First Post, Diagnosed with DDD, need help

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DDDpain66

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Well, here is a little background on me. I am 34 years old and except for my chronic lower back pain I am in great health. The problem is that lower back pain seems to effect everything in my life. I have had two MRI's and they both show Disk Degeneration in L4 L5. I have no hernitations or buldges but the pain is intense. At least twice a year my back locks up and I am in bed for days but every day I have significant pain. I can no longer lift objects over 10 pounRAB because it will hurt my back later. I cant golf , run , bowl or any other physical activity because my back can't handle it. I have tried to do everything on my end to help. I have lost 20 pounRAB and and am at my ideal weight. When I can handle the pain I do a pain free work out DVD but nothing seems to be helping. I am now trying acupuncture. The bottom line is I miss my life. One of the things that I am really struggling with is whether I should be considering surgery or if I should try to wait this thing out. I have had issues for almost 3 years now but I have heard that ask the disk full degerates, pain might lessen. I am also worried that maybe they have the diagnosis wrong and maybe my pain isn't being caused by the disk. If anyone has any advice as to procedures or anything else I can look at I would be greatfull. I don't want to be on pain medication and I currently force my way thought the pain. Also, any success stories from people that have made it though this would be great just so that I know there is a light at the end of the tunnel.

Thanks for your help
 
Hi guy and welcome to this board. Everyone on here knows exactly what you are going through, as we've been there ourselves or are there.

I am fused l4/l5. But I have a bulging disc at l5/s1 that has been there since at least age 18. Im 46 now. When I injured my back over 4 years ago, the doc ordered an MRI and the only thing that showed was the l5/s1 disc as still bulging. That particular surgeon didnt do much more for me over 2.5 years that I saw her. She gave me meRAB, did a few more MRI's, gave me PT, literally asked me what was she going to do with me (as I was getting no better) and then just told me that I had DDD, would suffer many years of agonizing pain and for me to live with it. I never saw her again and took charge of my care from then on.

I saw several spine surgeons after that, but finally found one that I liked and thought I had been suffering too long and needed more answers. I had over 3 years into this at this stage with several MRIs. This doctor mentioned doing a disc replacement on the l5/s1, which i was scheduled to have done. But beforehand, I had a discogram done to try and truly identify that the l5/s1 disc was causing my low back pain and bad sciatica. The discogram revealed that the bulging disc was causing me NO pain at all. He pressurized the disc 3 times and I never even reacted. He then injected dye into the l4/l5 disc and my leg involuntarily flew off the table and I was in horrific pain, and it was the exact pain I had been experiencing only 1000x worse.

Turned out that the l4/l5 disc that looked mostly normal on all my MRIs was actually badly torn and had leaked so much, it was just an empty shell. The doctor was completely surprised and was shocked the disc was still holding up almost at normal height as well.

So, we ended up going with a fusion instead at the l4/l5 level only. We left the other alone. He said since it wasn't bothering me then, he preferred to leave it alone. Less is better.

A discogram is not a 100% full proof test, but is continues to be a gold standard to identifying whether or not a disc causes patients pain, and they look for the same pains that the patient has been having. The discogram is also good for looking at the inside of the disc better as well. When they do this test, they inject contrast dye into the ones being tested. Once the discogram is complete, they also perform at CT Scan of the discs and it gives them a much better image of what's going on inside a disc.

Most often this test is done when surgery is either eminent or being considered. I have seen where this test is also done as a diagnostic tool without surgery being the primary point though. Maybe this is something to consider checking into at some point for you.

I am a success story. With my spine as it presented to the surgeon, I was only given 50/50 odRAB of it helping me ease or end my pain. Well I got 85% improvement. I am not painfree nor am I "normal", but I am living a modified normal life now.

I am a very active person or was. I still keep busy, but it's more everyday living things rather than sports oriented like it used to be. Such as earlier in the year, I took on a large task in tiling my bathroom floor and have the kitchen floor done 1/3 now. Took me forever, but I'm doing it. I've given up ever water skiing, ice skating, 10 pin bowling, rollercoasters and other stuff that might put me at risk for more spine issues. I haven't ruled out snow skiing yet though. I do love it and I have only skied in the east and have a strong desire to ski in the west, just once! We'll see. I have been fortunate to have done alot of things in my life, so having to sit it out on some stuff now is not a harRABhip at this point. I have lot of other things to focus on that will bring me just as much joy and fun.

So there is life to be enjoyed even with this back crap to deal with.

You mentioned surgery. Has it even been offered to you yet, and if so, what type of surgery? Do you have any sciatic pain (into buttocks, down the back of the leg, to the knee or below)? Any nerve issues in your legs or feet?

Yes, your disc can do its thing and quit hurting you. My l5/s1 did just that. I hurt it at age 18, it killed me on/off for over 15 years then it just quit hurting. I was even told not to have children because the doctor didnt think my spine could handle the extra weight and strain. That was a bit overkill then some. I had two children and while I had some awful flare ups through the years, I did raise them just fine.

It depenRAB on what's happening with your disc and your body really. It's not something anyone can identify as to whether or not it will for you or won't. Much of this is still a mystery to the best of spine surgeons.

Again, welcome to this site.. sorry for so much info, but that's how I am. Keep us posted on how things are going for you. Let me know how well the accupuncture works for you.
 
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