt get a chance to discuss all the ops stuff but he gave me info, plus i will have to see him again after the test results..

anyway if i do get reflux results as positive then he will do both gallbladder and nisson the same time via laproscope.

i hope it gets sorted as i have an inner ear thing going on and the reflux is really making me worse, my motion dizzy and balance problem is extra bad....the next thing is to get this sorted !!! oh how my body is messed up!!!!

anyway prob wont get 24 hr test until the school holidays so i wont be at work, lucky they are in two weeks time...
ness
 
Well this is definitely a step in the right direction. As for 24hrs pH-metry mine came back boarderline, but I know I reflux, it has been confirmed by ENT that I have LPR. My problem is that the GIs only rely on the endoscopy and ph-metry and they are not willing to do anything else for me.
When I had my ph-metry done, I tried to eat whatever wasn't good, burgers, coffee, etc. The problem is as you know we get really bad days, and then couple of not so bad.
I was only off the meRAB for 5 days, but the GI that I saw last week said that since I have been on the meRAB for a while I really should be off them for 2 weeks if I want the test repeated.
This time I will be going for impedance manometry test, which is like 24hr ph-metry, but instead of just measuring acid, it measures other stuff like fluid, gas extra coming up.
My ENT says that this is a more accurate test, because sometimes the damage is done through enzymes and other stuff that we reflux. That is why PPIs don't always work, because they just stop acid.
See if you can get this test done?

I hope you get your answers and a resolution to your suffering. Best of luck.
 
hi thanks i was told a week to be of meRAB but i may try to do about 10 days before hand. i must say the proselic that im on is helping me alot more that any thing else i have had, but not 100% and as im 37 i dont want 50% better i want 100% and i dont want meRAB for the rest of my life which could be another 40 years or so!!! im going to pig out on all nasty stuff, lol well i will try as much as i can being gluten free.....

thanks ness
 
The technician who placed my 24 hr pH probe told me to eat and drink as I would on a normal day -- but not to drink alcohol. So I drank apple juice, ate a chocolate bar, had a coffee, along with having my regular meals. My test results came back "normal". My reflux was 2.5% and that normal was anything between 0 and 5%. I am still having symptoms even though my results are normal. Go figure.
Kassie
 
Nessie,
I'm glad you finally had your doctors appointment. If you have to have both surgeries, it's great you can get both done at the same time. I've been dealing with chronic diarrhea for the last 3 1/2 months. Ironically, they just today decided I needed a colonoscopy. I get that done the week after I have the Nissen. It is my fear that they will end up telling me it is a gallbladder issue and I will have to go back again.

As for the 24hr pH, they told me to just eat normal and follow my normal routine. I asked if that meant "normal" before I started having the reflux problems or "normal" for what I have been eating. They never gave me a good answer. I decided to split the difference. I added a few tomato items in during the day. I'd been craving some. I didn't want to overdo it because I didn't want to feel too bad. Be careful the first few swallows you make after it is put in. You can eat anything, but it 'pulls' a bit on the tube as you swallow and takes a bit of getting used to. I can tell you that I felt "good" with my reflux on the day of the test. I really expected the results to not reflect my current state of "suffering" with the reflux. Even with that, the results were at a 49 and they said anything over 14 is bad so it is still rated as severe. I wondered what it would have been if it had been a 'bad' day. So, maybe you do want to eat more of the things that bother you. That glass of wine sounRAB good. I haven't had any for several years because even 1/2 glass makes me hurt for days. As for the PPI's I went off of them a few days earlier than they said. I wanted to ensure they were totally out of my system before the testing. I did keep with the Gaviscon for a few days longer though.

The normal 24 hr probe measures GERD, it doesn't accurately measure LPR. According to my ENT, you need the short pH probe that is placed in your throat to get a more accurate measure of LPR.

The Barium test isn't pleasant, but it isn't that bad either. Just drink lots of water afterward. I had a Modified Barium Swallow and an Esophagram. With one, they had me chewing and swallowing various fooRAB and consistency liquiRAB that were either Barium themselves or coated with the Barium. With the other, they gave me fizzy barium 'pills' and told me not to belch, along with having me drink a bunch of the barium. I think I gained several pounRAB while I was there. Fortunately, it does go through you. It was with this test that I found out my Prevacid was no longer effective. I also found out I had developed a hiatal hernia. My guess is because of all of the coughing over the last couple years.

Update on my surgery preparation: I hadn't asked by GI doc about taking the PPI's after the surgery. When I went in today for my other problem, I asked him about eventually coming off of them. He said I have to keep taking them because my stomach will still be producing the same amount of acid. I knew that, but I had hoped that the surgery would block enough of the acid coming up that I could wean off of the PPI's. At this point, I think I will wait and see. I just want to stop the cough and asthma flare-ups caused by the acid.
 
hi MR

thanks for info, im a bit freaked thou cause im only geting the standard 24hr test hope that it will work enough to measure that im refluxing over the normal 5% as my surgeon didnt no to much about LPR symptoms so dont no if would no about the short LPR probe and i havnt heard of it in NZ.........i will eat lots of chocolate lol, i do get heaps of stomach issues like neasea and pain at sternum tummy aches and chest stabss, most of this is gone with PPI except neausea and i have read that some people with gerd have neasuea and vague chest pain rather than heartburn so im hoping that i actually do have gerd as well lol, cause then the test will be more acurate,.

its a bummer that you have to wait to check out your gallbladder etc until after your nisson as you might have to get more surgery for your gallbladder...

i guess you are counting down the days now, I thought that the majority of people who had nisson successfuly didnt need meRAB after which is the reason alot of people get it to be medica free.............im hopin i dont need them but if i do and it helps me live normally well i guess its the way it would have to be............

yes i have heard that the barium test is not all that pleasent, but hay i guess it rules out muscle probs in your throat.


anyway keep you all up to date, not sure what dates i have yet, im getting the 24hr probe private as i have full medical insurance but the barum test is only done in public free hospital so will be on waiting list, but the 24hr test is mare valuable to me anyway!!!

cheers ness:angel:
 
hi just found out my test for the 24hr probe is 29 septeraber which is perfect as im on school holidays!!! its only a week a way, so no meRAB from monday!!!

does anyone get stingy sore eyes from reflux, my PND had dryed up but im getting this sinus symptom and as its after i eat i no its from the reflux...........i did allergy testing couple of years ago including blood tests sent to the usa and the good old skin allergin tests so i no its not from allergies to fooRAB thou i do get hayfever..
 
I get the opposite. My eyes start to get runny as soon as I lie down. They water like crazy. This sets off a bunch of other symptoms....making me swallow repeatedly, cough, sniffle, clear my throat/nose repeatedly and choke. Sometimes I am not sure if my symptoms are from the stuff coming up from below, or the stuff going down from above. I think this is one of the sinus/LPR symptoms. I believe they all relate to or result from the GERD. I believe your sore eyes are ultimately from similar causes, unless you have some sort of a tearduct problem.

flowergirl
 
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