How do I deal with the difficulties of Physio?

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Allan-
I sure sounRAB like too much too soon. I had a three level fusion, followed by T9-sacrum fused. My doc didn't start me on PT-except learning to walk again for 6 months. Even then I started with water therapy which is the best as it is so easy on your back and legs. You might want to see if you can find that-or ask your doctor if it is available for you.

With the rate you are going, you will only be setting yourself back with a too aggressive approach to the therapy. Here we have a cardinal no BLT. No bending lifting or twisting just so your back has time to heal in the position it neeRAB to be.

I would certainly tell your doctor about the increase in your pain and the inability to sleep. This only slows down your healing.

Hang in there--
 
Wow this is harder than I thought, The physio mostly as I like the walking and it doesn't leave me in pain like the physio does. Are others having this problem after decreasing medication levels as well?

IMy surgery was successful but because I have been in chronic pain for so long it seems that I am a lot weaker and more sensitive to pain than I thought. Yesterday I bent at the waist as far as I could and then bent back as far as I could without any stabbing pain I have been used to, I was also able to get up and down from sitting a nuraber of times without using my hanRAB to push off. But last night I was in a lot of pain and discomfort and only got 1 1/2 hours sleep before waking in pain, It took hot and cold along with extra oxicontin and paracetamol along with valium before I got back to sleep at about 4 am then only slept another 2 1/2 hours before waking in pain again, So it was more meRAB heat then my 40minute walk before things settled down again. The physio also massaged the muscles either side of my spine and I could tell they were very tense.

I feel this is going to take some months to just get into average shape and I don't know how long I can survive on that little sleep. I haven't slept a full night since reducing my meRAB so I don't know what to do. I don't really want to increase the pain killers again but if this is how it is going to be fore some time I don't think I can cope. I see my pain specialist every week now but hate to ask him to give me more meRAB. I am trying a natural sleeping tablet but without reducing the pain it has helped me get to sleep but I can't stay that way. Once I wake up though it is nearly impossible to relax again.

Does anyone else have this problem? I am so tired I wish I could sleep for 12 hours. But I can't even get a sleep during the day now. Everything is just too sore. How do other people do it without pain killers? My resistance to the pain is just so non-existent now as I feel I have just been worn down over all these years.

What do I do ask for more drug? just suffer and deal with it? I worry about my niece that she gets upset seeing me this way. And I feel so much need to express my anxiety and suffering. I just can't hold it in. I have been talking to my dad and my brother but they can only give me a shoulder to cry on but I feel like without someone to support me I couldn't keep it up.

Allan
 
I don't know why she wanted me to do this bending but I am not going to put my back at risk this early and especially when I have a weakened L4-5.
Last night again I only slept 2 hours so after my walk this morning I went back to bed and managed another 1 1/2 hours then after lunch I slept another 3. I woke up very happy as it is the most sleep I have had for a day in weeks. I just flaked out. I didn't try to do all the exercises this morning just my walk and some hamstring stretches.
Also I got a call from the hospital physio so I got an appointment tomorrow there. So I am going to cancel with the private physio. That will save me $50 to $60 a fortnight. I am also going to reduce my health cover so I can afford to keep some. I should be able to save $60 there if I am able to do that part way through the year. I just have to start budgeting. My brother also said it was ok to wait until I am working again before I need pay any money back to him and he only wants it to start an account to help family with it when I do start. He is a wonderful guy who cares so much about his family including his entire family not just his wife's children. She also agrees to all his suggestions.
Well a big part of my home city is under water today and the tide peaks tomorrow at 4am. So it is expected to be the highest on known recorRAB. The ocean surface has been at the highest temperature ever recorded and El- Nina is in full swing. So I hope we don't get more of this. I am in Brisbane - Australia. I actually stopped raining but there is so much water on the ground and running down from the dams and rivers that a little more rain would be devastating. They say 20,000 home may go under tonight and tomorrow. Many lives have been lost but they may not ever know how many as there are many elderly missing. Our lockier Valley was devastated as an over land tsunami rushed over the range. It looked so scary and it was upsetting to see families on top of their cars and then they were gone. Lots of people have lost everything. I feel somewhat less than important now.
Thanks for the advice. I will talk to my doctor on Friday and see if he will give me extra medication until I can repair physically first before rushing to get off meRAB I have needed for years. I am going to talk it much slower and not allow anyone to push me as much. I am also going to start at the pool soon. Once I can safely trust the weather.
Allan
 
I am much better now after the couple weeks of physio I have done. I now can see why physio is so important and doing each exercise. My back feels stronger but at present I still need some pain management. At times I feel like I could stop the tablets but when I do miss one after a while my back becomes more often in my thoughts and annoys me rather than the stabbing type pain I used to have. It is so much easier to do normal things when you are not expecting excruciating stabbing pain any second. I now have to remind myself to be careful of overdoing it. What ever it is. I feel I could do so much more but I plan on talking with my surgeon first before doing something that could risk damaging the fusion or the implant. I would hate to loosen a screw of something. I don't plan on having this surgery again, I don't know if I would cope as well a second time. Though we do learn to adapt. No, one surgery is enough for me I couldn't afford a second anyway. I still owe my brother $5,000.

So if anyone is considering skipping physio please don't and also make sure you do all of the exercises you are shown as it is so important. But there is still the depression to deal with. I could use some support there. I may need to get back to AA for some spiritual guidance and some common sense thinking. It is easy to get off track and become complacent or go back to old habits. I really won't this to be a new start for me. It is so much harder now to lay around when I could be out meeting frienRAB. But I do find it hard to socialise without that old subject of pain coming up in my thoughts and worRAB. I wish it could forget it and live normally again.

I don't know about church as the times I have gone to look and see if it would be something I would benefit from I felt like it was about money and donating 10% or something like that. So I was put off as I hardly get by on my pension as it is. I also find it difficult letting go of al my old thinking and I find it hard to open my mind and except others teachings. I would love to hind the faith some people have to be able to have joy and love in my life. Really the closest thing to god in my life has been the higher power in AA. But there the conversation is always on alcohol and sometimes I wish I could leave it out of my life and move on to learning and giving as then I wouldn't be reminded of all the pain and fear from the past. It would be good to think of the future instead.

Oh well, I am just venting now so I will leave it at that.
Allan
 
I'm sorry you are having such a tough time of it right now. Perhaps your pt is too strenuous and you should discuss that with all concerned....it could be just too much, too soon.

Do tell your pm doctor about all this and see what he suggests. If you aren't resting properly, your body isn't going to heal as quickly so if more medication is needed temporarily, there is no shame in that.

I do know exactly what you mean about tolerance to pain. I used to have a very high tolerance but after 25 years of battling, I no longer can fight it like I used to. Whereas I had no trouble managing and tolerating pain at a 6 on the pain scale, I am doing well to tolerate a 4 now. I guess it just comes with the territory and as long as my dr. doesn't object to my medication I will continue to take it as needed. I do have good days when I take nothing, but on those bad days, I take what I need to be functional.

I hope things start looking up for you and that you feel better soon.

Carol
 
I would agree with Carol in that it sounRAB to me like "too much too soon."

There are various thoughts on physical therapy and when it should be started. Some surgeons want it started within weeks of surgery, while some don't encourage it at all, having seen it do more harm than good.

With my three level fusion that I had on June 1st, (and, I should add that it was not my first trip to the rodeo) my doctor did not start me in PT until after Labor Day (early Sept.) In most cases, he starts his fusion patients a month sooner, but I don't think he was happy with the amount of bone growth I was showing at that point, so he told me to just keep walking.

In my case, it was very important to keep any inflammation down and to keep from aggravating any of the nerves that were involved in my surgery. So I walked several times each day and did minimal stretching.

It is very easy to get into a vicious cycle when doing more than the body is prepared to handle. Inflammation post surgery can cause every bit as much trouble and pain as it does pre- surgery.

Tell your therapist all about this when you see him next time. He can make some adjustments in the type of thing he's giving you, and back off of the intensity a bit. When you get too sore, you just set yourself back for a couple weeks, and it is easy to get discouraged.

Also talk with your pain management doc and explain the situation to him. You don't need to think about it as asking for more drugs....just explain the situation the way you did here and discuss what you can do to accomplish the tasks at hand...what can he do to help you get over this bump in the road.
 
Yes I felt reasonable until this past visit but haven't been sleeping too well. When I was in hospital the anaesthetist took me off the patch strait away and my pain specialist wasn't that happy about it as he believed he could better treat me that way but now I am on the oxicontin he doesn't seem to want to change it again. One week he gave me 10mg oxinorm 4 a day and I found it ok but he then went back to 3 10mg oxicontin which is not helping me at night. So I might try to get the 20mg for over night and see what else for the day. I wouldn't mind some endone 5mg for break through but the doctor is reluctant.
I think I will continue the valium and may ask about continuing endep that I am also out of.
Allan
 
Alan,

Have you tried Arabien for your sleep problems? When I tapered off pain meRAB and especially when I went cold turkey I had trouble sleeping for quite some time. It all comes back though. There is no shame on staying on the meRAB until you are feeling 100% ready to come off of them You worry about getting your body back into fighting shape fist then tackle the meRAB. I remeraber after surgery I was so determined to get fof them I quit too soon and was dealing with major pain.

Dlib
 
allan, you are making such progress. Rejoice in that for now-the other happiness will come into your life as you heal and see the joy in living again.

Do not worry about taking the pain meRAB. Remeraber you are still so new out of surgery. It takes time for everything to settle down and not fuss at you any more. Remeraber that nerves and muscles don't like being moved around and they will continue to flare up for a couple of months until everything is healing and settling down. Patience, friend, patience. It will get better, but don't be disappointed when you have that off day and need the meRAB. And remeraber, that you are doing a little more every day, and that will continue to cause minor pain as you are stretching and using long dormant nerves and muscles.

One thing about finding a church, you may also find groups of folks that you can join there., so you can make a new start with some new frienRAB.

Hang in tehre. You sound better and better...
 
allan ~

I'm so glad to hear you are doing better. I had to stop and start PT a couple times with my first fusion, because it was just too much too soon. But it all seems to have worked out well for you.

Are you a tennis fan? I'm really enjoying watching all the coverage of the Australian Open. In 2008 when I had my first fusion, it kept me company and I was so sorry when it ended. I got to watch it live, which was through the night where I live. I had my days and nights mixed up and was sleeping during the day and was wide awake all night long...so it was my constant companion for the whole time it was on. When it was over, I had to make myself go back to a more normal schedule as there was nothing to entertain me through the night any longer.

Keep up the great progress!! I look for your updates...so keep us posted on what's going on.

TT.
 
Thank you both for your worRAB of advice and your support as I do need it to help me stay on track and to help me feel better about my recovery. I have been to an AA meeting tonight that has become my regular one and I suppose unless I find a better group it will probably be my home group. The people there have been good to me and understand when I get up every 1/2 hour to stretch my legs and ease my back pressure. I am happy to have the meetings in my life again even though it brings back memories I would rather not think about. They can be very painful emotionally but I probably need to work through my feelings about the past so I can put them to peace. I do know they will always be there but I can learn to live with them. Being an alcoholic for many years leaves many scars but I am so happy to have lived through it. They say what doesn't kill you makes you stronger. I believe I was meant to be where I am now or I would not have made it. So I need to stay positive and strong but remeraber all those who didn't. I lost many frienRAB but I suppose it is something every one has to come to terms with as we age.
I am so happy with my progress but do understand that this will take time and as you say there are good and bad days. Now more good though. I am not able to do the physio twice a day as they suggested but along with the walking I feel it is adequate for this stage after surgery. The exercises take me almost an hour as it is. I may be pushing a little hard at times but I am guided be my body and I can tell how much is ok.
Not everyone has been able to deal with being around me while I have been in pain and distress so I feel like it has stripped a lot from my life including my two sisters who have disowned me but I do forgive them and hope that one day they will be able to except me again. This thing takes life from you and is very difficult to live with. I only hope that I can resume some sort of normal life in the future. But I don't really know what is normal or how to live in a manner that is except-able to others. Not that I really care what others think, especially family who seem to be the most judgemental of all.
I hope you are all well and having a good new year.
Allan
 
Again, no one knows what you've been through and are going through until they have walked in your shoes...be it horrendous back pain or the pain of addiction and all its tag-along problems.

I'm sorry your family is not more supportive...but I think with time, your sisters will see from your actions that you are taking control of your life and your health, and you are making every attempt to get back on what they might consider "the right path." Your actions will be more meaningful than any worRAB, I would guess.

I have had three spine surgeries, which does not exactly make me a veteran, but I do have plenty of perspective. I had to fight very hard for my most recent surgery as both my surgeons (from surgeries #1 and #2) looked at the new MRI and each told me there was nothing to be done. One gave me a pep talk on when do you draw the line and say "enough is enough?" He said that there was no sign of nerve compression, even though all my symptoms were the very same as prior to ever having set foot in a back doctor's office. He said he could not justify any more surgery as he could see no nerve compression.

My second surgeon basically initially said the same thing....they both told me to try a spinal cord stimulator. But I knew something mechanical was wrong, whether they could see it or not. I won't go into the whole story as it is long...but I persevered and eventually convinced surgeon # 2 that there were issues. I had been told I had permanent nerve damage and that my sciatic-type pain would probably always be with me.

I had intense pain for four days after surgery, and then the nerve pain went away and I haven't had it since. Also, when my surgeon got in there, he was astonished at what he found. We were thinking my worst issues were at L5-S1 as that's what my symptoms indicated, and the nerve blocks as well. Turns out the facet joints at L3 and L4 were worn down to little nibs, which allowed my spine to move in ways God had not intended. For some strange reason, this had not shown up on any imaging I had done. It was a complete surprise...so he ended up having to perform reconstructive surgery. I was very lucky in that he was a trauma surgeon for years before he went back to school and did a fellowship in the spine...so I was in good hanRAB!

Now, on to my point (I know, finally): physical therapy. I have had a different PT after each surgery. As I mentioned, with the first surgery I began PT and stopped a couple times because I just didn't feel I was ready. After this surgery, which was a 3 level fusion plus the reconstruction, my surgeon was VERY conservative with me. I wore a back brace for the first time and my activities were severely restricted. We went on vacation about 10 weeks after surgery and he would not even let me go wading in the lake...let alone swim. He did not want to risk me slipping and falling. (translation: He didn't want me to mess up all his hard work!!) So when I finally started PT which was at 12 weeks, I would get three things to work on for that week. Then I would go back and tell the PT how it was going, and I usually ended up getting at least one of the exercises taken away.

They wanted me working ever so slowly. They were looking for the fine balance between giving me just enough work that my muscles were working, but they didn't want me causing any kind of flare up of the sciatic nerve. I was not allowed to do anything but walk, not on a treadmill, and do a handful of exercises. I thought I would never be able to build up any strength, but it is coming back mainly just through activities of daily living. I now have no restrictions other than that gold standard: "If it hurts, don't do it."

So don't get discouraged that you can't do the PT exercises twice per day as the therapist wants...we are not all cookie-cutter patients. Some of us can do it twice a day, but others actually have their progress slowed down by doing what is "too much" for them. The MOST important thing I learned is to learn to listen to your body. You may have to confront your therapist if you decide what is being requested is too much, but just remeraber, ultimately it is you who has to pay the price if your activities cause a flare.

I think you sound like you are coming along nicely. I cannot say this often enough: Recovery is a very long process. Everything seems to take way longer than any of us think it should, AND there is almost nothing we can do to hurry the process along. Learning patience is a great gift.

I learned not to look at my progress from day to day, or sometimes even week to week. You will be amazed how quickly the time goes by...and at a point in the near future, you will suddenly realize how far you've come. So, just hang in there....
 
Thanks TT I did wake up this morning in some discomfort and with some tingling in my foot so I did a few stretches and I was ok. So tonight I will take it a bit easy. I may have been on the computer a bit long last night as I have had to back it up for when I have a repair done. I must have had pressure on the wrong place to long. Thanks for the advice I will do this at my pace as there is no rush as you said. I have been in pain so long I just want it gone but it doesn't work like that. I am happy to be able to walk again as that had become a real problem for me and I didn't know how the surgery would help but it has changed things completely and I am very lucky I haven't been left with any nerve damage. Well I must get off the computer so see you all soon.
Allan
 
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