Harring Rod and Pain

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1979victim

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Hi, like some of you, I too have been searching for answers.
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Why after 30 years am I suffering the pain the surgery was supposed to stop?
Why do insurance companies and Drs know about the complications and futility of the so called back fixes:eek: of the 70's and 80s?
Why wont the ssi people see us a disabled? I am bitter, enraged and in so much feaking pain-----look up all the symptoms of flat back and i have it, including cervical cancer (CERVICAL CANCER---THE SURGERY CAUSES CERVICAL CANCER!!???? :confused:I have even suffered (suffering) the depression, and well since we are all to tall and look fine---we must be making the pain, the fatigue, the nurabness all up---and yes this is a rant---rant back
 
I hear your pain! If you have (had?) a Harrington Rod, you must have had scoliosis. I had surgery for scoliosis in 1977 with Harrington RoRAB and fusion from T4-L4. I was just a teenager and very naive. I had no idea what to expect afterwarRAB. My pain was a lot less, but I still had pain. I thought the surgery was supposed to eliminate it. But since my 75 degree curve was barely corrected, it only makes sense that I'd still have pain.

Fast forward 30 years, and I developed early osteoporosis. That, along with my fused huge curve, made the rest of my lower spine break down. I ended up having a second fusion, this time going back up to re-fuse to T10 and then all the rest of the way down. So I'm fused from T4-S1. That's a lot of fusion!

I still have pain, but I have a fantastic surgeon who did more for me than I even hoped for and who keeps me supplied with pain killers for the pain that remains. He also helped me tremendously in getting disability. It was a long process getting the SSDI, but that's the way the system is designed. It's unfortunate. Some who were lazy and dishonest have made it have to be a ridiculous struggle for those of us who truly qualify.

Have you been over on the disability section of healtrabroadoarRAB? There are lots of very helpful people there who can give you great advice on how to proceed if you've hit a wall in trying to get it.

Back issues are so horrible. What else can I say? I'm sorry you're in so much pain, but you're in the right place to get some support. We do understand!

Wishing you the best,
Emily
 
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