Hi, Brenda and Mel52.
Thanks for your helpful, informative and supportive replies.
My neurologist said he hopes it isn't MS but rather a vitamin deficiency but I haven't heard anything from the blood tests that I had and it's been a month now since I had them done.
I was concerned that I would come away traumatized but it doesn't sound too bad from what you've said.
A specialist nurse is doing the lurabar puncture and is apparently very good at them and most of her patients say they cannot feel it when she does it so hopefully it won't be too horrible.
Bladder spasms could be caused by a variety of things, including neurological but also mechanical, such as overactive bladder. I have been told my urodynamics show my detrusor is overactive. He also suspects something with my sphincter/urethra - that it is not relaxing. I get pain on my abdomen but painkillers don't work as I tried that. The only thing that really relieves it is going to the toilet but because I don't empty completely it fills up so fast and causes my frequency. A vicious circle. I too have to make sure I get to the bathroom as it causes pain if I don't go and rises in intensity as it fills up.
Mel, Have you had a urodynamics test as this may help in making a diagnosis or give a clue as to what could be happening? Though they don't know what is wrong with mine, they are really guessing as they say there is nothing they can do and that I am to suffer basically which in this day and age I'd have thought would have been unheard of. Extremely frustrating and I can see why health problems that are chronic can lead to other problems due to stress from the pre-existing chronic condition sort of thing. Again, a vicious circle.
Sometimes spinal fluid is slow in coming out but I don't know why. It's like when people have blood tests and it doesn't come out immediately. Though, my blood whenever I've had a blood test comes out quite quick!
I find it odd how a neurologist or anaesthetist is not doing the lurabar puncture but a nurse who specialises in it. Has anyone else heard of this? Perhaps it's because I'm in the UK? Not sure. Will this nurse know my spinal anatomy and where not to put it in case of paralisation? That's what concerns me.
I would have thought back surgery would make it slightly more difficult but perhaps not because you had a skilled neurologist. Mine may be unusual due to grade 3 degeneration where my discs are crsuting away and losing fluid.
I am not really heavy, about 7 stone. Hopefully it is quick and over as I am not exactly keen on having a needle stuck in my back!
P.S: I rang the hospital up and apparently it is daycase after all! They, for some unknown reason, call it inpatient because it is in the hospital and I'm having it done there. Doesn't really make sense. It should actually be called daycase surgery or something...
Many thanks for both your helpful replies.
Kind regarRAB
Niad