Help me please if you can!

Z

zxchyy.<3.you

New member
To make a long story shorter...I have had numerous back operations and recently found out that my spinal fluid didn't go all the way down in my back, just stopped dead. My legs were in terrible pain all the time. I have a pain pump, yet it wasn't much help. I finally found a great dr. who said he could help me...or try to. Said he couldn't make matters worse. He operated on me about two weeks ago and it is amazing. The difference is fantastic EXCEPT for one thing. My right leg won't stop hurting. It is like it is on fire part of the time and the rest of the time it just throbs. I cannot take either medications suggested: Neurotin (I know it is spelled wrong) or Lyrica because of allergies. Any other suggestions. He is trying...but this pain didn't start right away. It is because, according to him, because he attached MANY nerves that had been a mess...trust me, he is right about that. WE know for sure. If it weren't for this leg, I'd be a brand-new person.
Thanks for listening...this is my first post ever!
Gugee:confused: Oh, I have Fibro-myalgia, diabetes too. Used to be in GREAT health..until a Doctor (used loosely) did this to me to begin with! No kidding...I won large law-suit against him.
 
What you are experiencing is nerve pain...and it takes a looonnng time to settle down. If Neurontin and Lyrica didn't work, why don'tyou try Topomax? That's the third med that I know of that is used for nerve pain. I have been on all three.using Neurontin now. Give topomax a try and see if it helps...good luck!
 
Thank you so much for you quick suggestion. I am at my wits end. I know I am much better, overall, but am ready to hire someone to cut off my right leg! The problem with that is...it will still hurt, according to the dr. It woke me up,as usual, about 4 times last night.
I think I even have some Topomax. Thanks again so much! I'm very, very tired of pain. Been in chronic pain for over 10 years now. Even my pain pump isn't working like it did. I kept having symptons like withdrawal ones and this continued for 7 years. It got to the point where I didn't get out of bed. My husband (of over 38 years) would haul me back and forth to the ER...where they would comment on my extremely high blood pressure, sweats, etc. and then tell me that they weren't going to give me pain meds. I would again tell them, "NO! I don't want any! I just want this to stop!" Then when I had seriously reached my breaking point, a nurse called me at night (she was someone I had never met..but she was going over charts for the last dr. I had seen). She told me she knew what was wrong with me...("sure, you do!") I thought. She explained that, although my pain pump had been changed 3 times (because of low batteries) the catheter had not and she had reached a conclusion that it was kinking from time to time. That would stop all pain meds, of course, for a while, then when I would get up and go to dr. it would straighten out (most of the time). She had to TALK THE DR. IN TO LETTING HER RUN A HISTORY ON MY PUMP). That is extremely hard to do...they just hold an electronic device over the pump for a few seconds! He did agree, since she insisted...and guess what! Sometimes, I would have over 1/2 of the meds still in there that I should have had. I recalled that at times I would ask the nurse who was drawing out the meds to put in new why there was so much left over...and they'd always say..."it just works that way sometimes!"
I was put into the hospital within two days and the pump (which was due to lose it's battery power soon anyway) and the catheter were both replaced. When the dr. put a syringe into the catheter to draw out any old meds, there were NONE in there at the time. Since then, I had become a new person! My pain pump meds were cut down to where they belonged and then this new problem arose. It may have been there all along gut I was in too much pain to notice it much. Now, if I can get this fixed, who knows what my life will become. I used to do aerobics 3 times a week and loved shopping, etc. Well, I've bored you enough....but thanks again, so much.
Gugee
 
Back
Top