Please advise what should i do next?

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londoner70

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My problem,s started last August, and I never though I will be suffering a year on, and the fact that it will start ruining my life. I am a 38yrs old mother of 2 toddlers. To keep the long story short, it started with slight burning sensation in my stomach, after 2 GIs, and 2 ENTs, and 3 endoscopies, and one colonoscopy, and PH-metry test, I am faced with the dilema, that no one but the ENT is taking me seriously. I was diagnosed with gastritis and erosive duodenitius by the first GI, but all he did was perscribing PPIs, and wasn't prepared to find out the route cause of it, eventhough I kept mentioning to him I am still suffering after all the meRAB. I have excess phlegm, burning in the throat, and sharp pains in the stomach, and also sometimes this horrible feeling in my stomach, like a stomachache but not a physical pain, as if I haven't eaten for days, but eating doesn't resolve it.
The ENT diagnosed me with LPR, and put me on 2X 40mg nexiums a day. The second GI hasn't found anything, but then I don't believe that he should have scoped me while I was on meRAB.
What should I do? Does this sound familiar to anyone?
I am scared of all the horrible things that everyone reaRAB on the internet? I am patrified, that I will end up with a horrible disease if this carries on.
I saw a dietician last night, recommended by the GI, whom I thought was a joke, since her diet sheet included tomato, and diet sodas?!!!!!!
She wants me to try these expensive bacterias for the gut, which I ordered today.
I am desperate? any help, or advice is appreciated, thisi s affecting my life really bad.
 
I am very sorry that you are suffering and so scared. You have had a lot of tests - and I do believe that if there was something REALLY wrong (life threatening, etc.) - the numerous tests that you have had would show it.

Unfortunately - there are HUNDRERAB of stories on this board of many people suffering and they are never able to find the cause of their reflux - they just treat it, continue to be monitored, try new things as they become available, and try to live with it as best as possible.

If you search for Charberry's posts you will see she has suffered from SEVERE LPR for over 10 years and has posted many informative and insightful posts on these boarRAB.

Anxiety (which I too suffer from) does make EVERYTHING so much worse - so maybe treating your anxiety daily will give you some relief.

Try getting some books on eating right for GERD or LPR - and also the probiotics that you ordered are supposed to be really good for you. I take them daily.

I wish you all the best - keep up hope.

Vanessa
 
hi
you are not alone you may have read my post about wanting to jump of a bridge as im desperate to get well............i also have that weird stomach ache pain as well, but the nasea is driving me mad at the moment.........my gallbladder is noit working well which i think are adding to some of my symptoms have you had yours checked............

i can only say i no how you feel and can relate to it all except i dont have chn where i want them desperately im 37..................im going to try the low carb diet starting this weekend and i promise i will let you know how it goes as it may help you as well...........also i have read that if one med dosnt work try another which is what im going to do.....

i really hope that we both get well, take care ness
 
Nessie,Venessa

Thanks for your replies. It helped a lot.

Nessie - I wish you all the best with trying to concieve, I know how that feels, I had mutiple miscarriges(twins as well), and it took a long time, but I finally got there(I hace Polycistic ovarian syndrome).
I haven't had my gallbladder checked out. I think my GI is not going to do anything until I have given the dietician a try. My ENT mentioned that it is very difficult to find a GI that understanRAB LPR, and he works with a GI who believes strongly in LPR, but since I have already seen 2 GIs, I am not sure that my insurance company will cover it, and privately it is too expensive for me to afford any tests that the new GI might recommend. I can most probably afford the consultation fees, but any tests are too expensive.
I just feel so depressed and consumed with this disorder. I will keep you informed with my progress, and please do the same with yours. Wish you all the best.

Venessa - Thanks for the reassuring worRAB, I guess since I feel so awful, with all these physical symptoms, I keep thinking what if something serious is wrong? Then I read about the side effects of the meRAB that I am on, and all the long term side effects of GERD/LPR that I keep thinking I will end up with something horrible if not treated, but you are right I have to find a way of living with this disorder since as my husband says, you are letting it ruine your life, but I guess once a worrier, always a worrier.I will definitely give your suggestions a try.
 
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