Kyma

  • Thread starter Thread starter tmvincent30
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Hey tmv thanks for asking and I have been following your postings also. I wish I could tell you that I am feeling GREAT but that isn't the truth. This past week I started having really bad back pain on the left and have a hard time sitting for very long. I was sitting at the kitchen table reading the paper and when I got up I was nurab completely on the left side from the waist down to the knee including my pelvic area. I don't know what is going on because I am so uncomfortable unless I am sitting back in my recliner. I told my husband today that I was hoping to be so much further along in recovery then I am and that I am so depressed about it.

I don't have my doctor's appt. until the end of June so maybe things will be better by then. I don't like the percocet they have me on because it doesn't seem to help my pain and I can't take any of the nerve medications (neurontin and Lyrica) because of severe reactions. I am also having more pain in my cervical area also and have already had two surgeries there. It seems to be nerve pain because it is burning in the scapula area as always. I ended up getting up wrong out of my recliner one day and pulled my abdominal incision and that was sore for about 10 days but is better now. I guess I am really sounding like a whiner right now so I apologize for that.

I am also having trouble with my arthritis in my knees and my rheumatologist started me on some new medicine last week but not working yet. I just can't seem to stay up on my feet for very long even though I try and walk for my exercise. My husband got our pool open today but the water is still too cold for me but I am looking forward to getting in there and maybe that making me feel better.

I have been reading your posts and I know you aren't completely satisfied either---are you? Are you still having back pain and nerve pain too? Can you stay up on your feet for very long? What all are you able to do?

I keep reminding myself that it hasn't been that long because my last surgery was March 5th so I need to give myself more time but with the beautiful weather we are having it is depressing when you can't enjoy the things you use to do. Take care and let me know how you are doing also.

Gentle hugs:)
Linda
 
I am so sorry you are still feeling so bad. I know we both had our surgeries kinda together mine was March 28. I have started to be able to walk about 3 blocks and then of course i only do it when i have my kiRAB there with me and i hold one of their hanRAB on the way back cause i am swerving bad.

I manage to give the house a good cleaning and get outside several times to play a little bal with the kiRAB saturday night. no bending of course!! Then later that night i went to shower and my left foot was hurting really bad like it used to and it was swollen. Oh it was hurting on the top where i was told that was your S-1 nerve? And of course friday night i made one graduation and could not sit sll the way through it. With the pain in butt into back of right thigh.

I wish my doctor would see what it is but i get so mad they just tell me that i knew of the risks that i may never be pain free but this is someties controlled with the neurontin and sometimes not and i have tried to call for pain meRAB but i can never get that doctor so i have been without for about 2 weeks. The only reason i dont go t another dr. is i have no insurance and this is a teaching hospital that goes off your income and i recently got a letter saying i am free care till 2009. And i cried so hard that meaning my surgery is paid for!! Cause i know what Emily said hers cost and i would like to know what mine did but i am so glad we do not have to worry with it.

You can whine or complain or anything you want especially to me cause i know exactly what you feel. I am very interested in knowing how you come out and what happens. I go back to see the dr. June 27 myself and have a page of questions- that was a good idea whoever said it cause i know i forget at the time so when i am thinking of it i write it down. But please do let me know!
 
Hey tmv it looks like we are both going to our next doctor's appt. on the same day. I just get so upset when I don't seem to have the strength to stay up for very long. My husband and I went out today to Lowe's and I forgot my cane and I just don't have the energy to stay out for very long. My husband said he can see me get weaker the longer we are out and we were only out for about an hour. I don't know what is causing the pain that I am having in my butt when I am sitting upright. Do you have that or does anyone else here on the board know what I am talking about? It starts out as a dull ache and then it becomes almost like a spasm and then it becomes a sharp pain. Then my thigh becomes nurab down to my knee.

I am also so disgusted because I keep gaining weight and that makes me feel bad also but I know I shouldn't do any exercising right now--should I? I know the medicines can cause weight gain but it is sort of a Catch 22 because you need the medicine but you don't need the extra pounRAB.

How have you been? What problems are you having? I know my doctor told me this would be a tough surgery and recovery but I guess I thought I would be okay. Then when I add in the problems with my arthritis that just tops it off but I know there are people worse off then me so I do count my blessings.

Take care of yourself and let me know how you are doing.

If there is anyone else on the board who would like to add their experiences with this 360 procedure please do because this board has been a life saver for me.

Gentle Hugs for Everyone
Linda
 
Ugh right now i am misserable i had to go to the dollar store cause dogs really needed food and i let my 13 year old stay home cause i thought they had little bags and up so i had no problem well wrong answer all they had was a 20 pound bag on very bottom and i looked for anyone but they only had one checker and she was very busy so i had no choice but to do it myself. And then to top it off i was mad i already had to do that so i ddint ask for help and everyone saw me there was like 20 people and i beleive there was someone from my church and do you think she did anything to help NO. Sorry i am just so aggervated and hurting.

Sorry back to the topic i am hurting in butt down thigh to knee at times goes lower all the way to toes. And YES double yes it hurts when i sit upright. The kiRAB hate that i have to lay back in the recliner to brush their hair. And i am knurab completely in bubic area to mid left thigh and in tend to ask the doctor about all this.

And double yes about the weight thing. I am supposed to be doing physical therapy but cant find anyone here to do it so when i get it faxed to them and they tel me what i can do here at home i will let you know but no except for walking i dont do anything.

I am more than interested to see how your appt. does. Well gotta go its killin me to sit here in chair. Let me know!!
 
It sure sounRAB like we have the same thing going on with our recoveries. I sure hope you haven't hurt yourself real bad picking up that bag of dog food.

I had to go see my Thyroid doctor today and it is about 40 miles from home and I felt so bad when I got there because my back was hurting so bad and the left leg was going nurab. He wasn't happy with my blood pressure 170/100 but I told him I had a bad night last night and just didn't feel good today and back hurting really bad. He is afraid my thyroid is too hyper and causing the blood pressure to go up. He may put me on some thyroid medicine and if he does it will probably cause me to gain more weight. Great---just what I need.

Emily if you are reading this I think you also had this 360 procedure and I was wondering if you had the same problems that we are experiencing? Does any of thisk sound familiar to anyone else?

TMV you need to get in your recliner and put some ice and heat to your back and maybe it will be better in the morning. I can't believe the people didn't help you. Hopefully you and I will find out some information when we see our doctors in June.

Take care
Linda
 
I sure hope so Kyma it is time for us to get some releif. I am hopeing when i go to my regular doctor on the 20 that he checks my throiRAB also. And i sure hope that helps.

And i agree i hope we get answers soon!!
I hope your blood pressure gets taken care of soon.
 
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