Post Double-Fusion Lumbar and the Pain. Why?

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chevmal283

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Injury '97
Lam/disk L5/S1 '98 three months later (17mm herniated disk).
Electrical pain worsens after surgery.
Double-fusion '99 L%/S1 and L4/5--now don't believe was needed. No herniations.

Pain does improve, but cervical pain becomes an issues.
Cervical double-fusion 2000. Learn recently only 1-2mm bulge and some stenosis. Surgeon didn't believe in alternative care. Don't seem right to me
Left me with massive cervigenical headaches still suffering. On fentanyl for years.

Another experimenal cervical surgery in 2001. No biggie. Out-patient deal. Didn't resolve anything.

Lurabar surgery to remove hardware in late 2001. Once inside, ortho reports not all the way fused, has to performed repair to fusion. Not expecting that. MRIs always said "fused."

Couple years of back feeling better. Electrical pain not as bad. Then hit with strange lossing of feeling in legs and arms at same time--aroung 04/05.

Now, my feet burn, the nerves throughtout legs intense. Electrical pain in private area. Etc.

I figure scar tissue. But really, it can make pain that bad? So much worse than even the original injury and pain after surgeries? What is that all about?

I cross my legs, the terrible pins and needles attack feet all ready burning. Then begin to loss feeling in them. Which, if I don't do anything about it, then I start lossing use of legs.

Happens in arms and hanRAB too. Not to the degree of legs and feet though.

Plus, the nerve pain down my ankles, which is began in 06, is so severe now, mostly made worse by moving around, that to walk is so painful.

I used to walk a lot in attempt to strengthing muscles, etc. Now what?

I hear the term "failed back surgery" and wonder, why have had it done at all then? Can't go back and do it differently, but sure wish there was something to stop this pain.

Any thoughts?
 
I'm sorry you've been through so much and are still in significant pain. Have you gotten second, third, and maybe even fourth opinions? Don't give up!

Are you saying you've been told you have failed back syndrome? :( Unfortunately, there's no way to predict who is going to have this after their surgery. Fusion surgery has generally about a 97% success rate, but there's no way to know ahead of time who will be in that lousy 3%.

Are you seeing a pain management doctor? There are new meRAB all the time, and maybe experimenting for just the right corabination can at least make it more tolerable for you. Been there, done that!

I wish you the best!
Emily
 
Emily


I'm presuming that Failed what it is given the pain that increases year after year without answers. Certainly the surgeon who performed 4 of 5 surgeries never gonna admit that. Structurally he says fine. Though all kinRAB of other problems like arthritis, stenosis, bulgin' disks, etc. The neuro symptoms so intense, yet not Arachnoiditis or RSD that I've learned in last two weeks. Yeah, no pain doc because WC stopped allowing treatment after 11 years and a stint in detox. No attorney any longer. So really, don't know what to do.

Anyway, got to keep searching for answers.

Thanks for responding.
 
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