Hi Erin, and welcome to the board! You're in good company here!
First off, no one's going to cyberyell at you for going off the pain meRAB. Encourage you to take them, yes, but you have to do what's best for you. Some people don't tolerate them well and are okay with just Tylenol. For most of us, much more than that is needed, and some have had to argue respectfully with their doctors to get the proper meRAB to cover their pain. If you can do without them, that's great! But don't try to be a hero. No one's going to give you a medal for not taking the meRAB. If you're in pain, you're going to have a harder time healing. And once the pain increases, it's harder to get back under control. Personally, I think it's wise to take the full dose allowed for the first couple of weeks, even setting the alarm so you don't miss a dose in the middle of the night. After a few weeks, you can slowly taper it as tolerated.
The brace is generally supposed to be worn whenever you're up except in the shower or trips to the bathroom if you're getting right back into bed. Most of us have had sitting limitations in the beginning. I was told not to sit for more than 15 minutes at a time for the first about 6 weeks. I really couldn't sit for even that long, so it wasn't a problem to follow that instruction. I was glad to have the "official" limitation, though, so my family wouldn't expect me to sit through dinner with them or think I was faking the need to lay down.
Walking is essential for bone growth after fusion surgery. It gets the blood circulating around the spine. Walk as much as you can tolerate, but no more. My "rule" for myself was that every time I got up to use the bathroom, I stayed up and walked for as long as I could. In the beginning, it was only 10 minutes. I gradually added a few minutes at a time. I had to use a walker for the first 6 weeks for my own safety due to fainting spells, so I just about wore out the carpet in my bedroom, going back and forth a million times. I would put on the TV so I wouldn't think about pain or boredom and just walk, walk, walk.
You do need to rest so you can heal and get your strength back. Don't try to be up 24/7, dear! This is the time to join a movies-by-mail club. I spent most of the first two months lying down, then was about half and half during the day for the next month. Even at 6 months, I was still needing to stop and lay down everyday for a few hours. My problem and the extent of my fusion is different from anyone else here, so it may not be the same for you, but you do need to rest and not rush your recovery. (Not that my problem is worse, just different.) You WILL overdo it. We all eventually do, and then we pay for it. Try to take it easy, though, and don't feel guilty for it! This is a huge surgery with a long recovery time!
As far as the nerve pain, is this pain you had from hip to mid thigh the same as before surgery? Nerves do become irritated during this surgery and can take a very long time to calm down. Mine wasn't too bad, but some people have been given meRAB that specifically target nerve pain. If it continues, you might want to talk to your doctor about that.
Do you have a grabber tool? If not, it would be a great investment, since you're not supposed to bend, twist, or lift more than 5 (for most of us) pounRAB. Anything you drop has to stay on the floor until someone else comes along to pick it up unless you have a grabber. I also put a satiny bottom sheet on my bed so I could slide to turn. It was much less painful. There's a thread at the top called "post surgery tips" that has lots of other suggestions to make your recovery easier.
If you have other questions, you've come to the right place. We'll try to help you as best we can from our own experiences.
Hang in there! It gets easier!
:wave: Emily