Maybe One Day Someone will Know

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Kay0795

New member
I have been dealing with a situation that has stumped doctors for years, Again this year I have been around the specialist realm to find the same answer of we have no idea.

3 weeks ago I had a seizure with no apparant trigger. Shortly after I have had numbnees in my right sode of my body. I have abnormal electrical activity in my left temperal lobe, which from what i have been told should have nothing to do with numbness in my right side. I also suffer from swelling, purple discoloration and cold to the touch problems in my right hand and foot. I have recieved answers of everything from a pinched nerve to well no answer at all. This has actually occured on 3 occasions in the last 12 years. I have weakness throughout that side and have extreme trouble sleepy and constant pain. Now I am only taking treptal for seizures. I feel as if I was a lab rat for something I know must have an answer. I also have alot of dougt with our current medical proccess and its effectiness. Not to speak of the feeling of im crazy and i making this all up. Which i have be told before. Even though it is quite evedent. Thanks for listning.
 
I would start tracking who is putting out medical research in these areas, and start communicating with them. Going to a teaching hospital near you might be a good idea.
Best of luck to you with this.
 
I'm so sorry you are having to deal with this and not able to get some kind of answers. Knowing something about what's going on would at least let you know what you are dealing with.

Tommy's suggestion is great. It's worth looking in to.

Also, have you had a CT of your head during any of this? If not, that might be a suggestion as well.

I hope you are able to find a doctor who will find what is causing this so you can get help and deffinitive answers.
 
I have had an ct with and without contrast, MRI, cat scan, EEG which showed intermittent delta slow waves on left temperal lobe, which now really has told me what it means other that its nothing to worry about. Other tests to do with blood pressure and what not, now the doctors believe I should have physical therapy and just see how I do. I feel left out to dry with out any real answers except deal with it
 
You might want to find a good endochrinologist to run some tests. It sounds like you have already been through some extensive testing, and you are probably over all of this and just want some answers, but at this point, it would be worth a try.

Again, I'm really sorry you are dealing with this and don't have any answers. It must be scary having seizures, and especially having them and no one being able to tell you why.

I'm sending positive thoughts for healing your way.
 
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