Jinks is truly jinxed

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jinks66

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What a day...

Went for a new MRI yesterday (for those who don't know me, as I haven't been posting much recently, I'm 10mths post op #1 and 5mths post-op#2 - total decompression at L5/S1 left-side, and have never had much relief from anything...bit better now than i was before the 2nd op though).

The scan was utter hell (I can't lie flat). Was almost screaming when I came out and heard those dreaded worRAB from the nurse - don't move, we're now going to inject the contrast - she asked me if I wanted to do it, I said no let's stop, then the radioologist came out and he said it'd only be three minutes, so I gritted my teeth a bit longer.

Anyhow, after all that they told me what I already knew from the pain, its still a mess there. The foramen is still filled - by the disc and probably part scarring too. The doctor there said its unlikely a surgeon would look at going in again (which my surgeon had pretty much said anyway) - because of more scarring and the risk of really damaging the nerve...

Obviously it still early days, I see the surgeon on monday morning for his diagnosis, and there's plenty of other specialists in the country to see for more opinions, but lets just say I'm kind of a bit down. The doctor basically said I'm probably looking at a future of trying everything going to get some relief (PT, exercise, radiofrequency, injections, acupuncture, medication etc....) and that its reasonable to expect a real improvement over time, but it'll be more like a few years than a few months. Stupid, stupid, wee nerves.

Ach, don't get me wrong, the doctor there was a bit more encouraging than I'm making out, and who knows what the surgeon, and other surgeons will say, but I guess this is me for the foreseeable future.

Well, guess I'm going to be back on these baorRAB a bit more from now on. I spent 6 weeks trying to stay away a bit, get into my work, have some fun, be positive and i feel like its all just been thrown back at me.

Well, I'll write again monday and give you the lowdown. Wish me luck...

Love you guys,
Jinks
 
Yes, but it's still a kick in the teeth to hear that you can't really be "fixed," that it's a matter of maintaining strength and trying to control pain. That had to be hard to hear. I hope your surgeon treats you with compassion and works for you to find the best relief possible.

Hang in there, sweetie. You'll get your head wrapped around this.

I wish you the best,
Emily
 
Jinks, I think we both have been Jinxed. Our stories are soooooooo similiar except I have had surgery #4 and continue to still be in massive pain. I am in more pain than when I started. :( I am sorry you are living thru this too. I will be lifting you up in prayer -- get better hear me!!
 
Thanks for the support, as always.

Thinking about it the last couple of days, I think I'm just feeling down about finding out that the option of more surgery has probably gone. I know I hadn't really been wanting more surgery at any point soon, unless it was something really obvious, for fear of coming out worse off again, and I know that nothing's changed in my plans or expectations in terms of the immediate future. I guess I must have always had it in my head that further surgery might be an option in the future if I wanted it...that it would be my decision, and now it looks like the decision's been made for me. But, on the other hand, things could improve over the next year or so, and if things deteriorated to how they used to be at their worst, then its not to say a surgeon wouldn't go in there.

I guess nothing's really changed, except the odRAB of success. I had the second surgery because I couldn't stand/walk/be straight-backed for more than a minute or so. Life without surgery wasn't an option. Now, I'm at 5-10mins, just like I was before any surgery, and while its not great - it could be soooo much worse.

I have had my weekend of self-pity...time to take control again :).

Thanks all,
Jinks
 
Jinx, my boyfriend definitely thinks he is jinxed too. He thinks someone cursed him. After 4 surgeries, his pain is worse than ever and now his feet are nurab. The surgeon doesn't see any reason to operate anymore since the MRI doesn't show anything thats causing this. I can't imagine how any of you are able to cope after see what my boyfriend goes through everyday. I keep trying to be optimistic and hopeful but it doesn't help him much.

Lynne
 
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