Hello rabroad Merabers,
some of the older ones may remeraber me. I have been through may surgeries (16 none of them back related) and have Ehlers Danlos Syndrome and Scoliosis. As a result of a genetically bad hip my lurabar is herniated in two spots with a 5.5mm protrusion as of my last MRI 16 months ago. I also have loss of disk height and dried disks.
For years my lurabar pain was minimal and I felt blessed after years of reading so many things here. Generally I would only have spasms. If I over did things, say cleaning, the house then the pain a bit more intense but short lived.
I was doing fantastic until last week when something happened. What I don't know. I had gone shopping alone, which I generally don't do as it stresses my back. Since then and particularly since yesterday I am experiencing excruciating pain in my spine/lurabar that feels more bone one bone than spasms. I have extreme pain just to the right of my spine above my hip by several inches. It's right along the spine directly not inches over
The second I put pressure on that leg (which is my good one, left hip replaced 4 times, leg discrepancy led to scoliosis) the pain intensifies dare I say to an 8 (10 to me is acute severe short term post op, 3rd degree burns etc) where as normally I maintain a 5 or less in my other joints. I seriously considered the ER last night but cried myself to sleep instead.
I saw my nuero last year who was more concerned with my cervical spine and had it fused a second time due to another herniation which was smaller than my lurabar but I also had broken hardware. He did not address the lurabar at that time and it wasn't a big deal to me as I learned to manage.
My feet also feel cold, my knee is swelled, I think from putting extra pressure on it as the cartilage is gone anyhow, and sometimes random pain from side to side of the lurabar. It is not, in my opinion, sciatica related. I have had that problem before, and the symptoms are not the same and am believing my back just finally decided to go down that road so many of you have gone.
I am looking for a fantastic, not good, not great, fantastic, doctor that I can see about this. Do any of these symptoms sound familiar to you all? I'm terrified of surgery but know no way can I live my life like this. I am now using a walker to get around.
My current nuero is a great doctor and never failed me on my ACDF's and is the only one in the area I live that doctors suggest but I do live near the Cleveland Clinic and that is an option for me.
Any suggestions or advice in my situation would be great. I saw my PM yesterday and he told me he doesn't see people who have had a successful surgery so I don't know the success rate IF I need surgery or even what type I'd need. I'm just trying to mentally prepare myself for what may be the inevitable
Thank you
Barbie
some of the older ones may remeraber me. I have been through may surgeries (16 none of them back related) and have Ehlers Danlos Syndrome and Scoliosis. As a result of a genetically bad hip my lurabar is herniated in two spots with a 5.5mm protrusion as of my last MRI 16 months ago. I also have loss of disk height and dried disks.
For years my lurabar pain was minimal and I felt blessed after years of reading so many things here. Generally I would only have spasms. If I over did things, say cleaning, the house then the pain a bit more intense but short lived.
I was doing fantastic until last week when something happened. What I don't know. I had gone shopping alone, which I generally don't do as it stresses my back. Since then and particularly since yesterday I am experiencing excruciating pain in my spine/lurabar that feels more bone one bone than spasms. I have extreme pain just to the right of my spine above my hip by several inches. It's right along the spine directly not inches over
The second I put pressure on that leg (which is my good one, left hip replaced 4 times, leg discrepancy led to scoliosis) the pain intensifies dare I say to an 8 (10 to me is acute severe short term post op, 3rd degree burns etc) where as normally I maintain a 5 or less in my other joints. I seriously considered the ER last night but cried myself to sleep instead.
I saw my nuero last year who was more concerned with my cervical spine and had it fused a second time due to another herniation which was smaller than my lurabar but I also had broken hardware. He did not address the lurabar at that time and it wasn't a big deal to me as I learned to manage.
My feet also feel cold, my knee is swelled, I think from putting extra pressure on it as the cartilage is gone anyhow, and sometimes random pain from side to side of the lurabar. It is not, in my opinion, sciatica related. I have had that problem before, and the symptoms are not the same and am believing my back just finally decided to go down that road so many of you have gone.
I am looking for a fantastic, not good, not great, fantastic, doctor that I can see about this. Do any of these symptoms sound familiar to you all? I'm terrified of surgery but know no way can I live my life like this. I am now using a walker to get around.
My current nuero is a great doctor and never failed me on my ACDF's and is the only one in the area I live that doctors suggest but I do live near the Cleveland Clinic and that is an option for me.
Any suggestions or advice in my situation would be great. I saw my PM yesterday and he told me he doesn't see people who have had a successful surgery so I don't know the success rate IF I need surgery or even what type I'd need. I'm just trying to mentally prepare myself for what may be the inevitable
Thank you
Barbie