Has anyone ever heard of or had ....

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Rob61

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Carmaanne


I also have problems with (pete) lol I try to make lite of it my surgen also thought he was God lolbut i knew it was a failed surgery when i woke up and if i moved pain shot though my entire body.

Hope he feels better


Rob
 
Has anyone ever heard of or had legs going out from under them and nurabness and tingling feelings post L5 fusion surgery? My husband also has what the doctor says is carpal tunnel but why would that start after the surgery when he has been doing nothing! Our main concern and question though is if anyone has increased or the same pain as well as the leg problems post surgery. My husbanRAB surgery was 07/07/03. Thank you for taking the time to read this and post a reply

Carmaanne :angel:
 
Hi Rob

THanks again for your worRAB of support. I hate his 'pete' problems!! Where have you went now that the surgery was failed? My husband is in so much pain and is about 6 mos post op. What do we do next?
Do you also know if there is a more personal way to discuss these topics ... ie the pete problem w/o the whole world reading it? hehehe
thanks much and hope you are donig well too!
Carmaanee :angel:

I also have problems with (pete) lol I try to make lite of it my surgen also thought he was God lolbut i knew it was a failed surgery when i woke up and if i moved pain shot though my entire body.

Hope he feels better


Rob[/QUOTE]
 
Hi, carmaanne. I would say that your husband should see his doctor about this...some people have problems with nerve pain after surgery for a while, but this is longer and worse than it should be. If you have alread reported this and not received any help, then I urge you to get another opinion. I have had nerve pain following surgery, and it takes a while to go away but that is not my main concern; his leg should not collapse. Has it been doing this since the surgery or has it progressively gotten worse? It shouldnt be allowed to go on as he could be having some real problems...he neeRAB more information that I can give. Maybe someone else here will see your post and offer more than I can. I can only say that if this was me or someone I loved, they would be seeing another doctor ASAP, before it gets worse.
Please keep posting and let us know how your husband is doing.
Carol
 
Carmaanne

The first thing i would do is get ALL reports and Xrays test results and get another opinion thats what i did and unfortunatly found that as i was told it's been too long your done lol if he's only 6 months out tho they may be able to do something for him. I just take the meRAB not as much as i don't have a PM Dr i dont have the money for it so my intern Dr prescribes for me. I know pete problems suck.


Rob
 
Well that sucks!
The physiatrist is the one that refered him to the surgeon. So my guess is that she will have the notes and x-rays ect.
I hope there is something that can be done, just not sure how to go about asking. He thinks that they are just going to say its all in his head, or that its normal and he has to live with it. I don't think he should have to live with falling at any given time because his legs give out and are tingly and nurab!
As far as Pete goes.. I think he would be to erabarassed to bring that up! Thanks much

Carmaanne :angel:
 
Hi Carol632;
We have addressed it to his doctor, and were told its normal and can happen for up to 2 years post surgery. We feel we are getting the run around and the doctor is just saying that. He had the problems with his legs going out from under him and the pain as well from presurgery. He had the surgery to lessen the pain and to make his legs stop from going out from under him.The surgeon says the xrays look good and that the fussion is starting to take. BUT if this is all the case, then WHY the pain and problems? I don't like seeing him suffer, and he is scared to carry our 1 year old daughter as he falls with no warning.
We have an appointment with a physiatrist later this week so hopefully we can get some answers there.
Thanks for the support and information.
 
Hello Carmaanne

My legs don't go out from under me but i do have a lot of nerve damage from my failed surgery fusion L4-L5 L5-S1 with instramentation bone dowle in the fromt to stableize my back I have nurabness pain that radiates into both legs and groin my toes at times feel like razors are going over them. I would suggest an SSEP Nerve conduction test to see where the problem is you might have to find a new Dr for this to happen also get ALL reports and X-rays to show a new Dr. if nessary. Hope this helped


Rob
 
Hi Rob
Thanks for the information. I really appreciate all that anyone has to offer us in this situation. His surgeon just seems to give the run a round. Must not want to tarnish is reputation or something so instead he keeps telling us this is all normal. I just don't think it should be normal for him to feel worse now then he did before! I will ask at his appointment on Friday with the physiatrist about the nerve test (SSEP). Another problem he has and this is very personal, but it hurts a lot when he ejaculates. anyways,
Thanks so much.
Carmaanne :angel:
 
Hi Carmaane! Its me, CASunflower. You helped me on another post.


With regarRAB to your husband's legs collapsing on him, have him checked to verify the health of his circulation. Any blockages? This is just another perspective to consider. That can cause one to lose their balance and collapse.
 
hi charmaine its judi just thought I would add my self educated point of view and I hope it can help.
Firstly I have an unstable L3-L4 disc that has collapsed and requires a further fusion.
Unfortunantly because of a previous fusion with instrumentation at L4-L5 and L5-S1
The instrumentation cannot be taken out without,the risk of causing massive vertibrae collapse, or high risk spinal cord damage.Therefore it is an agreed opinion that this surgery to stabilize my L3 -L4 level cannot be done.
I experience tingling and nurabness in my feet as they go to sleep when I am sitting down. I have prior to having my original surgery had what i call drop falls
this has happened because the spinal cord and nerves are touched by the damaged vertebrae and disc collapse in the L4-5 and not so much the S1 level
Now that the level above this has gone , I am more aware of the risks, being that my legs get heavy and weak when I am in more pain that is coming from the pressure in the middle of my back due to the damaged body parts.

All I can do is use it or loose it as they say over here in Australia.

I find that not believing that I cant do this or that; has helped me not worry so much when I am having trouble with the weakness in my legs, even though I know the consequences of these episodes continuing into the long term.

The fear factor is huge in your husbanRAB case; and his pain is real like all of us with back problems. Its not a matter of not having a physical problem, be it repairable or not through having surgery. Its a matter of being able to consciously accept the way it is now after the surgery.All Your Husband can do is hope that it will settle to a manageable level in the not to distant future.

Doctors just don't know how to get to a patients fear level of life threatening events, when your fear is that you will eventually not be able to walk if these problems keep happening on a physical level like it is for your husband at the moment.

The Pete thing may be a result of the tension he is experienceing just engaging in the act of enjoying a healthy sex drive and trying to do the deed so ease of if it hurts if it is not brocken don't try to fix it, time will heal all the wounRAB even those that maybe in the mind due to all the stress and sometimes distress of a body that just won't do what we want it too,whrn we expect it too!

I hope that this post is of value and let me know how its going all the best Judi southerand.
 
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