Only thing that ever worked

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neddyflanders

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I've had LPR for about 5 years now. I've tried a million different things, PPI's worked for a short while but there was only one thing I ever did that worked without medication. I normally weigh around 180 pounRAB. I went down to 157 (rail thin) and I was reflux free for about 3 months (then I gained my weight back). I've been trying to lose weight ever since and have been unable to. I am considered skinny (with a belly). All my extra weight goes to my belly and I can't lose it. Also when I try to diet I get really dizzy or feel horrible. I'm at an age now where losing weight is next to impossible. Not sure what my next step is but will try to lose weight again. I love food.
 
Hi Neddy,

Don't you think it's odd that your supposed reflux doesn't respond to diet, and that it's onset (sore throat) more or less began with vestibular neuritis, the cause of which is known to be a virus attacking your nerves in your throat/ear area.

Correct me if I'm wrong, and it's totally different, but looking at your posts, you had a virus doing damage to nerves down there as a documented fact and suddenly you have reflux in the throat?

Since vestibular neuritis is actually a virus attacking nerves, and you were worried about bell's palsey in 2005, which is also a case of virus damage to nerves, is it not possible that your throat symptoms more or less stem from damage to done to larynx nerves?

You might want to talk about that with doctors and at least check what I've been flogging lately about neuropathy.

You'd think if ppis have no real effect, that the cause could actually be related to nerve damage done in 2005 from a virus, possibly the same one that was in your ear at the time.

If you gave the ppis a few years, why not give anti-convulsants a few months. Check Jamie Koufman's article "chronic cough" or ENT today's article about pregabalin therapy. Sorry for flogging this horse so much, but it all just makes more and more sense why some people aren't getting any effect from ppis or diet changes.

Even so, it doesn't make sense to me anyway why losing weight would affect nerve damage, but it's still worth taking a gander at the idea of neuropathy, unless you hate pharmaceuticals.
 
This is your own quote from Deceraber 28, 2009.

It's Back

--------------------------------------------------------------------------------

I've been reflux free for about a year (taking prescription Prilosec and Pepcid before bedtime). I got sick 4 weeks ago with a regular virus (sore throat, headache, slight fever). After it was over I noticed reflux. This happened before, don't know why a virus sets it off. Now I'm waking up unable to breath at night and getting a sore throat again. I guess the days of eating whatever I want whenever I want are over again...

(End quote)

So this is the connection that I keep finding throughout all these posts, and I read them all day like a man obsessed.

1. Your "reflux" went away.
2. You got a virus that attacked your throat (the cold/flu/bronchitis)
3. You get REFLUX again right after?

Conclusion: Stop eating the food you like.

This pattern keeps happening in these posts all the time. People get a cold, and then they say their reflux comes back.

Couldn't it be just an oversensitive larynx, that gets its nerves triggered. With your losing weight, couldn't it have been that it improved your overall health so much that somehow it had effects (I have no idea which ones) on the larynx, and calmed it.

In other posts, you mention "endoscopy normal. Why is every test normal."

It just seems like viruses and their relationship to the larynx is what is really at work, in so many of these posts.

But your point about your friend who loses weight and then it goes away doesn't permanently doesn't really fit into my theories.

Anyway, when I look at your posts, I just keep seeing ideas that match ideas I get from reading other people's posts, and this idea of viruses and nerves in the larynx keep coming to my mind.

Just something to think about.
 
Never thought about the ear having anything to do with reflux. Also would never take any anti-convulsants. The more I lose my gut the less I get of reflux, it's as simple as that. Right now I have put on a bunch of weight (all in the gut) so I'm getting it bad. Have to figure out how to lose stomach without feeling like hell doing it.
 
may i suggest the treadmill. I've seen huge fat frienRAB of mine become svelt (sp?) doing that.
 
I'm trying, using it for 35 minutes a day. Funny thing is, I'm not fat at all. If you saw me you would say he's skinny. All the fat in my body is in my gut, nowhere else. I have to lose it, somehow.

Was interesting observation about the vestibular neuritis, never even thought of that. Thing is I know somebody who has the exact same reflux as me, he's younger though and is able to keep off the weight easier which reduces or eliminates his reflux (though he looks sickly being so skinny). He never had the ear problem I had.
 
Hi Seeking Sunrise, I'm not saying your not right, it is possible that it's caused by a virus. I have no idea. I've tried just about everything and am really no closer then when I first got it. Let me know if anything works for you.
 
I just started my first day of lyrica on a low dose, which will be raised to 150 mg twice a day next week. That's the standard for neuropathic pain. Lyrica's website says it takes about a week to kick in if it's going to. Nevertheless, today was the best day i've had in 2 months, with no globus. It could be a coincidence anyway since the globus was gone yesterday too. I'll keep you updated.
 
Count calories and you will lose slowly.... but you won't be hungry and that's why it works!
 
I tried that and was getting really dizzy. Guess I cut them too much. Will have to raise it a little higher next time. I use to be able to lose weight in two weeks by just eating right, now it seems impossible no matter what I do. Middle age is not too cool.
 
It was prescribed. I showed the articles to a neurologist, he shared them with other neurologists, and they agreed the concept and treatment made sense. He said I should go into medicine hehe. I told him I would look into that IF I get better, but how can you concentrate on heavy topics and do your homework, when you keep obsessing about your bleeding (figuratively) larynx.
I'm getting off topic though. He prescribed neurontin (gabapentin) at first because I'm only in Germany til Deceraber 18th, and he wanted to get me up to max doses faster to see the results as soon as possible. I said that I heard gabapentin is sort of the older inferior product with more side-effects.
I'm not sure. Maybe I should have went with his original idea, but we changed it to Lyrica. There are a lot of people who say gabapentin is the one for them, and lyrica didn't do anything. Anyway, I'm going to go through the whole gammut of these drugs, for your viewing pleasure, until I find the one or corabination that does it. And I really hope I do.

And interesting thing. After visiting the neurologist, he sent me with the prescription back to the military base I'm staying on (no need to ask) and I had to meet the Truppenartz (head doctor on the base) to ask for the drugs. He sent me back to the hospital for them, but we had a revealing talk.

He said, he gets a lot of people in Haraburg coming in with a globus complaint which he just sort of chalked up to psychological problems. He says, and I don't know how serious he was, that if I show improvement, he would think of pregabalin as a possible solution to globus in the future. But the important thing is, he said A LOT of people were coming into his office with that complaint lately, so much that it surprised him.

So there are a lot more people walking around with a grapefruit in their throat than we know, perhaps. Or else, Haraburg has some serious nerve damaging germs going around... That just really shocked me that he is getting many patients with this same complaint lately. I hope I can help myself, and by doing that, maybe get other globus sufferers a new alternative to being told they are simply crazy.
 
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