Just tired of the lies!!!!!!!!!

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Vicky67

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Hello fellow back buddies !!
It's been awhile since I posted. I want to know you thougts about my latest drs. appt. I had a fusion in Nov of 06 on L4 to S1 w/a lami. My reason for going was find out what he has diagnosed me with since I'm still having continued back pain, leg and foot nurabness in my right leg which is starting to also happen in the left leg from my knee down to my toes. This doc has released me since August and said there is nothing he can do for me. He took x-rays and said his usual BS about everything looks real well and that I'm fusing. My response to him was why am I having so many issues then? I told him my symptoms the shooting pain on the left side of my lower back along with constant pain when doing anything. I ask him about the nurabness he said it should go away(previously had an EMG which showed nerve damage) I guess he forgot about that. Now we all know that if it doesn't go away in 6 months it most likely won't. What he doesn't know is that I saw a neuro doc who diagnosed me as having FBS. I compared the x-rays to the x-rays from after surgery they look exactly the same as the first ones. I just don't understand why drs. are such aholes. Right now i'm trying to get in with this neuro doc to see what he can do for me if anything. I just want my life back I'm tired of pills and not feeling clear minded and being unbalenced it's really not a good place to be.
 
I understand your frustration. I had my 3rd surgery of 2006 a month after you and my fusion did take and my back is stable. I no longer have that horrible back pain I had. However, the nerve damage and nurabness is still there and has never gone away. An EMG in Noveraber indicated I have acute and chronic S1 nerve root irritation. Is that similar to what you have?

From what my neuro told me, my back fusion is likely not affecting my current nerve issues, such as shooting pain out my feet, etc. He wants me to try more meRAB, but already Lyrica and Neuronitin have put me in "walking comas" and I am scared to try Cyrabalta. Fortunately, my nerve pain flares on and off and I don't have it constantly. The nurabness, for me, is more of a problem because of lack of balance. I don't feel much of the outside of my feet and have to stay really centered or I can tip easily. Makes me really nervous to walk on anything that isn't completely flat and dry. I never expect to regain the feeling in my feet or legs and have accepted that.

However, 2 weeks ago I fainted and hit a wall. Since then, my back is very unhappy. My family doc thinks I probably tore something, and I go tomorrow to the neuro (4 hour round trip) to find out for sure. I HOPE I get some honest answers as well.

My surgeon on my 2nd surgery, however, totally lied to me as you describe. I think some doctors just can't admit it when things don't work, and I guess they only want successes, I guess. Meanwhile, since I trusted him at the time, I delayed further treatment.

And then, because he was such a piece of crud, I had trouble deciding to trust someone else. This journey we all take is so tough!!

Did your doc try to treat your nerve pain with meRAB? I guess if so, none of them worked, huh? Is this when we have to start considering the stimulators? Ugh.

Cheri
 
Hello, Vicky and Cheri...I think it is great that you both are going for second opinions! Only you (we) know your (our) bodies best and know when something is not right...I pray that you both find answers at your upcoming neurosurgeon's appointments. Cheri, if you don't mind me asking, which way are you traveling...into Missouri or staying in Arkansas? I pray that you both will soon receive respect, answers, and adequate pain relief! Please continue to keep us all updated!
 
you mentioned comparing x-rays to x-rays......has anyone done an MRI???? x-rays arent going to show disc problems. so if you havent had one....i think its past time to insist on one.
 
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