THE *only* lePineyapple
New member
To be honest, you've probably seen my questions about this 'round here for the past few days, and I'm honestly sick of explaining this (to my doctors and everyone), but no one seems to just shut up and listen to what I have to say, instead of putting their own spin on it (especially my doctors and my mom).
So two years ago I was diagnosed with PCOS (though they suspect I've had it for a long time since I was a kid because I had unusually high insulin levels and weight [for my lifestyle] even though I was a pretty active kid and didn't have diabetes) and vWD (von Willebrand's Disease) which caused me to have six-month-long periods. They gave me blood transfusions, birth control pills, yadda yadda...Now here we are, two years later. I'd missed my period for six months again, while on the pill, and then eventually stopped taking the pill because I was getting extremely sick...A month and a half ago, they jump started my period with progestrone (agestin or something like that) put me back on the pill (aviane) and I was still bleeding so much that it would run down my legs whenever I got up, and my underwear and clothes and pads were sopped with blood (sounds gross, I know, but an important detail--it was like someone just gutted me from down there and left me to bleed, like some excessively grotesque horror movie). Last week (Monday) I went to the ER and they put me on Low Ovral (then sent me home because my hemoglobin was just 10.5 and no serious drop), four pills for two days, then three for two days, two for two days, and then one a day. I was still bleeding, and what's more, I got extremely sick. They'd also prescribed Zofran for the nausea but my insurance would only pay for a five-day supply and so I have to use it very wisely. Now I'm still bleeding, even more just after I take the pill and then SLIGHTLY less a few hours after, I feel hungry all the time but at the same time I don't want to eat because everything makes me want to throw up (I tried filling up with water and fruit but that only makes the cramps and nausea even worse), I get excruciatingly painful cramps and very bad headaches, I feel in a daze, sometimes dizzy, and I have this constant pain in my stomach and just below the uterus that worsens on top of the cramps and LOTS of vaginal cramps. I'm also sluggish, sleepy, and fatigued--I can't even walk up steps without feeling winded. I started to sleep untill NOON when I'm used to waking up at 6am. While I used to go on walks for HOURS nonstop, practice dance routines for two hours straight every day, and go to theatre/dance classes on weekends, now I can't even practice a one-minute routine without feeling like I could just collapse on the spot. I can't even stand for long periods of time. Everyone keeps saying it's because of my weight (I'm 90lbs over, even though the PCOS counts for a lot of it) but I'm LOSING weight now (pushing myself to exercise regularly but not as intensely as I used to) and there's still NO DIFFERENCE. If anything, things are getting worse. I notice now that I can't even eat a slice of cake or a single veg'n candy bar (which I don't do often) without it sticking to the ugly, annoying fat I've already got. Furthermore, I'm a VEGETARIAN. No one seems to think it's strange that a vegetarian who is as active as I am is THIS fat. Furthermore, everyone in the doctor's office tends to dismiss a lot of my symptoms because they believe that fat people can't be as active as I was.
That's the same mentality that got me to a 3.5 hemoglobin two years ago, and still trying to push myself (walking through unbelievable heat and long distances) to prove that I wasn't a weak person (which was what I thought and what everyone told me before I got diagnosed) and thus almost KILLING myself. Now everyone's doing the same thing--calling me a lazy fatty, making me eat less even though it makes me sick, telling me I'm doing all this to myself, making me out to be weak as a woman (girl, really, since I'm sixteen).
I seriously think something is wrong with me. Right now I'm in and out of very bad pain and nausea. I have a terrible headache and feel dizzy sometimes as I am walking. Should I perhaps go to the hospital? Do you think something is really wrong with me? What the hell should I do? I'm so frustrated!
Also, I get checked regularly for blood sugar and insulin levels and the doc said that my frequent exercise and healthy diet is keeping the insulin down and that my blood sugars are all normal. I doubt I have diabetes, even though everyone keeps suggesting it. I also don't have all the symptoms of diabetes, just one or two of them and the same symptoms could apply to a LOT of other well-known illnesses I've researched...certainly not a basis to diagnose me with diabetes. I also get my cholesterol levels checked and though my triglycerides are SOMETIMES just a little high, nothing serious has happened and I usually keep it down. The "Good Cholesterol" has been at a good level.
Got checked for fatty liver as well...found nothing.
So two years ago I was diagnosed with PCOS (though they suspect I've had it for a long time since I was a kid because I had unusually high insulin levels and weight [for my lifestyle] even though I was a pretty active kid and didn't have diabetes) and vWD (von Willebrand's Disease) which caused me to have six-month-long periods. They gave me blood transfusions, birth control pills, yadda yadda...Now here we are, two years later. I'd missed my period for six months again, while on the pill, and then eventually stopped taking the pill because I was getting extremely sick...A month and a half ago, they jump started my period with progestrone (agestin or something like that) put me back on the pill (aviane) and I was still bleeding so much that it would run down my legs whenever I got up, and my underwear and clothes and pads were sopped with blood (sounds gross, I know, but an important detail--it was like someone just gutted me from down there and left me to bleed, like some excessively grotesque horror movie). Last week (Monday) I went to the ER and they put me on Low Ovral (then sent me home because my hemoglobin was just 10.5 and no serious drop), four pills for two days, then three for two days, two for two days, and then one a day. I was still bleeding, and what's more, I got extremely sick. They'd also prescribed Zofran for the nausea but my insurance would only pay for a five-day supply and so I have to use it very wisely. Now I'm still bleeding, even more just after I take the pill and then SLIGHTLY less a few hours after, I feel hungry all the time but at the same time I don't want to eat because everything makes me want to throw up (I tried filling up with water and fruit but that only makes the cramps and nausea even worse), I get excruciatingly painful cramps and very bad headaches, I feel in a daze, sometimes dizzy, and I have this constant pain in my stomach and just below the uterus that worsens on top of the cramps and LOTS of vaginal cramps. I'm also sluggish, sleepy, and fatigued--I can't even walk up steps without feeling winded. I started to sleep untill NOON when I'm used to waking up at 6am. While I used to go on walks for HOURS nonstop, practice dance routines for two hours straight every day, and go to theatre/dance classes on weekends, now I can't even practice a one-minute routine without feeling like I could just collapse on the spot. I can't even stand for long periods of time. Everyone keeps saying it's because of my weight (I'm 90lbs over, even though the PCOS counts for a lot of it) but I'm LOSING weight now (pushing myself to exercise regularly but not as intensely as I used to) and there's still NO DIFFERENCE. If anything, things are getting worse. I notice now that I can't even eat a slice of cake or a single veg'n candy bar (which I don't do often) without it sticking to the ugly, annoying fat I've already got. Furthermore, I'm a VEGETARIAN. No one seems to think it's strange that a vegetarian who is as active as I am is THIS fat. Furthermore, everyone in the doctor's office tends to dismiss a lot of my symptoms because they believe that fat people can't be as active as I was.
That's the same mentality that got me to a 3.5 hemoglobin two years ago, and still trying to push myself (walking through unbelievable heat and long distances) to prove that I wasn't a weak person (which was what I thought and what everyone told me before I got diagnosed) and thus almost KILLING myself. Now everyone's doing the same thing--calling me a lazy fatty, making me eat less even though it makes me sick, telling me I'm doing all this to myself, making me out to be weak as a woman (girl, really, since I'm sixteen).
I seriously think something is wrong with me. Right now I'm in and out of very bad pain and nausea. I have a terrible headache and feel dizzy sometimes as I am walking. Should I perhaps go to the hospital? Do you think something is really wrong with me? What the hell should I do? I'm so frustrated!
Also, I get checked regularly for blood sugar and insulin levels and the doc said that my frequent exercise and healthy diet is keeping the insulin down and that my blood sugars are all normal. I doubt I have diabetes, even though everyone keeps suggesting it. I also don't have all the symptoms of diabetes, just one or two of them and the same symptoms could apply to a LOT of other well-known illnesses I've researched...certainly not a basis to diagnose me with diabetes. I also get my cholesterol levels checked and though my triglycerides are SOMETIMES just a little high, nothing serious has happened and I usually keep it down. The "Good Cholesterol" has been at a good level.
Got checked for fatty liver as well...found nothing.