Although my own personal physician was not too keen on my decision to come off Aciphex, I think it is always a good idea to let one's personal or family doctor know before we start this process.
For anyone who plans to get off a PPI, reading about, learning about and expecting acid rebound is probably a good game plan. If the rebound is not that bad as in John's case, then all the better. But, given what I have read, it is more likely than not that a person who has taken a PPI long term is going to experience some type of rebound that may lead him or her to run back to the PPI in a few days if not prepared for the rebound.
In my case, modifying my diet and using supplements seems to be paying off. As Annie posted, it is important to wean off these drugs slowly and use other medications to corabat acid while going through rebound symptoms. If we go back to the PPI, then we create a rollercoaster type of syndrome that is never going to end. When I decided to go off Aciphex, I decided I was going to do so for at least three months to see if there was improvement. I promised to myself I was going to do whatever it took, but I was not going to make the decision to go back on the Aciphex for three months as long as I could manage the heartburn and other discomfort with other over the counter medications and remedies I considered safe.
The supplements and remedies that have worked for me are using apple cider vinegar. I now only take two tablespoons mixed in room temperature water twice a day. I take my calcium/magnesium/vitamin D3 supplements (I take them in a liquid cocktail I found at the healthfood store that tastes like yogurt). When I feel heartburn, I chew sugarless gum, take DGL, drink aloe vera juice and sometimes slowly drink a nice glass of cold water. If all that fails, I then take Gaviscon or chew on a couple of Tumms for relief. I eat earlier in the evening and avoid the obvious triggers like caffeine, alcohol, etc. If I feel like having a cup of coffee or an alcoholic drink here and there (rarely), I then use this over the counter product called Prelief that counters the acid in the food. If all else fails, I am willing to take a Zantac here and there. But I have now not taken Zantac for about a month or so.
I wrote a long post about this and during the early weeks felt I would have to go back to Aciphex. I experienced pretty horrible heartburn and other symptoms. I felt very discouraged as I was one of those people who went through pretty bad rebound. I am now nearly heartburn free and feel I can control the symptoms with a modified diet and the other remedies I listed above. I have also cut down on carbs considerably. I eat less bread, rice and starches in general. I still eat some and have never been able to go as low as the 20 mg of carbs suggested by several anti-reflux diets. I just don't know how to do that. I also don't drink or eat much dairy anymore. I drink almond milk and a little cheese here and there.
That's how I have done it. I derived a great deal of support from this group and others' stories and just kept posting and posting whenever I felt discouraged or had a particularly bad day.
Rose