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LindaJS
Guest
If there's anyone out there who has similar problems as me, then I would love to hear from them. I am having real problems with my memory. This has been going on for quite a while now and I have been tested for Alzheimers which I was told I didn't have. It has become so bad that sometimes it's not even worth talking to anyone. I can forget things in seconRAB, if I read a book I can't remeraber what I have read, the same goes when watching a programme on tv. My children will phone me to pick them up but as soon as I put the phone down I have forgotten about them. I can't remeraber my children's childhooRAB, which is really upsetting and I'm beginning to feel that I can't try any more or pretend that it doesn't bother me. I have had a brain scan which shows clusters, and the specialist said that this could be my problem or it could be some form of MS. I have had ME/CFS for 24 years now, (if that's what it is) but no-one seems to have the memory problems as bad as I have. When I was very young, I was a very intelligent person but then all of a sudden I started to have problems concentrating. This has been on and off all my life and I hate it. I know who I once was and hate the person I have become. I want to do so many things and yet when I try, such as college courses, I can't remeraber what I have learned. I cannot store information. I try so hard, then when it becomes obvious that I've fooled myself again, I think- "what's the point, I might as well not bother doing anything at all". My main worry at the moment is that my daughter is having exactly the same problems. She is losing her intelligence, her artistic and music abilities and has all the same symptoms of ME/CFS that I have. I don't want her to go through what I have gone through. She has her life in front of her and her child of 4 years old to look after. I would also like to point out that I have a Downs Syndrome son who has severe Autism. Do you think that the Autism might be a connection? Please help if you can....Linda