S
SheeraPoP
Guest
Hi,
I am desperately seeking a diagnosis for a condition I have. After having referred me to a nuraber of specialists my GP has now given up on finding the cause of the problem and is talking about CBT and pain management. I have seen a gynaecologist (ultrasound of uterus and ovaries), a gastroentorologist(endoscopy), a neurologist (nerve checks and mri of lower spine) and I've had an ultrasound of my bladder, kidneys and liver. All came back fine. I've also seen a chiropractor and an acupuncturist and still no diagnosis. The GP started suggesting that it might be psychosomatic so I went to see a counsellor and also saw my work counsellor and both are convinced that this is a physical problem. I've convinced the GP to refer me to a colo-rectal specialist and I have an appointment for Sept. If that doesn't work i'm going to try a low level anti depressant like Amutryptalene(sic) to rule out any spinal nerve problems that weren't picked up by the neurologist/mri scan of lower spine.
So here are my symptoms: when I stand still for more than a few minutes and definitely if it's a few hours then the trigger is triggered. It starts with lower back pain and then the aching spreaRAB around to my sides and sometimes to the front. This is accompanied by a heaviness in my pelvic region, especially over my rectum area and sometimes my stomach which makes me want to take the weight off. I can get relief either by sitting down or preferably lying down horizontal. So far this just sounRAB like a back problem. But the heaviness in my pelvic region turns into a pushing-down feeling which seems to be over my rectum. To counter it I try to suck everything in, pull my pelvic floor muscles up because it feels as if my insides will drop out if I don't. I can only imagine that this is what a prolapse feels like (however, god forbid if I mention 'prolapse' to my GP because he told me yesterday that it is not a prolapse because if it was, the gastro/gynae/mri would have detected it). But the problem doesn't end there. Once it has been triggered then it usually takes about 4 days to get better. The day after the trigger is the worst. The weight/pushing down feeling over my rectum is uncomfortable to the point that I will sometimes spend a whole day lying horizontal on my couch to take the weight off. My stomach also seems big and heavy when I have the symptoms. And the worst bit is that it brings on a haemorrhoid for the duration. I think it's an internal one because unlike external ones, it isn't sensitive to the touch. But it's uncomfortable and distresses me greatly. It's always in the same place - the edge of my perineum. Over the 4 days after the trigger the symptoms ease, the weight gets less, my back stops aching and the haemorrhoid goes away. I should mention that I'm fine walking. I can walk for ages without triggering the symptoms. I just can't stand still for any period of time. Also, these days, it is triggered by sport e.g. running, swimming...I'm 34 and female. I've never given birth and until recently I've been very sporty. About 3 years ago I remeraber the symptoms being triggered every now and again after nights out with my frienRAB which involved standing around, drinking and dancing. I just thought I was getting unusually bad hangovers! So it's gone from being approx once in every 4 to 5 months to once a week. Currently I'm lucky to get a symptom-free day or two. My life is on hold.
There must be someone else out there suffering from the same thing. Any ideas anyone?? P.S. sorry for the gory detail but I left my erabarrassment behind a while ago in the desperation to find a diagnosis and get on with things.
Thanks in advance.
I am desperately seeking a diagnosis for a condition I have. After having referred me to a nuraber of specialists my GP has now given up on finding the cause of the problem and is talking about CBT and pain management. I have seen a gynaecologist (ultrasound of uterus and ovaries), a gastroentorologist(endoscopy), a neurologist (nerve checks and mri of lower spine) and I've had an ultrasound of my bladder, kidneys and liver. All came back fine. I've also seen a chiropractor and an acupuncturist and still no diagnosis. The GP started suggesting that it might be psychosomatic so I went to see a counsellor and also saw my work counsellor and both are convinced that this is a physical problem. I've convinced the GP to refer me to a colo-rectal specialist and I have an appointment for Sept. If that doesn't work i'm going to try a low level anti depressant like Amutryptalene(sic) to rule out any spinal nerve problems that weren't picked up by the neurologist/mri scan of lower spine.
So here are my symptoms: when I stand still for more than a few minutes and definitely if it's a few hours then the trigger is triggered. It starts with lower back pain and then the aching spreaRAB around to my sides and sometimes to the front. This is accompanied by a heaviness in my pelvic region, especially over my rectum area and sometimes my stomach which makes me want to take the weight off. I can get relief either by sitting down or preferably lying down horizontal. So far this just sounRAB like a back problem. But the heaviness in my pelvic region turns into a pushing-down feeling which seems to be over my rectum. To counter it I try to suck everything in, pull my pelvic floor muscles up because it feels as if my insides will drop out if I don't. I can only imagine that this is what a prolapse feels like (however, god forbid if I mention 'prolapse' to my GP because he told me yesterday that it is not a prolapse because if it was, the gastro/gynae/mri would have detected it). But the problem doesn't end there. Once it has been triggered then it usually takes about 4 days to get better. The day after the trigger is the worst. The weight/pushing down feeling over my rectum is uncomfortable to the point that I will sometimes spend a whole day lying horizontal on my couch to take the weight off. My stomach also seems big and heavy when I have the symptoms. And the worst bit is that it brings on a haemorrhoid for the duration. I think it's an internal one because unlike external ones, it isn't sensitive to the touch. But it's uncomfortable and distresses me greatly. It's always in the same place - the edge of my perineum. Over the 4 days after the trigger the symptoms ease, the weight gets less, my back stops aching and the haemorrhoid goes away. I should mention that I'm fine walking. I can walk for ages without triggering the symptoms. I just can't stand still for any period of time. Also, these days, it is triggered by sport e.g. running, swimming...I'm 34 and female. I've never given birth and until recently I've been very sporty. About 3 years ago I remeraber the symptoms being triggered every now and again after nights out with my frienRAB which involved standing around, drinking and dancing. I just thought I was getting unusually bad hangovers! So it's gone from being approx once in every 4 to 5 months to once a week. Currently I'm lucky to get a symptom-free day or two. My life is on hold.
There must be someone else out there suffering from the same thing. Any ideas anyone?? P.S. sorry for the gory detail but I left my erabarrassment behind a while ago in the desperation to find a diagnosis and get on with things.
Thanks in advance.