LPR and Anxiety

  • Thread starter Thread starter Seeking Sunrise
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Seeking Sunrise

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Hi,

Do you know what I'm thinking? I think maybe we should be trying lyrica and elavil and getting off this stupid ppi shit, that's not working. Maybe this LPR is vagal nerve sensitivity. In any case, the ppis don't work so what is the point of taking them. Just enjoy your life is much as you can, and I hope it will clear up for you. Does it come and go in severity for you the last 4 months? I think people like us should be managing pain rather than corabating acid, which seems to be a losing fight (in my opinion). I'm not worried about cancer down the road to be honest. I'm worried about day to day decline in quality of life. I'd gladly take 10 years off my life just to have better days while I'm here. I hope that doesn't sound too fatalistic. Seriously look into a nerve specialist and ask for elavil and pregabalin (lyrica). That's what I suggest (I'm not a doctor, just thinking about our options, and mainly about having a comfortable life). I'd appreciate any feedback. Let's consider that we actually have oversensitive throat, and not really some stupid acid problem. If that's the case, we need to address the nerves that are picking up on these feelings. Screw the little aerosolized acid. What kind of a medication would take 6 months to work. What kind of meRAB would people take for 2 years, saying the whole time "It's not working yet, but the doctor says I just have to not clear my throat, and then it might heal." Generally speaking, people with LPR have a little redness in their throat, that is the same as 80 percent of healthy people randomly scoped!

The whole way this disease is looked at has to be changed! If I'm wrong, what's the difference anyway, the current therapy is working as well as anything I could suggest.
Anyway, try a nerve doctor. That's my gut feeling. Especially, 100 percent, if you don't have severe acid signs in your esophagus. Those are different cases, in my opinion.
 
Is there anybody on this board who has LPR that does not have any anxiety or is stressed out alot?
 
I bet if the recommended therapy for LPR was:

You now have a stressful annoyance in your life. To corabat it, eat lots of delightful things that you love like chocolate, red meat, etc.

Sleep after meals if you feel like it, you are going to feel like shit when you wake up anyway.

Enjoy a cigarette whenever you want. It might take the stress off and even contains cough supressants! Besides, your smoker's cough will seem normal if you actually are a smoker.

Drink a lot of booze. It will make you more likeable, and you'll have no urge to talk about your sore throat. If you are drunk enough, you won't even know you have a sore throat.

And sleep on a downward sloping situp board. Getting your throat used to its one or two pH events per 24 hour period is tough love, but your larynx neeRAB it.

I bet if all of that was how they treated this disease, there would be no difference in the resolution of symptoms. It would be as good as ppi treatment. Maybe better, because people aren't stressed from eating their 5 meals a day, and avoiding everything they once loved and feeling sorry for themselves.

Just a thought. I appreciate any feedback.
 
Hey Neddy,
I'm a male, 29 recently diagnosed with reflux and showing all the symptoms of LPR. I'm taking two ppis a day, and it seems to be helping, or maybe it's the placebo effect. When I drink heavily though, the next day is always bad.

We youngish guys seem to be in a sad minority with getting this problem. Have you been able to manage yours. How many breaks from symptoms have you had in the last 5 years or so. I know it's tough, but if you have any encouragement or tips, I could use them. Best of luck to you and hopefully things will get better.
P.S. did yours begin suddenly with a cold? Mine did. Not sure what that means for a long term outlook...
 
Yeah I just got it and I'm trying to figure everything out.

Not knowing what was happening, and just thinking I had a cold was pretty worrying. Now that I know these symptoms are common helps to worry less.

However, reading about the confusion about LPR, and that many good doctors even doubt that it is caused like they say it is, or that the treatments available even make a difference. That's got my anxiety back up. But rather than dwell on that, I notice you've had it for a long time, and you are guy. There don't seem to be a lot of guys on this message board with it. Why do you think that is? Does anyone actually get over it over time? How have the last few years been for you? Does it come and go or is it just steadily there forever (the symptoms like globus and throat clearing, sensitive swallowing)? I really hope you are doing well (and that someday I'll be fine too). Thanks.
 
hi, just wondering about your voice changes, im too experiencing voice changes frequently one day i sound like im 10 yr old then maybe next im slurring in speech.
 
I don't really have much of that. For me, it's just an annoying gravel feeling at the back of my throat, occassional globus (probably after meals), dry patches in the throat. None of the major stuff happens to me, like the ear related stuff or voice changes. Still it's annoying as all f**k.
I think if I can't get a break from it in a year or two, I'll just starting getting my stuff in order. Why put up with this? I don't even believe they have the cause right in many cases. Maybe it is acid or pepsin, but the doctors must be totally wrong about the mechanism of how it is affecting the throat. Maybe it is proton pumps in the larynx itself that are actually producing acid. something triggered this to happen, like a cold or surgery or drinking a lot of alcohol, or vomiting violently triggers some nerve, that suddenly makes acid pumps in your larynx start producing acid. That would make a hell of a lot more sense, and make sense of why ppis don't seem to truly work for anyone with LPR
 
Seeking Sunrise,

I found your post interesting as I am being worked up for LPR right now. I have a 24hr pH probe in and had a manometry this morning. I had fundoplication surgery 12 years ago for what they called atypical reflux back then (they were LPR symptoms). My symptoms have returned and they did follow one of the worst colRAB I have ever had. I have had these symptoms for the past 4 months; chronic cough (this symptom I have had for the last 14 years), chest pain, globus (which drives me mad; I can have this for hours after every meal), voice changes, asthma like attacks. I am not sure what they can do, I am already on PPIs and have had the surgery. Do you see a GI or ENT doc?
 
you really despise PPI's, for how long have you been on them, which one and what dose
 
i have the same problem i sound like a kid having a voice change (no hearburn or pain at all, my throat just burns with citric stuff and for a couple of days even chicken and cookies (low fat) burnt a little)
 
protonix (it doesn't work right) 2 times a day, 40 mg in total.

They don't work. It's proven in the last 3 years. We have nerve damage or a virus, or fungus, or who knows what. But if you don't have esophagitis, you don't have acid reflux, so fuck this stupid idea that we need to supress acid. It's the durabest thing I've ever heard. We need to nurab our vagus nerve. That's all. IMO.
 
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