dragonstar
New member
TAKE IT ANYMORE!!!? i was recently diagnosed with Narcolepsey and a seizure disoreder.I have had 2 doctors diagnose me with Systemic Lupus and 1 that said, no I didn't have Systemic only Discoid. I have taken treatment prescribed by an Interologist for Systemic Lupus, which is an anti Malaria medication, it was awfull! I truly feel like I am gonna die, daily! I have been through 19 surgeries and last month my dr recomended that I see a Neurosurgeon for ANOTHER surgery on my back. I am 33, a single mom of 2 kids with no close family, and pretty much no friends, no social life at all, but I wouldn't beable to maintain a social life anyway.plzzzzz, I am so overwhelmed and exhausted, everything is an effort and I have no energy. I do not want to live this way. what scares me the most is that every year, it gets worse. this cannot be my life, I had dreams and goals I want to play with my kids, right now, I can't even drive because I had a seizure and ran my car into a parked truck!!! so now there is a medical restriction on my drivers license. I want a job and friends,a boyfriend, I want to drive and take my kids on vacation. I see people all around that don't appreciate the fact that they are healthy, that they have jobs and friends and family, they take so much for granted. Is there a place that helps people with medical problems like mine? where do I look, go, who do I talk to? what do I do? PLEASE help, I need to know. I do not use drugs, or drink, or smoke. I am on to much medication for any of that, though I wouldn't do it anyway. I am becoming really depressed and secluded. I don't leave my house except to go to another Dr, counceling appt. boring!!! what would you do??? I hate living like this.I also have pointless, random racing thoughts constantly and my whole body burns and aches. I am having seizures (multiple) daily I am constantly in pain and feel like my body is going to collapse daily. this sucks soooo bad.